Gosh such memories SCT, Prof. Schey, Davidson ward, limited allowable foods (a great many eggs hard boiled for 10 minutes, salad cream and a few other bits) Always a daily paper.

We are not too far from Kings (we live in Orpington Kent) but still a darned long walk from Denmark Hill station to Kings.

Good luck to everybody with SCTs coming…[Read more]

So nice to hear from you Min

I am pleased that you moved on but have missed you no end, especially missed someone to moan about regarding our 2 naughtie little Westies (I swear they get worse and Stephen spoils them more and more)

I hope your sight remains OK (I am very, very short sighted and know one day I will be told to stop driving etc…[Read more]

Hi

We have been in France for the last few weeks and Stephen (mm husband) was not very well but although we have internet access it is not always there (blinking French countryside!!)so I am only just catching up with the posts on here

Gail your post really hit home. Dexemethasone is the most evil drug in the world. It does a great deal of…[Read more]

Hi Eve

Thanks for replying. I don't expect everybody to contribute I just thought I'd flag it up. Good luck with yor fundraising

Love from Gill x

Hi Teresa Thanks to you too.

In answer to your query LBC is the London Broadcasting Company (more commonly called London's Bigest Conversation) They started up in 1973 and I've been…[Read more]

Sorry to hear your bad news Mavis fingers crossed for CDT to kick the beastie into touch

Gill x

PS Stephen also has holes in his bones in fact he has what is known medically as a " pepper pot" scull the x ray of it was aweful having a very sick sense of humour he jokes that his scull would make a darned good hanging basket for geraniums

Hi Terry

My husband Stephen is the mm person here. I pull his leg constantly about feeling the cold. This South East London builder who wore T shirts all year round and moaned about everyone else wanting the heating on etc. now wears my Snuggie in the evening and cranks up the heating

I don't know why mm ers seem to feel the cold but it…[Read more]

Goodness Dai 10 months makes Stephen's 16 months a lifetime:-)

It is heartbreaking to find that things aren't holding back the mm. I love your positivity Dai a lesson we can all learn from

Stephen has learnt to never ever talk about "when I'm gone" I am not in denial but can cope with "well if I go first" any others out there as silly as…[Read more]

I don't know how I missed your post at the start a belated welcome from me
Gill x

I am so pleased that everything went well and you all had a chance to celebrate Derek's life as well as mourning his death

Kindest thoughts Gill xx

DEX!!!!!!! How I hate it and am grateful to it at the same time. Stephen should be on it now as it will be used as part of his maintenance regime. It has been held back for the moment because of his shingles.

When Stephen was first prescribed it the dose was huge and Stephen was horrid but for ages did not recognise that it was him and not me.…[Read more]

Dai I am sure that Janet will back you to the hilt. GO you only get one chance in life and you should grab the opportunities

I want to wrap Stephen in cotton wool and keep him close to me to take care of him, but I know that whatever life any of us have should be lived. Stephen is not a stupid person. If he ever fancied bungie jumping he is…[Read more]

Like everyone else Welcome and wish you were not here

Please ask away My husband (Stephen) was diagnosed at 53 and that was considered young then (2008)

Everybody on here will be only too pleased to chat, answer questions when they can and give you support. Do try the under 50s group too. I keep trying to convince them I am 16 (I'm 62 but…[Read more]

Cough relief

If it says balsam on the label and it is thick and brown Oh Boy does it relieve a cough.

Cures bugger all BUT taken in a little drop of very hot water it soothes no end.

Some of us oldies still have helpful ideas My mum would be 98 now and shoved Owbridges balsam down my throught every time I coughed. I don't think you can…[Read more]

I am not sure what Dai meant but I know it was good wishes and hey Tom I never forget any of you I don't post as often as usual but only because the Internet connection in the middle of the French wilderness is very hit and miss (more miss than hit) I can read you all most times but answering is a nightmare. Very frustrating when you are as…[Read more]

I am sure that you can all imagine the joy that I felt this morning phoning the b and b we use when we go to France (the days of doing the 16 hour trip in one go are long over for both of us) deux personnes deux petits chiens chiens d'une nuit svp.

With the receptionist's little bit of Engl;ish and my little bit of french. We are on our way…[Read more]

YIPPEE

It seems to be Bugger All

All your crossed fingers have worked:-) 🙂

Thank you all

France Here We Come

Merci tout le monde de vos bons souhaits

Thanks all for your good wishes (I hope I got that right. It is quite easy to say something very rude in a language that is not easy for you hence the true story of the guy in France that asked for penis flavoured jam (wanted pine flavoured honey, and NEVER say I am hot as it means your feeling sexy8-) I…[Read more]

Dear Janet

It is a setback to find you have relapsed. My husband was diagnosed at 53 and had 16 month remission before he relapsed. He had a second SCT which did not take and has just had a course of revlimid. His pps are not too bad but there is other damage showing that the drugs are not working.

He too suffers from chest infections and…[Read more]