Myeloma Forum | GillSeaward | Activity https://forum.myeloma.org.uk/members/Gill/activity/ Activity feed for GillSeaward. Sun, 05 Apr 2026 20:30:08 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 51a1511bdc26207534a2c75d21d04abd GillSeaward replied to the topic Being Silly over Mince Pies in the forum Off topic http://www.myeloma.org.uk/forums/topic/being-silly-over-mince-pies/#post-126930 Wed, 17 Feb 2016 11:56:46 +0000 Hi Vicki, I have already tried to reply to your message but I lost the post somewhere in the ether. Apart from sport which Stephen loved and I loathe, it seems that you and Colin lived the same life as us. We would spend whole Saturday afternoons trying out different recipes with very few disasters. Once Stephen had to stop working we went out to…[Read more]

]]> 7d6c01f310b6fd61391249d510b82ce0 GillSeaward started the topic Being Silly over Mince Pies in the forum Off topic http://www.myeloma.org.uk/forums/topic/being-silly-over-mince-pies/ Sat, 09 Jan 2016 21:02:14 +0000 Stephen never had a sweet tooth for sweets, biscuits fruit pies etc. An occasional square of chocolate (I have an “occasional” bar of chocolate very regularly and I scoff the whole bar). His one love was mince pies. From the moment they hit the shops he would stack up. He’d the longest sell by dates he could find and squirrel them away. I haven’t…[Read more]

]]> 83696ffec2c976b2bcd3abb4a2c12a44 GillSeaward replied to the topic 3 years in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/3-years/#post-124479 Fri, 02 Oct 2015 04:47:48 +0100 p.s picture was taken on holiday. Stephen’s face was so calm but I was giggling because he was pinching my bum!!

]]> 739525ec18d2dfccda2c336d9dcc4039 GillSeaward started the topic 3 years in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/3-years/ Fri, 02 Oct 2015 04:34:56 +0100 I don’t look on here often. My darling husband died on the 11th of September 2012. He was 57. We both knew he had terminal mm but didn’t expect him to go downhill so quickly. On his last visit to the oncologist he was told he had 2 years left hopefully more. He was dead 4 weeks later. His oncologist was genuinely shocked. As were his chemo nurses.…[Read more]

]]> 4a2d9704963d6181cc70d41d46c93b83 GillSeaward started the topic 3 years in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/3-years/ Fri, 02 Oct 2015 04:34:56 +0100 I don’t look on here often. My darling husband died on the 11th of September 2012. He was 57. We both new he had terminal mm but didn’t expect him to go downhill so quickly. On his last visit to the oncologist he was told he had 2 years left hopefully more. He was dead 4 weeks later. His oncologist was genuinely shocked. As were his chemo nurses.…[Read more]

]]> ca2925f74d023de2510a72192ff08a1f GillSeaward started the topic Birthday Lunch for Stephen in the forum Off topic http://www.myeloma.org.uk/forums/topic/birthday-lunch-for-stephen/ Sat, 11 Apr 2015 16:40:09 +0100 My Husband died in September 2012. He would have been 60 on the 31st March and a few weeks before that date I got a cheque out of the blue for just over £700. The company had paid one of Stephen’s insurances wrongly and the cheque represented the shortfall plus interest.

Pat has been our very best friend since God was a boy and wore short…[Read more]

]]> b024e16750b61e257650b2e51997578c GillSeaward replied to the topic Heartbroken that he's gone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/heartbroken-that-hes-gone/page/2/#post-121265 Thu, 12 Mar 2015 16:34:42 +0000 I am so sorry that your husband has gone. I would love to tell you that it gets better, but you do learn to deal with it. My children were much older than yours. They may be very angry with Dad and feel very guilty for feeling that way.

I am no expert or councillor but I wonder if it would help to let them know that is OK to be angry with Dad. He…[Read more]

]]> fc7d428633b5abfe1eefe20360e48554 GillSeaward replied to the topic Tears and Onions in the forum Off topic http://www.myeloma.org.uk/forums/topic/tears-and-onions/#post-121263 Thu, 12 Mar 2015 16:16:29 +0000 Hi Tina

You hold on to that tea towel forever. I cannot use a “steel” to sharpen knives but I would never part with it. I miss Stephen so, so much and do not think that will ever change, but I have learned to carry on. I also realise that family and friends have no idea how much I am still grieving, but that’s OK. It’s how it should be.

Love…[Read more]

]]> f4b3d622447bcfbdfdff31bbc5b9f378 GillSeaward started the topic Tears and Onions in the forum Off topic http://www.myeloma.org.uk/forums/topic/tears-and-onions/ Sun, 15 Feb 2015 14:25:33 +0000 My husband died in September 2012. His first job after leaving school was as a trainee butcher for Sainsbury’s. As a result of that he could carve meat properly, bone out meat and sharpen knives. I had inherited a couple of sets of cutlery and a couple of sets of knives.

The knives all had bone or ivory handles (not P.C. But they were over 100…[Read more]

]]> 0b386edd412dde1ba8560dc99fa6caa8 GillSeaward replied to the topic Heartbroken that he's gone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/heartbroken-that-hes-gone/#post-119962 Sun, 14 Dec 2014 14:07:48 +0000 Dear Rosie
I am so sorry to read that Chris has gone. I don’t come on here very often now. My darling husband, best friend and soul mate died in September 2012 aged 57. There is not one day that I don’t miss him. I have passed the stage of disbelief, in the early days I would wake up and, half asleep, look to my right and try to work out where he…[Read more]

]]> 29c3b8f44ba990baad0b3a0bd7a6c270 GillSeaward replied to the topic Heartbroken that he's gone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/heartbroken-that-hes-gone/#post-119962 Sun, 14 Dec 2014 14:07:48 +0000 Dear Rosie
I am so sorry to read that Chris has gone. I don’t come on here very often now. My darling husband, best friend and soul mate died in September 2012 aged 57. There is not one day that I don’t miss him. I have passed the stage of disbelief, in the early days I would wake up and, half asleep, look to my right and try to work out where he…[Read more]

]]> 8bd736f530f615ec289337aac66e179c GillSeaward replied to the topic DEXAMETHASONE- debilitating side effects after only 2 cycles of vcd!! in the forum Side-effects http://www.myeloma.org.uk/forums/topic/dexamethason-debilitating-side-effects-2week-break-after-only2-cycles-of-vcd/#post-119216 Sat, 01 Nov 2014 03:56:18 +0000 My husband was on a really high dose of dex. It turned him from a laid back pussy cat who rarely got angry to a a bad tempered, argumentive monster. We called this dexatude. I hope you are on a low dose and it is not affecting you too badly

Gill

]]> 80f542567ca6f97fa6ec1008ecdec6ed GillSeaward replied to the topic Losing dad after 19 years of MM in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/losing-dad-after-19-years-of-mm/#post-119083 Sat, 25 Oct 2014 02:49:45 +0100 I am sorry that your Dad has died. I am sure your post will make people more hopefull. He actually lived on for 19 years after diagnosis. Let’s hope for a breakthrough soon. My husband died 4years after diagnosis aged 57

Gill

]]> 5928d84b50dee27cde68903becb707db GillSeaward replied to the topic SLIM in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/slim-my-soul/page/3/#post-118061 Thu, 11 Sep 2014 01:18:22 +0100 I hope Slim’s funeral went really well, and was a real celebration of his life. Gil xx

]]> d4cb0caf40c3aa3c210b446f9a620345 GillSeaward replied to the topic SLIM in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/slim-my-soul/page/2/#post-118022 Mon, 08 Sep 2014 14:37:10 +0100 I will be with you both tomorrow and I hope it is a wonderful celebration of Slim’s life. Don’t forget a straight back, determination and a pocket full of tissues.

When Stephen died my daughter flew over from the States. She was devastated that she did not arrive before Stephen died, but she said she was there to support me. Bless her she sorted…[Read more]

]]> f44b4d5b9e398995bb22b7fc42c16175 GillSeaward replied to the topic SLIM in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/slim-my-soul/page/2/#post-117905 Wed, 03 Sep 2014 02:33:33 +0100 Dear Eve

I am truly sorry to hear of Slim’s death. Stephen died nearly 2 years ago. Sometimes it seems like a lifetime away and sometimes it feels as though it was yesterday.

Like you and Slim there was nothing left unsaid between us, and as for regrets? I have none. (as long as you don’t count the fact that he got this bastard disease).

For a…[Read more]

]]> 8dd68b889eca3d347b864b9ed4555b67 GillSeaward replied to the topic Cost of Stem cell transplants in the forum Treatment http://www.myeloma.org.uk/forums/topic/cost-of-stem-cell-transplants/#post-117700 Tue, 26 Aug 2014 01:15:05 +0100 My husband had 2 SCTs in 2010/2011 we were told that the cost of each was £30,000 We were fortunate enough to have private health care and the bills we received were for food etc in the hospital.

I am still not sure who paid the cost of the SCTs but I think they were on the NHS.

If they have stopped funding transplants on the NHS I would sign…[Read more]

]]> d97c85ca423ff8a3a51c87f783036dd9 Gill posted an update: @janey18 https://forum.myeloma.org.uk/activity/p/2715/ Tue, 10 Jun 2014 11:45:28 +0100 @janey18

]]> 0 c072eb1a7d0bf4d76f54422e00bdb400 GillSeaward replied to the topic Just under a month in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/just-under-a-month/#post-114857 Sun, 04 May 2014 14:44:52 +0100 My husband died in September 2012 aged 57. He had had mm for 4 years but the end came very suddenly. The pain will never go completely lesj, but you learn to cope with it. I miss Stephen all the time, but have learnt how to cope.

]]> 0581513947cb3eaff61bef4aa97a4ad9 GillSeaward replied to the topic ROLLER COASTER RIDE in the forum Carers http://www.myeloma.org.uk/forums/topic/roller-coaster-ride/page/2/#post-113406 Sun, 02 Mar 2014 14:52:32 +0000 PS great news about your daughter. I don’t suppose you will have time to post with your visitors are with you. So post nice long message after they have gone xxxx

]]> 76ee7130514834caf7f7d9fe896f5b96 GillSeaward replied to the topic ROLLER COASTER RIDE in the forum Carers http://www.myeloma.org.uk/forums/topic/roller-coaster-ride/page/2/#post-113405 Sun, 02 Mar 2014 14:48:48 +0000 Eve I had chicken pox aged 28 I was delirious and could see spiders climbing up the walls. The pain was unbelievable. When my kids had it as children they were absolutely fine

My daughter was terribly ill when she caught measles and was close to being hospitalised but we were told not to have her vaccinated because she suffered from febrile…[Read more]

]]> c1dfc1d3769a2354a3f696562ff9fe99 GillSeaward replied to the topic ROLLER COASTER RIDE in the forum Carers http://www.myeloma.org.uk/forums/topic/roller-coaster-ride/page/2/#post-113096 Wed, 19 Feb 2014 12:03:58 +0000 Hi Eve and Slim I don’t log on very often and I was sorry to hear that Slim had been so unwell, but things seem to have improved a great deal since you changed hospitals.

None of us are oblivious to just how life threatening mm is, and I think the quality of life is paramount.

As you know Stephen died in 2012 aged 57. Up until a few weeks…[Read more]

]]> 204f2032bc47f358a4690d45b530bf60 GillSeaward replied to the topic Balancing supporting/caring and working in the forum Carers http://www.myeloma.org.uk/forums/topic/balancing-supportingcaring-and-working/#post-112408 Sun, 02 Feb 2014 05:50:24 +0000 Hi Sarah

I don’t post very often but still have a look now and again to see how people are getting on.

It is a very hard decision you are faced with especially as you have years of work ahead of you. My husband was diagnosed in 2008 just after his 53rd birthday I was 5 years older (I always said he was my toy boy but my daughter told me he…[Read more]

]]> 51c8515f240c824dfd5937e9e9d1f919 Gill started the topic Hard time of year in the forum Off topic http://www.myeloma.org.uk/forums/topic/hard-time-of-year/ Thu, 26 Dec 2013 04:48:42 +0000 My husband (Stephen) died 15 months ago in September 2012 It was 3 months before Christmas and I was still shocked at how fast the end came and, looking back, probably quite numb. I turned down all the very kind invites for Christmas day and just got on with another day.

It is hard this year I have spent Christmas day on my own (by choice I did…[Read more]

]]> ba5151bd06c9f109427fc4807d6e077d Gill replied to the topic Sore Mouth with Revlimid in the forum Side-effects http://www.myeloma.org.uk/forums/topic/sore-mouth-with-revlimid/#post-111340 Wed, 11 Dec 2013 22:43:32 +0000 I don’t come on here very often now but I know that Corsodyl toothpaste and mouthwash really helped Stephen

]]> dfa7547a52510e93fe245bfcd69d0f87 Gill replied to the topic It's Back in the forum Treatment http://www.myeloma.org.uk/forums/topic/its-back/#post-111275 Mon, 09 Dec 2013 04:04:46 +0000 Hi Tom so sorry to hear your news but there seems to be a great many new drugs coming on the scene to keep mm in control.

I know that everybody on here has their fingers crossed that your medics find the right one for you to kick the blasted disease into touch for a long time.

Much Love Gill xxx

]]> 7237d2823a5cb3b3367e8fc730834f71 Gill started the topic It's harder this year and I don't know why in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/its-harder-this-year-and-i-dont-know-why/ Thu, 05 Dec 2013 14:25:31 +0000 My Husband, Stephen, died in September 2012 I don’t remember much about that Christmas. Stephen and I didn’t rate Christmas much after the children had grown up and left home. They visited some time over the holiday but M.I.L always expected the kids to spend Christmas with her and D.I.L. and I wanted to be on my own. I will be on my own (by…[Read more]

]]> 3bedbd7fbbb433fc63e5bdbf93d71109 GillSeaward replied to the topic Elephant In The Room in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/elephant-in-the-room/page/3/#post-108163 Sat, 27 Apr 2013 18:13:35 +0100 Good luck and Good health to you all.

But please remember how long you lived is not so important as how well you lived, how much you and those around you enjoyed your life and the legacy you left behind

Stephen died last September, young, needed and missed by all who loved him.

Please don't feel as though it is all doom and gloom Eve but…[Read more]

]]> 7f6100294820d6c76d2894a1ad46109e GillSeaward replied to the topic Keith Hindmarch in the forum General http://www.myeloma.org.uk/forums/topic/keith-hindmarch#post-95100 Thu, 25 Apr 2013 13:40:43 +0100 I hate mm I wish Keith and Sue all the strength they need to have in the coming weeks Gill xxxx

]]> 212631f8eac2f9015678bc69707479fc GillSeaward replied to the topic Dad's final days in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/dads-final-days#post-108224 Thu, 18 Apr 2013 01:05:15 +0100 Dear Tanya

I am so sorry for the grief and pain you are feeling. I am also thankful that your dad's end was peaceful, pain free and you were with him.

Stay in touch if you would like support. No doubt you will be very busy over the next few days but we will be here when you need a few words of sympathy and encouragement.

Love from Gill xx

]]> 59f1477fa5289dc014c9589fa5ff17e1 GillSeaward replied to the topic Lovely memories but quite a few sniffles in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/lovely-memories-but-quite-a-few-sniffles#post-108214 Sat, 13 Apr 2013 22:44:13 +0100 Thanks Tom

Yes to be dead 2 months after the photos were taken is unbelievable. But my garden is still amazing and a tribute to Stephen's skill, ability and vision. I am lucky to have so many reminders of what he achieved. House transformed, garden pretty damn good, 2 naughty little Westies (the jury is still out on that:-) love them really…[Read more]

]]> dc2116af940bbfd4085862397c3d533b GillSeaward replied to the topic Lovely memories but quite a few sniffles in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/lovely-memories-but-quite-a-few-sniffles#post-108212 Fri, 12 Apr 2013 16:30:31 +0100 Hi Everybody

Just to share some other memories I found in that camera. On a couple of the other photos on the memory stick more of the garden is showing behind Stephen.

For 5 years after moving in here we concentrated on making the house "habitable" Ok we had running water, a smelly working loo, and windows, although we couldn't see out of…[Read more]

]]> 429818a6c59d3e10fcb56181ddc5142d GillSeaward replied to the topic Dad's final days in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/dads-final-days#post-108218 Fri, 12 Apr 2013 13:26:30 +0100 I am glad that your dad is comfortable and not in pain. I think that, apart from willing our loved ones to get better and not leave us, a peaceful and pain free end is something we all hope for.

Do keep in touch. Nobody on here can change what is to be but people can give you support,heartfelt sympathy and kindness

Gill xx

]]> e7f77453ab33da885ed6faf28a090efd GillSeaward replied to the topic Lovely memories but quite a few sniffles in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/lovely-memories-but-quite-a-few-sniffles#post-108207 Wed, 10 Apr 2013 01:22:02 +0100 I had the photo printed off at a camera shop. They printed off a 5 x 7 and framed it. It is "very Stephen" kind eyes, dog lover, calm personality and "sticky out ears" . He was never vain but I know he would have said "I am sure my ears are getting bigger. Trust you to get the sun shining through them to make them look even worse :)"

Gill…

]]> 957d61841dd31673287ded62e3af74b3 GillSeaward started the topic Lovely memories but quite a few sniffles. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/lovely-memories-but-quite-a-few-sniffles Tue, 09 Apr 2013 16:01:01 +0100 I don't know if I mentioned that I sorted through Stephen's cameras and came across a memory stick in one that had not seen the light of day. You can imagine my joy and tears to discover this I think they are the last pictures taken of Stephen before he died. His hair has grown back pointing the opposite way from before chemo and he was obviously…[Read more]

]]> 84ef85eaa63b157063647ee55e7145e8 GillSeaward replied to the topic Two and a half years in the forum General http://www.myeloma.org.uk/forums/topic/two-and-a-half-years/page/2/#post-94749 Tue, 09 Apr 2013 13:05:26 +0100 I have missed so many posts on here since Stephen died that I did not register that Slim was unwell. There is so little I can say I can only send you kind thoughts and love.

Gill xx

]]> 1e79facee8eea69aa287bc6cb3174225 GillSeaward started the topic 1 step forward and 1 back or is it 2 forward and 1 back.?. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/1-step-forward-and-1-back-or-is-it-2-forward-and-1-back Sat, 06 Apr 2013 21:13:51 +0100 I do feel that I have moved forward a little in many ways. It is now 7 months since Stephen died and although I still find it hard I am managing to cope but I find that I can't talk to him now without breaking down uncontrollably.

Maybe talking to him sounds silly, but I often chatted away. Silly everyday things. Not all day just now and…[Read more]

]]> d31095fc186515f989ed81ac9187874b GillSeaward replied to the topic Secondary Cancer in the forum Related conditions http://www.myeloma.org.uk/forums/topic/secondary-cancer#post-105601 Thu, 21 Mar 2013 20:22:48 +0000 Sandie

I posted that 19 months ago and yes the second lump was mm. Stephen died. aged 57, on the 11th September 2012. He had mm for 4 years. He got very little remission. and 2 days after he was told he had 2 years left he got very ill and died within 4 weeks

Perhaps you don't read all the posts put on here

Gill

]]> bf4efea60443c4dafcc848f313e46413 GillSeaward replied to the topic Elephant In The Room in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/elephant-in-the-room/page/2/#post-108152 Sun, 17 Mar 2013 02:56:56 +0000 What a lovely post David Love from Gillxx

]]> f506d339f02dc6ef13953594a0ba3c2d GillSeaward started the topic More Personal Information Please. in the forum Off topic http://www.myeloma.org.uk/forums/topic/more-personal-information-please Sat, 16 Mar 2013 01:31:23 +0000 Firstly welcome and hello to all the new people that have joined this site.
I am so sorry that you have had to join a club where nobody wants to be a member. Having said that you will get more support on here than anywhere else

Could I please ask everybody to just give a little bit more info on their profile eg How old are you? Is it you or a…[Read more]

]]> feb6e489a6f7f74f401cb47ff64e4e02 GillSeaward replied to the topic Bereavement Counselling in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/bereavement-counselling#post-107968 Mon, 11 Mar 2013 16:23:27 +0000 Dear Ann

Like you and Eddie Stephen and I were soul mates, best friends, joined at the hip as the kids used to say. Stephen had had to stop work quite a while before he died. He was a carpenter and builder but of course the mm took its toll and he could not do the physical work that it entailed. I retired a year early so I could stay at home…[Read more]

]]> 1f017a7cbe95ea2f5d845162956b765d GillSeaward replied to the topic Good-bye Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/goodbye-michael#post-108106 Thu, 07 Mar 2013 01:42:26 +0000 D ear Sue

I am sorry for my late message but I don't often come on here. I am glad that Michael's funeral went well. I found it quite difficult after Stephen's funeral once it had all settled down I think the reality hit me. Nearly 6 months later I still miss him like crazy but I suppose I have settled into my own routine.

I have decided…[Read more]

]]> a43e5736155347620c96a3f509cce15e GillSeaward replied to the topic All new to me, and very scary............. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/all-new-to-me-and-very-scary#post-87240 Sun, 27 Jan 2013 13:15:31 +0000 Dear Grayham

This is not a club that anybody wants to join but if you have mm it is the best place in the world to get support and friendship.

The treatment for mm and the drugs that are coming on line are getting better and better and I cannot wait to see mm getting kicked into touch once and for all. Too late for my husband who died aged…[Read more]

]]> d117a78f7160c0adf59fb75effa0a5bd GillSeaward replied to the topic Phil's SCT Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/phils-sct-journey/page/7/#post-101340 Mon, 14 Jan 2013 11:12:15 +0000 A huge Welcome Home from me Gill x

]]> fc52e065293619166c08fa119a827d5a GillSeaward replied to the topic So Alone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/so-alone/page/4/#post-108019 Sat, 12 Jan 2013 18:19:02 +0000 Hi Sue I am so pleased that you are both getting some help at last your Mac nurse sounds wonderful.

It is good that you may be able to take a break from work. With Michaels DLA allowance and you not working for a while it may give you a chance to see if you could manage on semi retirement money and Michael's benefits.

I retired at 59…[Read more]

]]> 4819ce239b945382043662da47c6a09f GillSeaward replied to the topic So Alone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/so-alone/page/4/#post-108016 Sat, 12 Jan 2013 12:37:51 +0000 Has anybody heard from Sue? I have been thinking of her and wondered how Michael is Gill xx

]]> 4459ab8031adcafbb130a62a1ecfbc36 GillSeaward replied to the topic Newbie to this site and a carer in the forum Newcomers http://www.myeloma.org.uk/forums/topic/newbie-to-this-site-and-a-carer#post-87070 Mon, 07 Jan 2013 14:20:31 +0000 Hi Heather

One more tip take a pad and pen when you visit the consultant. Even with 2 of you listening carfully it is easy to not remember it all

Godd Luck Gill

]]> 41ef8ae65f067615ba67c381ef57db94 GillSeaward replied to the topic Cramp in the forum Side-effects http://www.myeloma.org.uk/forums/topic/cramp#post-105093 Sat, 05 Jan 2013 18:49:13 +0000 I suffered from cramp when I started on beta blockers . My cardiologist recommended I take Co Enzyme Q10 200mg at night
When Stephen started getting cramp because of his mm we checked with his oncologist and Stephen was told it was OK to use them.

They are a natural food supplement not a drug and take a couple of days to kick in. Min…[Read more]

]]> 20061d09c05cf1f98bd87e16e9bfde4e GillSeaward replied to the topic So Alone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/so-alone/page/3/#post-108006 Fri, 04 Jan 2013 12:14:15 +0000 Dear Sue

Has anybody suggested that Michael go in to your local hospice for some respite care? It can be a chance for you to re-charge your batteries and catch up with some much needed sleep, knowing that Michael is being looked after 24/7.

Our local hospice was marvelous. They had Stephen's pain under control straight away and they are very…[Read more]

]]> 17f8f8bcee82bdcdd32711ea135a40b3 GillSeaward started the topic The worst so far. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/the-worst-so-far Tue, 25 Dec 2012 14:53:08 +0000 I cannot believe how devastatedI feel. At the time of his death funeral etc I was so shocked and numb I got through it all. I am on my own here by choice and cannot wait for Christmas to end. I hope all of you enjoy this festive time and are well xxx

]]>