Myeloma Forum | GillSeaward | Friends Activity https://forum.myeloma.org.uk/members/Gill/activity/friends/ Activity feed for GillSeaward's friends. Mon, 06 Apr 2026 11:30:11 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 c777028adb3dfd9441e0ce43929b98df susannah. replied to the topic 3 years in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/3-years/#post-124603 Tue, 13 Oct 2015 20:34:54 +0100 Hi Gill This is the first time ive looked at the site for ages, I often wonder how the rest of you are coping. Its its two and a half years since Michael died like you some days it seems longer than others I to have done things that I never thought I never would .but I always believe Michael is with me. Would be nice to catch up drop me a…[Read more]

]]> 4ad0cee96312b0c99b550620617edc84 susannah. replied to the topic SLIM in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/slim-my-soul/page/3/#post-118076 Fri, 12 Sep 2014 16:59:58 +0100 Dear Eve I am so sorry Slim has passed away, and I hope everything went well for you on Tuesday.
I remember you when Michael was in his final days and the comfort you gave me with your kind words.
Love and Hugs
Suexx

]]> d65950095aea56369b138f6615cc164e Min Cato replied to the topic SLIM in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/slim-my-soul/#post-117838 Fri, 29 Aug 2014 22:24:11 +0100 So very sorry to hear of Slims passing. He fought a massive battle for so long,with you
By his side.

Thinking of you and your family at this sad time.

]]> c3f38055330cce1f4158cfd9d3454539 susannah replied to the topic It's harder this year and I don't know why in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/its-harder-this-year-and-i-dont-know-why/#post-111177 Thu, 05 Dec 2013 19:14:55 +0000 Hi Gill no what you mean about songs, I don’t know if its because were more aware, I keep hearings songs from the past which meant a lot to us both, they seem to be playing all the time or have they always been played and I took them for granted ( god I do ramble on sometimes, but I know what I mean)
Strange isn’t it I feel worse now than I did 9…[Read more]

]]> 7dc4ceadf4ab9122c4dc895f46ee2cdd susannah. replied to the topic Trials, Treatments & The Individual in the forum Treatment http://www.myeloma.org.uk/forums/topic/trials-treatments-the-individual#post-102511 Mon, 13 May 2013 21:33:46 +0100 Hi all I must say that I do agree about the trials being more important than the person. When Michael was on the Bendamustine trial there were regular phone calls asking what if any side effects he was getting and even when he had to stop treatment (this was because he had very low platelets and the trial criteria stated he could not be given any…[Read more]

]]> 9d695138c68629001875c4dcc557ce67 susannah. replied to the topic Keith Hindmarch in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/keith-hindmarch1367593561/page/2/#post-108251 Tue, 07 May 2013 20:15:42 +0100 Dear Sue I am so sorry to hear about Keith another sad loss to Multiple Myeloma, my heart goes out to you and your family

God Bless
Suex

]]> 2b28d956edd581e4a84c2b1e9947a621 susannah. replied to the topic Keith Hindmarch in the forum General http://www.myeloma.org.uk/forums/topic/keith-hindmarch#post-95092 Tue, 23 Apr 2013 20:21:54 +0100 My thoughts are with Keith and his wife Sue. I always remember Keith from the old site when I was fighting for Velcade for Michael, he was always there to support me. God bless you Keith.
Love
Suex

]]> 161bfacfb5f1da3d053f9560e3dd8e9f susannah. replied to the topic GCSF, Neutrofils and Being Bloody Angry in the forum Treatment http://www.myeloma.org.uk/forums/topic/gcsf-neutrofils-and-being-bloody-angry#post-102314 Thu, 11 Apr 2013 21:24:18 +0100 Dear Dai Michael was in a similar position with the Bendamustine except his was low platelets, he had reduced doses missed cycles because of his low count but his consultant wouldn't give him a transfusion. Looking back we should have taken it further, but we assumed she was right. Saying that he did receive GCSF injections. I thought quality of…[Read more]

]]> 1582005b5747a2d6c37662309b14d3c0 susannah. replied to the topic Not the Right Time in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/not-the-right-time#post-108197 Tue, 09 Apr 2013 17:57:39 +0100 Dear Dai Your resting place sounds perfect, im afraid Michaels is more of what feels right as we never really talked about his ashes, lets hope its something Janet wont have to carry out for a very long time. The Major Oak is a no no wouldhave been ok about 40years ago.
Hi Tina Min mentioned she had some of Peters ashes sewn into little bags,…[Read more]

]]> 3b53a52dd4f41c81c3d71de03ee73635 susannah. replied to the topic Lovely memories but quite a few sniffles in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/lovely-memories-but-quite-a-few-sniffles#post-108203 Tue, 09 Apr 2013 17:47:59 +0100 Oh Gill what a lovely photo, at least nothing can take those away from us

Love
Suex

]]> f4fb132601fdfe0fe065a4c2a16940d2 susannah. started the topic Not the Right Time. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/not-the-right-time Mon, 08 Apr 2013 19:28:50 +0100 Hi All went to Scarborough at the weekend, Michaels birthday on the 6th and our wedding anniversary on the 8th. Myself and my daughters went to scatter his ashes, everything was perfect the weather, the hotel we even found the perfect spot, but I couldn't do it. So we bought him home, and to be honest Im so pleased we did its our anniversary today…[Read more]

]]> 219bbe82e861550300323be19be6e589 susannah. replied to the topic Two and a half years in the forum General http://www.myeloma.org.uk/forums/topic/two-and-a-half-years#post-94737 Tue, 02 Apr 2013 05:35:34 +0100 Dear Eve Im so sorry to read about Slims relapse its so hard to watch someone you love suffer but I know from all the kindest and support youve given me that you will get through this blip. A more positive note Revlimid worked well for Michael he had total remission for a good couple of years with little or no side effects and that was without any…[Read more]

]]> 010e7e3090dda40322b1a3b32853ae81 Min Cato replied to the topic How do I fill this empty hole in my life? in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/how-do-i-fill-this-empty-hole-in-my-life#post-108180 Tue, 26 Mar 2013 20:57:25 +0000 Just be kind to yourself. If you want a duvet day have one or two. I had weeks
Of duvet days in those early days getting up to feed the dogs and walk them then
Going back to bed to feel sorry for myself as there was little else I felt able
To do.
It's exhausting grieving.
Everyone will tell you it gets better. In fact you adjust to the pain…[Read more]

]]> ac28456401cb3484ea91208e7c3f5369 susannah. replied to the topic Elephant In The Room in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/elephant-in-the-room#post-108140 Fri, 15 Mar 2013 13:59:06 +0000 Hi When Michael was given 3months to live by his consultant, the reaction of most people was, but he looks so well, and then avoided us like the plague.
My family used to say people were frightened of upsetting you, but we were already upset and this added to the situation.
Even now after his death when I go outside the front door, neighbours…[Read more]

]]> 3e667e7bbfafe415de4f6e37b01c0c76 susannah. replied to the topic Good-bye Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/goodbye-michael/page/2/#post-108123 Thu, 14 Mar 2013 19:30:48 +0000 Hi Tina I havent worked for the past 6months,I had to stop as all the hospital visits,trials etc became to much for me to carry on full time. Looking back now im pleased I did as I was able to spend all my days with Michael not really believing they would be his last. Work have kept my job open for me, I will probably go back at some point,perhaps…[Read more]

]]> c45be90daaed226c7d0a8ea16684bdef susannah. replied to the topic Good-bye Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/goodbye-michael/page/2/#post-108121 Wed, 13 Mar 2013 17:04:28 +0000 Dear All You are such a lovely bunch of people. Tina i will almost certainly be the same with Michaels clothes I cant even open the door, but I do keep his dressing gown on the back of the airing cupboard door and in the morning I wrap my nightie inside it, see Ive just started myself off again.
Tina do you still work?

Love
Suex

]]> 059a1c27f3908238b8e7fa1a0b692817 susannah. replied to the topic Good-bye Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/goodbye-michael/page/2/#post-108119 Tue, 12 Mar 2013 17:29:07 +0000 Dear Min When I read your post it made me smile ( and cry )especially the bit about someone at the door, that is my worse nightmare. i thought about grtting another dog (lucy our chocolate lab died 1year ago) but then I thought perhaps I should wait a while.
The club sounds good perhaps in a couple of months time, or im I jumping the gun.
Hoping…[Read more]

]]> 86fb6bc91522d68cd292de88617878ec Min Cato replied to the topic Good-bye Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/goodbye-michael/page/2/#post-108115 Mon, 11 Mar 2013 12:10:47 +0000 I Empathise entirely with you Sue.
When I found myself alone, I was terrified to go upstairs, my home was like Blackpool illuminations!
My poor dogs who needed to be let out last thing at night never got let out as I was terrified to open the back door.
Someone rang the door bell one night and sat shaking like a gibbering wreck.
Being alone…[Read more]

]]> f6a18332cf325e006c723dd4708b2ebe Min Cato replied to the topic Bereavement Counselling in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/bereavement-counselling#post-107967 Mon, 11 Mar 2013 11:45:46 +0000 Dear Ann
I found shopping one of the hardest things to do after Peter died.
I kept seing things I liked or knew he liked and wanted to buy them for him.
It took a while for me to stop looking at the kind of things that upset me.
But groceries are another taboo. I still cant stop myself buying for two!

Dont think I will ever get used to many…[Read more]

]]> 9b9c066757742adc4a3d7e7abaae7b3a susannah. replied to the topic Good-bye Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/goodbye-michael/page/2/#post-108114 Mon, 11 Mar 2013 07:36:29 +0000 Dear Min That is a lovely idea, I had decided not to collect his ashes until the day before we scatter them. dont ask me why I just find it a bit spooky, silly isnt it he never hurt me when he was alive so why should he now? Night time is a big problem for me, I dont like being alone (my daughters do stay when they can, but one travels with her…[Read more]

]]> 8a4120f3c6ce61766e81d13225e89a51 Min Cato replied to the topic Elephant In The Room in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/elephant-in-the-room#post-108134 Mon, 11 Mar 2013 00:53:27 +0000 On the contrary Eve, I don't believe in a god that causes so much suffering to so many.
But I do believe there is something, after death.
I like to believe my husband is around me often as I can smell him. My son and daughter in law told me they could smell him in there brand new car yesterday.
How can that be?
The elephant in the room…[Read more]

]]> ed4106443657b26f521fae72d3ca2177 Min Cato replied to the topic Good-bye Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/goodbye-michael#post-108108 Mon, 11 Mar 2013 00:29:38 +0000 Dear sue,
Hope your weekend goes as well as you hope,
If you feel the need get in touch.
May I suggest when you come to scatter his ashes you keep a small portion to sew into one of his handkerchiefs.
You can put it under your pillow, or carry it in your hand bag knowing he is always with you.
I have made several little pouches for me and…[Read more]

]]> 70d3bdc22e9d4073e97bee4d62fdb3a8 susannah. replied to the topic Good-bye Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/goodbye-michael#post-108107 Fri, 08 Mar 2013 16:47:22 +0000 Hi All Thank you for your lovely replys Tina,Min,Gill my feelings are just as you describe. I feel worse now than I did 2 weeks ago,There is lots to sort out, which im ok with but as soon as I sit down I start to cry. I tried taking all the cards down today but I coundnt so I put them all back up and cried again. Its Michaels birthday and our…[Read more]

]]> ae9b4f6813b3955733eaaac6633a1888 Min Cato replied to the topic Good-bye Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/goodbye-michael#post-108105 Mon, 04 Mar 2013 17:06:12 +0000 Dear Sue,
Im so sorry you find yourself alone. Im pleased Michaels send off went perfectly.
In the coming weeks the reality will hit you, and a slow dawning of the fact that he is not on another stay in hospital will sink in.
Whilst one part of you is relieved that his suffering is at an end, the other part will realise that your job is done.…[Read more]

]]> 135b6eccebc66dc0aba8926253177cc0 susannah. started the topic Good-bye Michael. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/goodbye-michael Sat, 02 Mar 2013 01:31:57 +0000 Dear All Michael was cremated today at 2.15pm.The chapel was over flowing with old collegues and friends, Charlotte our youngest daughter read the eulogy it was perfect. Im not sure how I feel at the moment empty, relieved I really dont know.

I just wanted to thank you all for supporting me over the years, and pray for a cure for this…[Read more]

]]> dab271b580cab83c53d7e0156feda4a2 susannah. replied to the topic Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/michael/page/2/#post-108093 Tue, 26 Feb 2013 04:32:55 +0000 Dear All
Thank you again for your replys,hope you are keeping well Clare. Time 4.30am and back to the site for comfort and support,cant sleep at all doctor has given me some sleeping tablets but im afraid to take them.
The funeral is on Friday at 2.15 still cant believe this is all happening,I keep expecting Michael to walk through the door,…[Read more]

]]> c6feec6ecdb19fbc8700c2f26505916b susannah. replied to the topic Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/michael#post-108086 Fri, 22 Feb 2013 19:04:16 +0000 Dear All Thank you all for your kind words and support. Dai your words are always a comfort. Tina i will email you probably after the funeral. I cant believe there is so much to arrange, and of course I want to do it all myself.
Everyone has been so kind. phone calls,visits but it does frighten me when it all stops and I have time to think.I just…[Read more]

]]> a7de8efb03ab3cf760bc160f63264717 susannah. started the topic Michael. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/michael Thu, 21 Feb 2013 13:23:12 +0000 My beloved Michael lost his long fight against myeloma at 1am this morning,he fought to the very end.He was my soul mate my best friend and my husband I will miss him for ever.
I want to thank you all for the support and kind words you have shown me over the years.
All my love
Suex

]]> 74e4cd9c1c767dd78f66aa13dec0a519 Min Cato replied to the topic So Alone 2 in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/so-alone-2#post-108072 Wed, 20 Feb 2013 13:19:43 +0000 Dear Susanah,
I wish you and your family strength to bear the coming days and weeks.
Know that you have helped Michael feel at peace and when he is ready and not a moment sooner he will go in the knowledge that he was loved dearly, and wait in that special place for the day you will be together again.
You will always carry your fondest memories…[Read more]

]]> fbe34e70721ad18ffa0295cd7f3cc3ee susannah. started the topic So Alone 2. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/so-alone-2 Tue, 19 Feb 2013 16:45:24 +0000 Dear Dai First chance ive had to look at the site in a long time but my daughter has made me sit and take five.
Not good never had the chance to visit the hospice, Michael went off his legs altogether and he has been in bed about 4 weeks now. I still tried to cope alone but it was impossible. hes such a big guy. Both my daughters moved in to…[Read more]

]]> 52ca5b8e2666ed4df82feb7871f9f59d Min Cato replied to the topic Spam on the forum in the forum Off topic http://www.myeloma.org.uk/forums/topic/spam-on-the-forum#post-110632 Sun, 03 Feb 2013 23:34:13 +0000 Might I suggest that the fraud squad be informed of this particular spam as I'm sure someone will be using them . If they already know of them they should be closing it down
Min

]]> da81202be0878499c44df2068d64b317 susannah. replied to the topic So Alone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/so-alone/page/4/#post-108022 Tue, 29 Jan 2013 12:46:03 +0000 Dear All Michael is asleep at the moment so I thought I would give you an update. The last couple of weeks have been mixed, I havent managed to visit the hospice yet as we have been snowed in, but hopefully now the weather has changed i might get the chance.
As you all have said th mac nurse and the district nurse have been brilliant I cant thank…[Read more]

]]> ff7ffe63c01c3a05e15a2ddd802b8b80 susannah. replied to the topic So Alone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/so-alone/page/4/#post-108018 Sat, 12 Jan 2013 17:26:06 +0000 Hi All Sorry havent replied, what a week!Saw the GP Friday (needed a sick note for work been off with stress since Michaels prognosis) He refused saying i was now a carer and this could be long term? I looked at him and then he asked what the oncologist had said? I wanted to say he doesnt see one but I was to upset, although im 60 I have supported…[Read more]

]]> 12b607b9e98886ad4c3e3977b0a3e684 Min Cato replied to the topic So Alone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/so-alone/page/3/#post-108010 Sat, 05 Jan 2013 00:23:42 +0000 Dear Susannah,
I'm so so sorry you find yourself in this position. The feeling of being alone and not knowing what to do next or for the best is bewildering. Especially when you are undergoing so much stress.
I don't know what to say to help or make you feel better. But please look up The Liverpool care plan.
I believe you and your husband…[Read more]

]]> ba4ebbbc7b3cd1b3f6de737c101159d0 susannah. replied to the topic So Alone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/so-alone/page/3/#post-108008 Fri, 04 Jan 2013 20:12:50 +0000 Dear All Thank you so much for your replys, I would like to wrap you all up and have you posted to my address, sounds silly but would love to meet you all.
have made the decision to ring the Macmillan nurse on Monday. Gill the hospice sounds good. were the same as you we have nowhere to put a hospital bed or a hoist for the shower. At the moment…[Read more]

]]> 01d90b902041048ad79419e7c7e5840b susannah. replied to the topic A Sunny Happy New Year in the forum Off topic http://www.myeloma.org.uk/forums/topic/a-sunny-happy-new-year#post-110629 Fri, 04 Jan 2013 19:57:02 +0000 Hi Tina just read your post,how lucky is your brother living in Cornwall. Michael and I spent our last "normal" week away last June in Falmouth, we both loved it so much. I am so pleased you had a lovely time
Happy New Year
love
Suex

]]> 9759a79b49f82febbd02ba0e2ca8af6a susannah. replied to the topic Bendamustine C1. in the forum Treatment http://www.myeloma.org.uk/forums/topic/bendamustine-c1#post-101404 Thu, 03 Jan 2013 19:09:23 +0000 Good Luck on the Bendamustine Dai

Love
Suex

]]> 55e2275c481b99b5f9beae25b6a6be52 susannah. replied to the topic So Alone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/so-alone/page/3/#post-108001 Thu, 03 Jan 2013 19:07:19 +0000 Hi Tina I dont know what I would do without this site you are the only people who understand what im going through. There are so many questions I want to ask but then I think do I want to know the answers. I feel myself start to panick when there is just the two of us especially at night. Who do I ring if anything happens 999, the district nurse,…[Read more]

]]> 84512b6bb09470252f3c7f89a100e4c1 susannah. replied to the topic So Alone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/so-alone/page/2/#post-107998 Tue, 01 Jan 2013 20:04:40 +0000 Hi All Thank you for your replys, Christmas wasnt to bad i kept myself very busy so didnt have time to think, but New years Eve not so good. Went to bed about 10 o clock just lay awake then listened to all the fireworks going off thats when it hit me, Michael was sound asleep (mophine Induced) I just let the tears roll, time is passing so quickly…[Read more]

]]> f169d0ec14448cf15c37d9be9a4d0c37 Min Cato replied to the topic The worst so far in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/the-worst-so-far#post-108050 Thu, 27 Dec 2012 10:02:22 +0000 Dear Gill
I understand why you want to be alone. That's how I wanted it. But I wasn't allowed.
I don't know what is worse being on your own, or putting on a pleasant face for those who don't want to see you miserable.
You have to experience the loss of your bestest friend and confidant, lover and carer, because with the best will in the world,…[Read more]

]]> c8770c659da3e93220b64dffc8372e32 susannah. replied to the topic So Alone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/so-alone#post-107984 Wed, 19 Dec 2012 16:37:15 +0000 Dear Mary Thank you for your reply, it must have been so hard for you. I cant imagine what pain you are feeling, my heart goes out to you
Love
Suex

]]> f7590cf23543fa054caafcf87f69790c susannah. replied to the topic In Hospital... Again! in the forum Treatment http://www.myeloma.org.uk/forums/topic/in-hospital-again#post-101350 Tue, 18 Dec 2012 19:10:13 +0000 Dear Dai So sorry your in hospital again lets hope they clear the C diff altogether this time, and you start the Bendamustine with a clean slate

Take Care
Suex

]]> fba1e5c872b7baf19cb9cfafab828150 susannah. replied to the topic Neutropenia Sepsis in the forum General http://www.myeloma.org.uk/forums/topic/neutropenia-sepsis#post-93974 Tue, 18 Dec 2012 19:02:04 +0000 Dear Keith What a few ,weve had a few of those with sepsis, terrifying
to say the least,.Take care of yourself

Thinking of you

Suex

]]> 9cd5270c5d50f664e2593206cb1bb864 susannah. replied to the topic So Alone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/so-alone#post-107981 Tue, 18 Dec 2012 18:55:54 +0000 Hi All thank you all for your replys, i feel so much better when ive been on the site. Tina and Eve if you read this post im having problems with my emails.
Michael had to have a blood transfusion yesterday the ambulance fetched him in his weelchair, as he struggles to walk now, but he seems quite well today very tired though.His pain ismostly in…[Read more]

]]> b6be619d4f10b2cdbfadae1657644ca9 Min Cato replied to the topic So Alone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/so-alone#post-107980 Tue, 18 Dec 2012 15:10:31 +0000 Hi Sue,
Neighbours can amaze you when you least expect it.
I'm glad you have someone nearby,and hope it has helped you feel less alone.
Michael is still with you and now is the time to say what needs to be said, in order that you have no regrets. It is also the time to get Macmillan nurses involved as they are there for YOU too. Coping alone…[Read more]

]]> a3e2f484d23f1be8fa80522a030620a7 susannah. replied to the topic So Alone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/so-alone#post-107976 Sun, 16 Dec 2012 17:15:29 +0000 Hi Eve Thank you for replying to my post, its 5pm here so i would think its about 4am there and hopefully you are both fast asleep.
ive never heard of a driver?
And your so right about making the first move with people, I spoke to my neighbour yesterday and she came round with some homemade scones today, which i might ad she has never done…[Read more]

]]> a3acdd5bf43d78b25298ea8cf51f05e5 susannah. replied to the topic So Alone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/so-alone#post-107974 Sat, 15 Dec 2012 22:56:58 +0000 Dear Tom you are such a lovely man,thank you for my hugs.
Tina and Gill you have both been through so much, it really does help when I read your posts.
Managed to get some fresh air today, even if it was just to fetch a news paper, but it did clear my head a little.
Regarding Michaels pain. his GP is now in control of that, well hes on mst and…[Read more]

]]> 026c9c83944b9583b25f428ef7a97856 susannah. started the topic So Alone. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/so-alone Sat, 15 Dec 2012 06:05:41 +0000 Hi Sat in my lounge time 5.55am been sat here since 3.30am. Michael is asleep, he seems to be asleep more than he is awake over thepast couple of weeks, its probably the morphine hes now on a very high dose as he is in so much pain.I sit here looking at the christmas tree just wanting to take it down, the christmas cards, although very few this…[Read more]

]]> 537aea042b0202a89fe6ae7862c4ee7a Min Cato replied to the topic Bereavement Counselling in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/bereavement-counselling#post-107963 Fri, 07 Dec 2012 10:23:17 +0000 Hi Gill,
I had my bereavement counselling with cruse 8 months after Peter died. They have a situation in which they do not like to see anyone until 6 months are up.
The 6 month time seams to be THE most raw and painful time when it all hits home that this is real.
I cried throughout the entire series of 6 sessions but at the end felt better…[Read more]

]]> 9dd626d6487ba42e026fee97fed0b68c susannah. replied to the topic PE in the forum Related conditions http://www.myeloma.org.uk/forums/topic/pe#post-105687 Thu, 06 Dec 2012 16:41:17 +0000 Hi Charlie My husband has had 3 DVTs first caused by Thalidomide, he was given clexin (think thats the right spelling such a long time ago)injections, he then went onto warfrin, which he has taken through all the trials he has been on apart from the last one which was very new and they did not know how the warfrin would react to the drug so he…[Read more]

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