GillSeaward

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Viewing 15 posts - 256 through 270 (of 574 total)
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  • #91439

    Gill
    Participant

    Hi Shirley

    I hope you feel a great deal better very soon. Do let us know how you are getting on.

    Love from Gill

    #91416

    Gill
    Participant

    Hi Wendy

    I do wish I had an answer for you but one thing I would suggest is to go on the USA mm line I have not got a www address but I don't think it will be too hard to find.

    When I looked (quite a long time ago) it seemed that they were doing a much bigger range of transplant options with some amazing results. Please don't trawl the internet as most of it is out of date and very scary but the official mm site in the states is like this one.

    Maybe someone on here will point you in the right direction to find the site.

    Good luck from Gill

    #109733

    Gill
    Participant

    Hi Dai

    I was trying to work your anagrams out and then realised that you know my surname already so made anagrams out of Gill Seaward and Gillian Seaward (yes I am a Gillian but I only ever got called that when my Dad was cross with me!)

    Although we are married I never took Stephen's name (apart from on legal French documents as it is a nightmare trying to use 2 names in France)

    Stephen is Stephen Nash or to most people apart from the family Steve Nash.

    So there is another set of letters for you to peruse.

    Love from Gill xx

    #106166

    Gill
    Participant

    Public pm to Eve.

    I tried to pm you but I cannot send it (after me saying you couldn't pm if not signed in !)

    I have just realised that when I first posted on this I saw Bridget's reply and thanked her. It looks as though I completly ignored your reply but it has not long appeared on my screen after this lots of people posted (thank you all) so I did a post to everybody.

    I don't know whether it is gremlins back in my computer or on this site but it is all very strange.

    I would hate you to think that I ignored you deliberately Eve
    Love Gill xx

    #106165

    Gill
    Participant

    Thank you all for your kind words. It was right to go out for the evening. It doesn't change the news but with Stephen's nagging and a dollop of my own common sense I realise that Stephen is right when he says if I dwell too much on the prognosis neither of us will get any enjoyment out of whatever time we have.

    Thanks for all your support it really is appreciated Love from Gill xx

    PS to Min I don't block pms but I think you have already realised that you have to be signed in to send them xx

    #91379

    Gill
    Participant

    I did not even see the original post until today. We have had computer problems or maybe I am cracking up. It was great to read your post Carol let's hope more and more mm people manage thje same

    Love from Gill

    #91403

    Gill
    Participant

    Dear Ellen

    I have decided to bite the bullet and be the first to voice an opinion on this.

    It is my husband that has mm He was diagnosed at the age of 53 in October/November 2008.

    I hope that there is a cure found for mm tomorrow and that Stephen and I will both live to a ripe old age and then die at the same time and turn into intertwining trees like Baucis and Philemon were in Greek mythology.

    Unfortunately that is not going to be the case. When the inevitable does happen do I have to walk away from all the support and friendship that I have found on here aswell? I hope not.

    If a category for discussing end of life is added then we all have the choice to look at it or not just as we can with any category.

    Stephen never posts on here but is always very interested in what is said and the information that can be found. He also thinks that a category for end of life is sad but needed.

    All the best Gill Nash

    #91385

    Gill
    Participant

    I am so pleased you are doing well David. Hopefully you won't have to Vasbyte for the next 3 months:)

    love from Gill xxx

    #109730

    Gill
    Participant

    Dai You are a brilliant wordsmith.

    I love crosswords but can only finish the "easy" versions and as for anagrams??????. I would probably have more luck reading Russion (and before you ask I don't know one word of Russion)

    Love from Gill

    #109725

    Gill
    Participant

    Dearest Min,

    I am so pleased to hear from you.

    Like Bridget I do not know how your post got missed, but I suspect it wandered into the ether for a while before it turned up here.

    I (as one very selfish human being) desperately want you to continue posting, but that has to be your choice and whatever your choice you know we would all respect it.

    There is so much space for you on here. It is great that we all try to be upbeat but we all have to face reality mm is incurable and it shortens peoples lives.

    You are right grief should be a subject on here and I cannot think of a better, experienced and more articulate person than you to start it. Maybe it will be something you could do at some stage in the future.

    Please do keep in touch much love from Gill xxx

    #84929

    Gill
    Participant

    Hi Ted

    I am glad that everything seems to be going well for you. Long may it continue. It's great that you are keeping busy. I don't know what part of the world you are in but we have had a very warm day in Orpington Kent.
    I think it is Mother Nature's way of saying sorry for the aweful summer she dished us out:-)

    All the best Gill

    #106160

    Gill
    Participant

    Dearest Bridget

    Thank you so much for your post. You know the phrase and you used a little bit of it "It's not over til the fat lady sings". Well the lady tonight who sang opera was not fat. She was youngish, pretty and of course I hated her on sight:)

    The only complaint both of us had (obviously only to each other) was that the sound system wasn't loud enough and the music did not "ring out??"

    We came home very full up and hooked out a couple of cds. We are lucky that, although we live in a semi, we have a very large conservatory at the back of the house attached to no part of anybody else's home, and sticking out a long way into our quite large garden.

    Maria Callas entertained us with everything from Mama Morte (sp?)through to the Habanera (sp?).

    Then we got silly and played "Just Want to Dance the Night Away" by the Mavericks anyone else remember that one. It was always the last song played when we used to go to Gran Canaria every February for a quick week of sunshine after a winter of working too hard and feeling fed up.

    We were not night birds even then. We used to go up to the apartment, sit on the balcony with a glass of wine and wait for that song. We were lucky we were far enough up not to be bothered by the music once we shut the patio doors but close enough to sit on the balcony and listen when we wanted to.

    Great memories

    Love from Gill xxx

    #85071

    Gill
    Participant

    Welcome from me too Peter. Although like everyone I am sorry to see you on this site, but your story does give a great deal of hope. If my sums add up you have had this horrid mm for 7 years and you are still, not just amongst the living but among the get up and carry on brigade.

    Long may it continue for you

    Gill x

    #91370

    Gill
    Participant

    Dear Jet

    Like every one else I am pleased that you have good news and hope your remission lasts a long time.

    Like Dai I too have gained enormous support from others on here and, hopefully, will continue to do so.

    I agree that mm is a hard and sometimes very depressing illness and some of us do need an outstretchced hand to help us.

    It is great to hear of good news. Thank you for your inspirational and uplifting post

    All the best Gill

    #91357

    Gill
    Participant

    Hello Linda

    It's great to know there are folk like you raising money for this sh***y illness Good luck Gill x

Viewing 15 posts - 256 through 270 (of 574 total)