[GillParticipant]

Hi Susan

My husband was diagnosed about 2 years ago. His spine was damaged by the mm and he could not walk without the aid of crutches. To get out of a chair or up from bed made him shout out in pain and I thought it would just get worse and worse.

After radiotherapy, chemo, steroids and an SCT Stephen's mobility has improved no end. He now walks about 4 miles a day and needs no crutches nor walking stick.

He does still suffer from back pain but it is manageble with mst and gabapentin. He walks a little lop sided but manages very well.

I know that this is such an individual disease that it may not be the same for your dad but fingers crossed that, like Stephen, it improves with treatment.

All the best Gillxx

[GillParticipant]

Why is everything underlined ??

[GillParticipant]

Gavin I picked up your post on the old site and replied there hope you can get it

Gill

[GillParticipant]

Hi Nicki

Stephen had his SCT in the summer of 2009. He was quite well through it all apart from the constant loo visits but very tired.

He managed to avoid the sore mouth bit by frequent teath cleaning with corsodyl toothepaste as well as using the corsodyl mouth wash supplied by the hospital.

A member on here has warned that yous sholdn't use the toothepaste forever but it seemed to do the trick while Stephen was in hospital.

It is lovely to see everybody's faces. I will have to wait until I get back to England before I can put mine on. You will all probably wish I had kept in the dark !!

[Author]

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