[GillParticipant]

DEX!!!!!!! How I hate it and am grateful to it at the same time. Stephen should be on it now as it will be used as part of his maintenance regime. It has been held back for the moment because of his shingles.

When Stephen was first prescribed it the dose was huge and Stephen was horrid but for ages did not recognise that it was him and not me. When the dose was reduced he still got frustrated and angry but was able to bite the nasty comments back as he recognised his "dexatude"

Stephen has always been a very laid back person never one to bite back or argue it's me who is the argumentative one! So it was a huge shock to see him being Mr Angry. I was quite cross that his medical team had not warned us about this, but they said it did not affect everybody the same way (just most people!)

I have read of one lady who got so full of energy in the middle of the night she used to get up, clean the house and do the ironing are you listening Stephen?

We have both said that it must be even scarier if you were an angry person to start with. Do people with anger issues resort to physical violence? It doesn't bare thinking about.

Stephen asked me to tell you Dai that he understands your feelings of self loathing. I would like to tell you that the fact you feel it makes you,like Stephen, a pretty nice dam guy and I, like Janet understand it is not my husband snapping at me but a drug that is doing him good

Please give my kindest regards and best wishes to Janet

Much love Gill

PS I have just worked out (all on my own) what TFFT means you are naughty and I completely agree with you.
You should haven seen Stephen's face when I suddenly shouted it out

[GillParticipant]

Dai I am sure that Janet will back you to the hilt. GO you only get one chance in life and you should grab the opportunities

I want to wrap Stephen in cotton wool and keep him close to me to take care of him, but I know that whatever life any of us have should be lived. Stephen is not a stupid person. If he ever fancied bungie jumping he is hardly likley to do it with his damaged spine.

On the other hand if he wants to travel for 2 days with 2 naughty little dogs and me to spend a few weeks in what will one day be the most beautiful house in France but for now is a cold miserable wreck—Well what the heck:-S

At least we now have a flushing loo. In the early days we had to use a bucket and chuck it. Poo time was always spent in the local hostelry coffee? aperitif? did not matter as long as we could use the loo.

TOO MUCH INFORMATION But great memories for us

Gill xxxx

[GillParticipant]

Like everyone else Welcome and wish you were not here

Please ask away My husband (Stephen) was diagnosed at 53 and that was considered young then (2008)

Everybody on here will be only too pleased to chat, answer questions when they can and give you support. Do try the under 50s group too. I keep trying to convince them I am 16 (I'm 62 but don't tell them):-)

All the very best to you Gill xx

[GillParticipant]

Cough relief

If it says balsam on the label and it is thick and brown Oh Boy does it relieve a cough.

Cures bugger all BUT taken in a little drop of very hot water it soothes no end.

Some of us oldies still have helpful ideas My mum would be 98 now and shoved Owbridges balsam down my throught every time I coughed. I don't think you can get Owbridges any more but can still get Cavonia Balsam

PS Thick brown balsam cough liquid contains NO drugs at all

[GillParticipant]

I am not sure what Dai meant but I know it was good wishes and hey Tom I never forget any of you I don't post as often as usual but only because the Internet connection in the middle of the French wilderness is very hit and miss (more miss than hit) I can read you all most times but answering is a nightmare. Very frustrating when you are as opinionated as me:-S

Stay well you lot xxxxxx

[GillParticipant]

I am sure that you can all imagine the joy that I felt this morning phoning the b and b we use when we go to France (the days of doing the 16 hour trip in one go are long over for both of us) deux personnes deux petits chiens chiens d'une nuit svp.

With the receptionist's little bit of Engl;ish and my little bit of french. We are on our way next Wednesday8-)

Love to all Gillxx

PS never say I am hot in french it means you are very sexy. I once told our neighbour (in french) that he was he was a tease. Wrong word again I had told him that he was a lady that tried to excite men by batting eyelids, dressing sexily etc.

They could hardly explain for laughing

[GillParticipant]

YIPPEE

It seems to be Bugger All

All your crossed fingers have worked:-) 🙂

Thank you all

France Here We Come

[GillParticipant]

Merci tout le monde de vos bons souhaits

Thanks all for your good wishes (I hope I got that right. It is quite easy to say something very rude in a language that is not easy for you hence the true story of the guy in France that asked for penis flavoured jam (wanted pine flavoured honey, and NEVER say I am hot as it means your feeling sexy8-) I also know of someone that wanted creasote stuff for his fence. He could not understand why the whole of the "brico" (diy store) were in fits of laughter. He had asked for some protective for wood. Translated he had asked for a wooden condom 🙂 🙂

[GillParticipant]

Dear Janet

It is a setback to find you have relapsed. My husband was diagnosed at 53 and had 16 month remission before he relapsed. He had a second SCT which did not take and has just had a course of revlimid. His pps are not too bad but there is other damage showing that the drugs are not working.

He too suffers from chest infections and coughs. I hope your cough improves soo

Gill

[GillParticipant]

Thanks for crossed fingers Eve.

I hope you get to France soon. Funny thing is Stephen's heart is very much in France but, try ashe may, The language defies him.

Love from Gill xx

[GillParticipant]

Oh Jean

I was so sorry to read your post. Both Stephen and I are only children so have no idea what it must be like to lose a brother or sister. We both regret not having siblings to share our worries with but maybe it's not a bad thing.

I do hope that Alex's celebration of her birthday is that! A celebration of 19 years of life with a little bit of celebration for her Dad's life too.

Love from Gillxx

[GillParticipant]

Dear Nicola

I am sorry that your Dad has gone. We all want our loved ones to stay a little longer so please don't feel selfish.

I am in my early 60s and my dad died over 20 years ago. He is still around me somewhere. In small things that belonged to him that now adorn my home, in my memories and on rememberence sunday I watch with pride all the men that look like my dad did (and shed a tear or two)

Much love Gill x

[GillParticipant]

Dear Michelle

I am so sorry to hear that Phil died. This is such a nasty illness for everybody but particularly cruel to young people like Phil.

I am sure that Friday will be very difficult for you all but hope that it will also be a celebration of Phil's life.

As Helen said do talk to the children about him and keep him real for you all.

Love from Gill x

[GillParticipant]

I cannot praise Kings highly enough (food apart and that is not their fault it's all sub-contracted out)

They were great whem Stephen was there and nothing was too much trouble.

Good luck to you both

Love from Gill x

[GillParticipant]

Best of luck with your SCT Carol. I hope it goes really well for you

Kind Regards Gillx

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