[Gill20Participant]

Hi Gill,

I thought it was just me, I cant seem to stop eating and have a craving for chocolate which I don' normally get. It must be the tablets I was thinking after my birthday I will really try hard to eat fruit instead of all the other things but then I think at this time we need to be pampered so a little of what we fancy can't do us any harm. Well unless we can't fit into our clothes… We may have to start our own slimming club.
Gill

[Gill20Participant]

Hi Gill

I am glad the radiotherapy went well hopefully you will start to get better soon. I am starting my second week of chemo tomorrow and so far I have been OK apart from the constipation one or two others have said they have had. I had a bad few days of pain with the Zometa and although it is better it has made my head worse, I find it difficult to stay awake and have waves of pain in my head which is hard as I am working full time. Hopefully it won't last too long. It is my 60th on Saturday and I have a family party to look forward too so I won't let it get me down.

It is good to have this site as it does make you feel as though you are not alone. Take care Gill I hope you get some good results soon

Gill

[Gill20Participant]

Hi Christin and Meike,

So sorry that your dad and husband has developed this at such a young age but I agree with Dai things are changing all the time with treatments. Although I have only started treatment yesterday I have been screened for the past 17 years and things have changed a lot in this time.

Dai I think I have chemo brain without being on the treatment lol. Seriously though I have had some extra blood tests for this just waiting on the results.

Keep strong and keep positive.

Gill

[Gill20Participant]

Hi Gill

I am sorry you are having such a bad time. I was lucky as I have been monitored for myeloma for the last 17 years but this is the first time I have needed treatment. It was picked up as being active by my GP because I was feeling so tired. I have had pain in my back and head but I just put it down to wear and tear so never mentioned it. The survey showed that I have a leison in my head right where I get the pain but the doc said he hadn't looked at anything else yet so I am suspecting that I have them in my back too.

I was told I would start treatment in a couple of weeks but after the tests yesterday the doc said it wouldnt be wise to wait so I had the zometa yesterday and started chemo today, I am not sure how I feel yet though. So many tablets fortunately they gave me a chart with them all on and when I have to take them. I also have heperin injections which I have to myself daily, oh joy!!!

I hope they soon get your medication sorted out. I am on CDT1 and have two anti sickness drugs.

I hope you are feeling better soon, I will send you a private message as I have just found out that you can do that.

Gill x

[Gill20Participant]

Thank you all for your replies, I will have to try the cucumbers Tom!!! Unfortunately I went to the hospital for my skeletal survey this morning hoping to be back at work at lunchtime. I didn't make it home till this evening after having Zometa and a chat with the doctor who said he wants me to start treatment tomorrow si I am back again in the morning. He said it wasn't wise to wait so I am now on the trial on CDT1 or will be in the morning. It has been a rollercoaster of a couple of weeks.

Oh Bridget, there was another new Gill who posted and you replied to her. It must get very confusing with all us Gills about.

Thank you once again

Gill

[Gill20Participant]

Hi Gill

I can empathise with you, I am another Gill (59)recently diagnosed and haven't really got my head round everything yet. I am having my skeletal survey done tomorrow and then seeing the doctor to discuss treatment. Like you I feel this site will be very useful and the support from others in the same position seems to be great. Maybe we can support each other Which hospital are you under?

Gill

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