[GillianParticipant]

Hi Mike,

Welcome!!! Like you I have just been diagnosed ( June ) and I am 54. It's all a big shock and as you say the terminology alone is a whole new world. I have found the site really helpful, with lots of support from members who have been using the site long term, but the stories and comments are really up lifting and so good to read other people's experiences.

I am just starting my 2nd batch of Chemo and go for bone strengthening next week. I am just going with the flow at the moment and I think as the acceptance sinks in the questions will start to arise.

Any way good luck and enjoy the site. I am sure your wife will also.

Gill C

[GillianParticipant]

Hi Peggy,

I like you have just been diagnosed and it is such a shock, I quite understand how you bare feeling right now, and as the others have all said there is a great support network out there, so start shouting now for the help you need especially the extra help for your daughter, you can always decline it at a later stage if you don't require it. Members on the site advised me to take anything that was offered to me and they were certainly right. At the time you think I'll be ok and won't need it, but it's better to be ahead of the game!,,
Now keep your chin up, come and rant and rage, the site is great for that and we are all in the same boat.

Post again soon we loved hearing from you,

Take Care
Gill C

[GillianParticipant]

Hi,

HOME at last!! I have finally made it. I was discharged on Tuesday and am staying with my sister. Who is proving to be the best sister in the world!!!

It has been quite an emotional journey and the reality of this has suddenly hit home. I am so full of tears, they don't seem to want to stop, and the stupid thing is i don't know what I am crying for!!!

Anyway on a brighter note, my discharge has gone very well although I can't stop sleeping, yesterday I slept until I was woken for breakfast, then woken again for lunch and at 3pm my sister decided I couldn't possibly sleep any more, so woke me up and I then went downstairs for the evening, bed at 10pm and you guessed it slept like a baby until 8.30. So big question should I get up and try and me normal or do I jus sleep and sleep?
My McMillan nurse is calling to see me this morning, so no doubt she will have some advice.

So I'm on my own now now don't go back to the hospital for 3 weeks, so another strange feeling…..

What a life changing time and I know so many of you are also going through this, but as we say you just never expect it to happen to YOU.

Love to you all
Gill C

[GillianParticipant]

Hi Eve,

Thanks, yes I am very lucky, I am going to stay with my sisterbfor a week or two, to get me settled back into a normal way of life and then we have some big decisions to make. Just before my diagnossi my husband and I had bought a big old property to do up and were living in the garden in a large static caravan, but obviously this has now all changed, I can't live in the caravan and the house is not habitable, so we are thinking we will rent short term until we getbsome order into the new house!!! Not good timing I know, but it is giving me something else to think about

[GillianParticipant]

Thank you all once again for your support. Week 7 in hospital now, not that I'm counting!!!
Had Radiotherapy and a blood transfusion last week, all went well but I am just so tired. Today I am being allowed to go on a home visit for a couple hrs, this is to see how I will manage in the big world, I think they might be looking at discharge next week, so fingers crossed.

Otherwise things are just ticking along, the Chemotherapy is going well and I have a syringe driver in permanent position now, so have no nausea problems, Bowels we wont mention and I am looking forward to eventually sleeping in my bed!!!

[GillianParticipant]

Hi Shirls,

Thanks for your reply, I am just so concerned that the weight won't drop off me again, but you have given me some hope.

Gill

[GillianParticipant]

Just thought I would give you all a little update.

I am coping with the chemotherapy, this is week 2. Tuesday I had a course of radiotherapy which was totally painless, but I then had dreadful sickness. Slept all of the day yesterday and am suffering a little with sickness today.
One thing that has happened is that I have lost control of my bowlels, quite upsetting and wonderd if it has happened to anyone else. My bladder is fine though???
I am starting week 6 in hospital now, so I think I m in for a long haul….

Gill hope you are ok and good luck to all the other newbies on the site.

Thanks to all.

Gill C

[GillianParticipant]

Hi Gill,

Nice to hear from you and I think supporting each other sound a good idea. My treatment is at Airedale nr Skipton North Yorkshire. I was admitted on a 999 call, after I collapsed with the pain ( I had been suffering with a bad back for several weeks) I have now been in hospital 5 weeks!!! I have had a lot of trouble with pain & sickness, which they are still trying to. stabalise. So I have had a lot of the tests done my skeletal survey being one of them. This was easy and did not cause any pain. As to the results, I am not sure – it showed the myeloma in my spine and other areas but it just won't sink in. I feel as if Im watching the story of someone else. My consultant is really nice and she visits me once or twice a day, to check the pain etc. I started chemotherapy last week which again has made me so sick, but again they are working to control this.

Next week I am having Radiotherapy so I will let you know how I get on.
How was your Myeloma diagnosed? And how long did it take?

Thank you for all the support I have received already from members.

Gill

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