I was referring to the amyloidosis support group at http://www.amyloidosisonline.com.
Inspire is new to me.
A UK based forum is good too. There is one on the uk amyloidosis site but is not particularly active.
Where in the uk are you?
Hi, I have amyloidosis affecting my kidneys and heart, though not to the degree that your husband is dealing with.
I have found the American amyloidosis site very informative. It may have some answers for you too.
Gill xo
Hi, I have amyloidosis affecting my kidneys and heart, though not to the degree that your husband is dealing with.
I have found the American amyloidosis site very informative. It may have some answers for you too.
Gill xo