GillPenn

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  • #88374

    Gillpenn
    Participant

    Hi Jan,

    I was referring to the amyloidosis support group at http://www.amyloidosisonline.com.
    Inspire is new to me.
    A UK based forum is good too. There is one on the uk amyloidosis site but is not particularly active.
    Where in the uk are you?

    Gill

    #88372

    Gillpenn
    Participant

    Hi, I have amyloidosis affecting my kidneys and heart, though not to the degree that your husband is dealing with.
    I have found the American amyloidosis site very informative. It may have some answers for you too.
    Gill xo

    #88371

    Gillpenn
    Participant

    Hi, I have amyloidosis affecting my kidneys and heart, though not to the degree that your husband is dealing with.
    I have found the American amyloidosis site very informative. It may have some answers for you too.
    Gill xo

Viewing 3 posts - 1 through 3 (of 3 total)