Leaving us OTH.

Okey, dokey…

OTHERWORLDLINESSES

Giving you SES

Dai.

VEST – leaving…. errr… EST.8-)

Dai.

Hi All,

What a strange unconnected day I have had. In for the last infusion of Velcade Cycle 6 – wearing one insulated glove on my left hand as I drove in to keep it nice and warm… which encourages the veins to rise… Janet made me.

The day-case unit was very, very quiet… never seen it so… we even got a parking spot opposite the…[Read more]

My Dear Min,

Like Gill's wishes for Stephen I would like to think that I could have a 10 year tenancy with MM… I was 54 and 4 months when I was diagnosed with cancer, I'll be 58 on Xmas Eve… which would make me 64 when the renewal comes up… I'll settle for 62… I've set my sights on 60 in the first instance.

My Kappa Light Chains were…[Read more]

ILS = Solitude

UDE – up for grabs.:-)

My sympathies to both of you… it sounds painful… but why the cannula? I cannot imagine receiving Mephalan without the aid of a Hickman or similar multi-line… as a matter of fact I can remember being told that it was crucial to have one for both the doses… pre-Harvest and the pre-SCT.

When I was admitted the time before last, for an…[Read more]

Hi Gill & Stephen,

Well part1 has been done and while full removal would have been ideal at least they will know the cause and will be able decide on how best to remove the rest (Chemo for MM – RT for associated). It makes me wonder if they might have gone for the lot if Stephen had been under a general… but then that would more than likely…[Read more]

Hi Graham,

Welcome to the forum, by the looks and sounds of it you have as much if not more experience than most on here. Your Stem Cell mobilization is interesting… how many did you have left from your original harvest?

Dai.

My 'need' is less conventional, being folically challenged by nature rather than medicine… and I have several hats of different textures for different seasons… but, if I could make a donation, I would love to own a woollen 'beanie' by way of a 'Bridget Original'… which I would wear by way of pride and comfort.

Wouldn't it be great to get…[Read more]

Hi Liz,

The side-effects will pass, they always do… but… I just realised how insensitive I have been in my post above…

[i][b]'everything else went fine, with a nice 4 way chat between myself, an elderly afro-carribean leukemia patient and 2 new Myeloma patients… well, new to me that is… with both of them being around with MM for…[Read more]

Hi Sarah,

I am reminded of a simple ditty spoken by Bilbo Baggins to Frodo in the first of the Lord Of The Rings Books when Frodo is about to start his epic adventure and Bilbo is quietly reflecting back on his life.

[b]Bilbo's Song in Rivendel[/b]

I sit beside the fire and think
of all that I have seen,
of meadow-flowers and…[Read more]

Hi Gill,

Please wish Stephen an uncomplicated op with a quick recovery from me.

We have been given a general 'drop in' day for our 'Flu' jabs and I will certainly be there for mine. Janet had 4 'colds' of varying degrees last year and apart from one slight snuffle they seemed to pass me by… which I put down to my jab. People with…[Read more]

Hi Paul,

Basically there are 2 types of Myeloma… Heavy Chain (normally associated with Paraproteins as a measurement of the disease) and Light Chain Myeloma (also known as 'Bence Jones' Myeloma and generally associated with Kappa Light Chains for measurement of the disease). Heavy Chain is the more common of the two but apart from…[Read more]

[b]I Love[/b]

Silly things, little things, trivial things
Non-sensical tid-bits that show how I feel
In my sunshine and shadows
Through my smiles and side-glances
In those little romances I know to be real

[b]Dai.[/b]

Hi Bridget,

I do hope you are feeling much better today and that the pain disappears much sooner than the predicted 2 weeks – you deserve a break. 🙂

Had my 2nd infusion of V6 yesterday and feel flattened today… so you never can tell but I'm hopeful that I'll bounce back, as I am sure you will.

What have they told you about…[Read more]

Hi Sarah,

Did your father wake or did his snoring soften to a sigh before he slipped away? From what I have read in your posts I think that if it had been my father I would have preferred the latter… as a matter of fact that is exactly just how my father went, after five years of holding Lung Cancer at bay.

He had a bed made up in the…[Read more]

Sledging is a good word – one of its meanings is to barrack your opponents (mainly used in cricket – but Min has adapted it for the phone at the moment).:-D

Dai.

Sledging = ING

INGLENOOK

Leaving OOK!

Dai.