I think I'm right in saying that Peter and Slim are both ex-military?

The nearest I got was Lieutenant in the Boys' Brigade… with a 'First Aid Badge'… so I seek professional aid at the first opportunity.

I was trained to do so. 😉

Dai.

Hi All,

Thank you for your support.

The Day-Case Unit is not taking calls and I have found out that it is only open for chemotherapy treatments that are fixed by need… and quite right too.

I have felt better all night and my temperature has been completely normal… until 10am when it jumped to 37.70 and had stayed there since… so I…[Read more]

Hi Pauline,

I appreciate how difficult Monday must have been for you, especially as it came from left field without reason or warning. I don't know your husband so I cannot pass judgement or offer a rationale for his behaviour… but I do know where he is coming from? and I believe I know where he is going.

You want to live each day to the…[Read more]

Yes here… seemingly every night.

Dai.:-P

Regarding the holiday… although it is only 8 days back home in Wales with family it is quickly taking on a significance beyond its stature… with 2 brothers and 2 sisters and their spouses deciding to make it a really chilled out get together. Janet and I are really looking forward to the break and now that my leg is decreasing I am driving…[Read more]

Hi Eve,

I have a personal hand warming pillow on my wish list… and I must admit that it most definitely helps. 🙂 Re: the burning neck, Slim's not using the hot water bottle as a pillow by any chance? 😀

Sleep, or lack of it is the bane of my life… always has been but now, when I really need it, it continues to evade/avoid me. I…[Read more]

Hi Gill & Stephen,

I have been following Stephen's progress forever… but with particular interest since he struggled to get to his 2nd SCT. Talking to others (mainly at our DayCase Unit) it seems that the 2nd SCT is often rougher (i.e. not as smooth) than the 1st and takes much longer to recover from. I hope this is the case with…[Read more]

Thank you Eve,

You are quite right, Gaye was thoughtful enough to let us know personally that she was taking her path onwards with no further treatment for her MM. She painted her picture of the hospice at Westcliffe-On-Sea with its gardens and left us in no doubt that she was comfortable, cared for and ready for the next step.

I was hoping…[Read more]

I'm trawling through the forum, being flippant, being as bright as I can be and my heart gave a little jump when I saw new posts in Gaye's thread. I was hoping for some garden gossip, perhaps even a word from the great lady herself. But she has gone.

Oh Gaye, I am so, so sorry.

Dai. xxx

It is Elizellen… I will make enquiries when I return to active duty on September 12th. 🙂

If those charges are universally applied then I will have some cash left for other things.

Let's see:

A fresh box of 'Celebrations' every clinic £ ?
A personal hand-warming pillow:…[Read more]

I have become acclimatised to my lack of mobility (bone damage and PN) and tend to think of exercise and general lifestyles as pre-mm and post-mm… the first a memory the second a reality and that is fine… I have no big issues or traumas over the matter… but I do miss the actual walking… the scenery that changed with every corner, the…[Read more]

I'm with Bridget and Min… good luck with your remission Carol and long may it stay fixed at 0pp.

There are quite a few 'regulars' to this forum who are living their lives in remission from MM and we rarely see hide nor hair of them… and to tell the truth I am glad that they are out there hopefully making the most of their lives for as long…[Read more]

I used to be full of natural steroids… although I was a landlord of a real ale pub and good, fresh food restaurant, I hardly ever bothered with alcohol… I enjoyed the lift of a natural buzz that came from somewhere within… but these days my natural buzz has been swatted by years of daily meds.

But like you, when I heard about the £150:…[Read more]

Not here… Occasionally I manage to blag a print-out of my bloods but that's about it. Everything else disappears into the big (Red) medical records folder.

The other week I opened my records folder – I was waiting for a Velcade infusion and I had to fill in my record sheet of aches and pains etc… I could see where it was lodged and so I…[Read more]

Hi Eve,

I have emailed Craig and he has confirmed that he is happy for me to attend.

So… first spot after lunch:

[b]13.30 Multiple Myeloma ? A Patient Perspective[/b]

Which will be my perspective on how we can be helped on our path towards individualisation of treatments by laboratory and technical services – especially,…[Read more]

Hi Ivan,

I had a mild form of peripheral neuropathy for 3/4 years before being diagnosed with Myeloma. In the main it was general numbness but I also suffered bouts of pain in my big toe and I was told by my GP that it was a form of gout.

The interesting thing is… when my PN kicks in at night (usually when I'm lying down in bed) I get…[Read more]

Hi Eve,

I'm willing to go (if Craig hasn't either given up or found someone else) because I realised that my reason for not just saying 'Yes' in the first place was a negative act. I was saying 'maybe' just in case I am either ill or feeling the side-effects of my last cycle (the conference falls at the end of my final rest period) but that is…[Read more]

Hi Craig,

I have been giving it a lot of thought and, barring any last minute glitches or health hitches, I would like to attend your conference.

I will be canvassing opinion from this forum to ensure that my contribution is a reflection of a broad spectrum of experiences, needs and desires.

I will await any instructions etcetera,…[Read more]