Hi Helen,

Have you a date for induction into your SCT? Where are you going for it? 🙂

Try and stay in touch if you feel up to it… quite a few people have tried to keep some sort of blog of their experience… for some reason my blog centred around a series of measured events (e.g. the time it took to get out of bed, unplug and make safe…[Read more]

Sarah,

I am imagining Gordon bringing the harvest home.

I have a small; old black and white photograph of my Grandmother?s Uncle Morris? my Great, Great Uncle. In the photograph he is standing, all five foot one of him, with one foot raised and resting on an upturned log. He has a leather tankard in one hand, stretched out before him, in…[Read more]

As a side-effect of the side-effects I also have put on weight – nearly a stone and a half since Xmas.

This has surprised me as, with some exceptions, we usually eat a balanced, healthy diet and our portions are small with no 'seconds'.

Of course my activity has been curtailed by treatment this summer and there is far too much sitting around…[Read more]

Bridget!

Your post was not at all silly…. it was inspirational… Janet is very pleased for you and she says that it is a matter of 'as well as', not 'instead of'… she wants plusses and proud moments for us all… and so do I.

Enjoy your freedom.8-)

Dai.

Picnics! Movies? Derbyshire???? (I am envious of the last to be sure).

Perfect timing… that means mephalan and stem cells returned before the week-end when everything quietens down and you can get on with the onerous duty of having nothing to report but us chickens.

Good luck with all of it Jet and I truly hope that I can look back on…[Read more]

Hi Amelie,

It has been good not hearing from you. 😀

The consultant has raised the point of the m components but if he did it in context i.e. the figures are x but everything else is fine then perhaps all s/he is doing is noting that here is a presence but nothing out of the ordinary. The next meeting will tell all – whether the m…[Read more]

I'm not going to rain on your parade Bridget… suffice to say I am envious of your mobility but I couldn't wish it on a more deserving person.:-D

Enjoy yourself… skip if you are able, shuffle, trundle or just step out if you are not.:-)

Good for you, good on you… well done. xxx 😎

Dai.

Ah Sarah…

Prayers and positive everything's winging your way… with lots of love. xxx

Where are you? Home or hospital?

Dai.

Of course… it came immediately apparent as soon as I arrived in the Day-Case Unit that no-one knew or remembered why I was there. 😛

I was sent home on Thursday with a 5 day course of Enoxoparin with instruction to come back on Monday pm for bloods and further enlightenment on the leg of destiny.

Another day, another doctor another…[Read more]

Hi Sharon,

I can hear what you are saying and I can hear what you are not saying… and it is your silences that I find extraordinarily hurtful and hard to bear.

Your Dad and your brother are your world… your side of the church wedding… and, up to your marriage and nuclear family, your entire support network. Perhaps this is why you…[Read more]

I remember asking my consultant about Curcumin/Tumeric a while back… it was a parting aside about diet and supplements in general following a quite positive session… and I caught something I can only describe as pity in her eyes… almost as if she was saying that 'despite our conversations about medicine and science you still want to hang…[Read more]

Thank you Sarah and Bridget,

I don't want to give the impression that I am going to raise a brouhaha when I go in tomorrow, I understand that the vast majority of the staff are dedicated to delivering a first-class caring service and that applies especially to all the staff that I meet on a daily basis… most of who I know by name and many…[Read more]

Hi Min,

You are spot on regarding the Doppler treatment. God forbid that I croak over something as stupid as a DVT because a medic couldn't be fished waiting for me to arrive for what is nothing more than a 5 minute procedure… and in truth I don't believe that that is going to happen… but I'm sat here watching the Grand Prix, stuffed with…[Read more]

All the very best for Monday Jet… once it is under way you will find your rhythm and measure and your coping mechanisms.

Internet connection is free, you just ask for the current code (the network in Fletcher is 'Netgear'). You will be well settled… post mephalan, stem cells returned etc., before you have to start 'coping'… I know it…[Read more]

Hi Gina,

How is your Mum getting on? Has she started her treatment? If so I have just completed my 4th Cycle – now on the 10 day 'rest' period… that is rest from treatment ie. injections but the treatment continues to work in your body so it is normally about 4 or 5 days into the 'rest' period before the side-effects of the treatment start…[Read more]

Hi Ivan,

May I wish you a reluctant welcome to the board, I truly wish you were not here!

But, as you are, welcome. CDT worked very well for me and I was in a right mess when I started… with horrendous bone damage… but within a few months I was in Complete Response and ready to move on to the next line of treatments. 😎

Dex in such…[Read more]

Hi Gill,

Its great to hear from you, especially with the good news about Stephen. Did they source the infection?

I truly hope that this was a blip and that he continues to grow stronger and fitter with all the right lazinesses in his bloods that keep him ahead of the game.

I read an article about a Mexican footballer whose family have…[Read more]

Hi Helen & Eve,

It was touch and go on Thursday… the Doppler Doctor threw a wobbler because his session had been extended… that's all there is to it as far as I am concerned (picked up from side-glances and looks of contempt from the nurses in Day Case although they are too professional to actually voice that contempt). I agree Eve, if I…[Read more]