Thanks all, its good to know its not 'just me'… not that I thought it would be mind you. >:-(

Min, you are a gem, truly… I can't help but wonder what Janet is thinking sometimes… I too am a model patient (In) and I imagine not so (Out)… I know I exasperate her at times… even when Dex is not on the menu. Janet spent the day at our…[Read more]

I have just completed Cycle 3 of Velcade and I pressed my consultant (one of the UK's leading lights on research and innovation) about subcut Velcade… and she told me it was coming and not to be surprised if it started while I was still on treatment.8-)

Nothing as yet though.:-(

Dai.

Hi Onlyme,

I had my SCT following an excellent response to CDT but unfortunately, for valid reasons that I can accept (reluctantly), I relapsed after only 10 months, so counted as a failure to launch.

I am now on Velcade as a tertiary treatment for a relapsing patient. I only scraped enough stem cells for one SCT and no one's mentioned…[Read more]

Good luck with the Velcade Kay,

I have just finished Cycle 3 and now have a week or so off before starting Cycle 4 a week on Monday (following a consultation).

The main side-effect for me has been fatigue and exhaustion.. the smallest thing seeming to knock me off my feet… but if you are willing just to lie still, read, watch Tv etcetera…[Read more]

Don't you worry too much about the support bit David my friend… you are well in credit on that score… just drop us a note every now and then telling us about the wizzes and the whatknots… all the good stuff… and we will see you you in 3 months… enjoy it and we will Vasbyte while you are away. 😎 🙂

Dai.

How is John doing Angelina? Any change? Back home or still at the hospice?

Dai.

Yeah, well… pick on the plums not me… 😀 🙂

I bet you are just a great big softie Lancastrian really… I often find that when the scousers and mancunians and suchlike drop their local guard the sweet natured lancastrian comes shining through… and the Crowther bit of me came down to work on Fishguard Harbour 1918 from Collyhurst,…[Read more]

Hi Min,

Please excuse me for treading water in the carer's section… and I'm a little bit frightened of Eve… [i]so I'll keep this quiet and down to a minimum…[/i] I just want to say how much I admire you (yes all carer's of course) but you in particular… because I have followed your journey from the start and realise just how much you…[Read more]

OKay,

Velcade Cycle 3, infusion 4 over and done with. In at 10:30am no time to even sit down… My favourite lead nurse Jenny, whipped me straight in, a bit of kefuffle finding a vein but then it turned out that Bob was my uncle and I was out into the pouring rain by 11:40am… course record.:-D

So its a Dex day today and then 10 days rest…[Read more]

Hi Meika & Christin,

It is always awkward to say welcome when you would rather be saying anything else but you know what it means…

On to David… (that makes 3 active on the board… I'm a Welsh David… so therefore Dai.:-)) he is bound to be in shock… the pain and discomfort will not be pleasant but they are manageable and they are…[Read more]

Just finished watching Sharapova stuffing the Bulgar 6-1 6-1 poor girl.

Weight loss? I should be losing weight, eating very little really… but I have developed a beer belly from whatever. wherever? Dex I imagine, I just feel bloated all the time, regardless of how many poo juices I drink… its frustrating because I have several really…[Read more]

Hi Jo,

Roz has got to be strong for her own good IMHO – she has done so well up to now, I just feel she needs closure (said with love and support if you are reading Roz). xxx

I have got 3 CD's to Bring out before Xmas Jo:

'Country Bound' – Mixed genre Country style songs.

'King For A Day' – A chronological account of my Folk Songs…[Read more]

Hi Wendy,

When you get your profile picture up you should be given the opportunity to 'crop' the picture… as you do it should make the picture smaller… just click on the photo until it fits into the 'copped' square and then we should be able to see you.

If this fails we will call in one of the big tech names – Tom & David spring to…[Read more]

Quick update for those following the Velcade/Dex treatment plan.

I had my Velcade Cycle 3 Infusion 3 yesterday and apart from exhaustion (no doubt helped by the heatwave) and general fatigue I seem to be holding up well. My PN is manageable but there is definitely a tighter, compressed feel in my feet… it sometimes threatens to turn into…[Read more]

Hi Gate,

I appreciate that you may be exhausted by the treatment… but if you do 'pop' in… just take note of our love and support… and when you are ready, if you are able, please let us know how you are. 🙂

Much, much love…

Dai xxx 🙂

Its allowed Roz,

Everything is allowed when you are grieving… I followed every second and every word of Michael's passing and I know that he never got that one chance to recover from the infections that would have given him a chance with the treatments. I also remember how much you struggled to keep connected with Michael with little to no…[Read more]

Well done Steve,

That sort of energy and mobility is a testament to good medicine and Steve's iron man will.8-)

I have come to terms with the fact that 'that' Dai Crowther has been confined to history and that this one is just happy to be able to walk around unaided… although I must admit that I have been 'banned' from trying to recapture…[Read more]

Its old hat for some f the regulars here but I was diagnosed with Secondary bone cancer, primary unknown and that prognosis stayed with me for 14 months. They tested for MM but only for heavy chain, missing the urine test, which my Nottingham consultant called a 'medical student level mistake'. After just 3 months my local hospital passed me…[Read more]