'Should get all you musicians together to cut/burn a record…Tom'.

Its something that has played on my mind for some time Tom.. the possibility of a fundraiser/awareness raiser… with performances by MM patients and a few well chosen presenters and guest musicians… recorded 'Live' and the concert put out on CD/MP3's from this site and…[Read more]

After re-reading Pat's argument I have something to offer.

Personally I'd love to have the option of another SCT (the benefits, not the process) but I only scraped enough SC's for the one shot and for myriad reasons I got 10 months, not the hoped for 2/3 years… but hey! It took five days on the combine harvester and two midnight visits back…[Read more]

Ta Jo,

I treated Janet to a romantic lunch after the V show. A New Orlean's Special Mac Meal and strawberry milkshakes for two – took them to Holme Pierrepont Water Sports Centre and faced the river Trent. Janet took half a loaf and we fed the ducks… and then we were entertained when a couple of magpies raided the party only to be driven…[Read more]

Well, that was the week that was, that was. 🙂

Had my 4th and final VJab of this, the 2nd Cycle… one dose of Dex tomorrow, a few down days and then hopefully a week of building up and feeling good. 😀 😎

I'm back for the 3rd Cycle on Monday, 20th June… with a consultant's meeting first, where I will hear of any interim results. I…[Read more]

When is Peter's SCT scheduled Min?

Dai.

Good luck with the Hip (H)op for Gordon Sarah. It is a double whammy but if he has Bridget's good fortune it could be a blessing in disguise (they do have some good disguises tho.:-)

Dai.

Thanks Sarah,

The dex does help (Dex free day today) but this has been my worst week for being wiped-out so far). Still, one more V tomorrow and then the free week to get me to the end of Cycle 2. I am hoping for some interim results then… and if it is proving to be working then bring it on – and I'll drag my sorry a**** through as many…[Read more]

Hi John,

I too am a guitarist (see the Off Topic for some of my songs) and I dread my current Velcade treatment giving me PN in my hands – playing and singing keeps me sane. Of course only the medics can ease your fears but by the way you describe you condition (especially how it eases after use) it sounds suspiciously like tendonitis to…[Read more]

Hi Vicki,

Your Dad seems to be following a similar path to mine – excepting it took them a year to work out what was wrong (they treated me for secondary bone cancer, primary unknown and it took a move from Pembrokeshire to Nottingham to get the prognosis) :-S

I had bad back problems and to be fair to the Welsh side they soon sorted that…[Read more]

Hi Gill,

I am sorry that Stephen is having it so rough this time… what current treatment is he receiving for his [b]ilnesses[/b]. I presume he is in for his 2nd SCT so I hope that he at least matches the last remission. Please keep in touch, I'm rooting and tooting for the both of you big time.

Much love xxx

Dai.

The very best of luck and a following wind to boot Ian. Stay in touch if you can, not something I am at all familiar with and I for one would be very interested in hearing of the process first hand.:-)

Dai.

Hi Jo,

If the treatment truly is working then the side effects can enjoy their field days with immunity from my tongue for ever. There are side-effects and side-effects of course and if the medics have got something they can give to ease, unblock, block, badger or blast away then gimmee and gimmee now, lots of it, big spoonfuls, ladles, that…[Read more]

Morning Bridget,

I still feel wiped out but in a sort of 'wiped out but with it' sort of way… which is rather nice compared to the last few days. 🙂

Dexed up, so anything's possible.8-)

Dai.

Thanks Bridget and Min,

You know its true about the everyday things re: Consultants and GP's. I am given checklists to monitor all sorts of aches, pains and general condition but who monitors them? I was started on Velcade and then given a 6 week consultancy appointment… I would like to think that someone pores over the results and bloods…[Read more]

Gina and Angelina,

Thank you you both for allowing me a poor-me moment, I think I was due one.:-P

I am aware that I am far removed from some of the problems that others are going through at this time and I do feel for them, truly. Without trying to sound macho I sometimes think that I prefer pain to other, general sickness disorders.…[Read more]

However good your lead nurse this is a consultancy mater and your consultant should have made sure that you were seen for a full explanation IMHO. As Eve says, its early days but I'd be pushing for a full consultancy meeting sooner rather than later, you deserve that for sure.

Dai.