DaiCro started the topic V For Victory. in the forum General 14 years, 3 months ago
I hope. 🙂
I go in for a consultation tomorrow morning and then on into the daycase unit for my first shot of Velcade. I have developed a lump on my sternum which I reported a couple of weeks ago – my consultant sent me for x-rays and if, as she suspects, it is mm related then it will be left for the Velcade to do its magic; if not there…[Read more]
DaiCro replied to the topic I Won't Sing in the forum Off topic 14 years, 3 months ago
Jean, Bridget and Jo, thank you very much for listening. I'm glad you enjoyed the site Jean, its a bit all over the place in terms of different genre of songs mixed together but I tend to leave them in chronological order.
I have about 130 or so songs uploaded Jo – if you press 'music' under the navigation on the left hand side it will take…[Read more]
DaiCro started the topic I Won't Sing. in the forum Off topic 14 years, 3 months ago
Off piste I know but I wrote this song a few days after 9/11and posted it onto the internet in 2007. I re-released it two days ago following the death of OBL – something I refuse to celebrate… but I'll let the song tell its own story.
Click on the link below to listen – it will start automatically. :-)…[Read more]
DaiCro replied to the topic Update on Dad in the forum Treatment 14 years, 3 months ago
Mary and Theresa,
I am so glad that your Dad found both peace and the grace to go surrounded by love in a loving environment. I am sorry that you did not get a longer time together, mm seems to have no rhyme or reason.
My thoughts are with you and your family.
Dai.xxx
DaiCro replied to the topic ***Happy Birthday Bridget*** in the forum Off topic 14 years, 3 months ago
Belated Happy Birthday Bridget. xxxxx
It was Janet's Birthday yesterday too and after three hours at the hospital we drove to the National Water Sports Centre at Holme Pierrponte, Nottingham with a couple of MacDonald meals (her choice) and sat in the car park overlooking the river. Instead of boats and canoes she was treated to the sight of…[Read more]
DaiCro started the topic Velcade and me and possibly how…. in the forum General 14 years, 3 months ago
I mentioned earlier, in Gill's Velcade post IIRC, about hearing of Velcade being given subcutaneously – well this was posted in an American Myeloma Beacon email.;
'Subcutaneous Velcade Injections Show Similar Efficacy But Fewer Side Effects Than IV Injections For Myeloma Patients ? Results of a recent French study show that subcutaneous…[Read more]
DaiCro replied to the topic From Devastaion to Elation in the forum General 14 years, 3 months ago
Well here is to years of bum pinching 😎
My mantra of 'Whatever It Takes' is a bit dated for stage 2 so I've come up with a new one… 'I'm Not Dead Yet' – a reminder to myself and a message to all those who are smiling wanly and waving me goodbye. I imagine stage 3 will be 'I'm Still Here' and with pompom and other drugs on or in the…[Read more]
DaiCro replied to the topic Good Morning Gaye in the forum General 14 years, 3 months ago
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DaiCro replied to the topic Good Morning Gaye in the forum General 14 years, 3 months ago
DItto, with lots of love.
Dai.
DaiCro replied to the topic Devastated in the forum General 14 years, 3 months ago
Hi Gill,
I am truly lost for words.
I am devastated for you and Stephen and in the reverse of reflected glory I feel the weight of your news on my own back. Stephens tenacity and your positivity have both been massive influences on my mm journey and I can only hold out the hope that either the revlimid, or a second SCT will give you both…[Read more]
DaiCro replied to the topic Velcade in the forum Side-effects 14 years, 4 months ago
Thank you, email on the way. I am very interested in this development, especially as I already have PN courtesy of my CDT course of treatment.
Much obliged 🙂
dai.
DaiCro replied to the topic Update on Dad in the forum Treatment 14 years, 4 months ago
Hi Mary and Theresa,
I am so sorry to hear that Patrick is having such difficulty in responding to treatment. Did they dismiss Revlimid as a possibility? I'm glad that he has had the enjoyment of Cheltenham and Aintree and I hope that they can find something to keep him stable for as long as they can.
My SCT also failed after 10 months -…[Read more]
DaiCro replied to the topic Velcade in the forum Side-effects 14 years, 4 months ago
Blooming Hector you lot…. one thing at a time please!!!
I read the OP and then started scanning the replies… I was horrified at finding out that people were finding it hard to get to the toilet on time and had resorted to using pads. It took be back to my SCT holiday and I thought 'Not again!'
Then I re-read and realised what was going…[Read more]
DaiCro replied to the topic PP levels in the forum General 14 years, 4 months ago
Hi Jet,
It would seem that you (and I) have Bence-Jones, light chain myeloma. My pp's have never been a factor but my light chains were 3.500 when I started CTD. I was down to negligible after 2 cycles and 0 after 4. I had to wait for 4 months for my SCT due to shy stem cells but I stayed at 0 from November 09 t0 January 11 (SCT in March…[Read more]
DaiCro replied to the topic Info Day in the forum General 14 years, 4 months ago
I hope to see you on Saturday Jet, I have a chill at the moment but I'm hoping it will clear up before the week-end. Dr Byrne is my usual consultant but we have met them all during my treatments and while we have only met Sarah on a couple of occasions we know Jenny quite well (and I know that she feels nervous about speaking). 🙂
I'd like…[Read more]
DaiCro started the topic Info Day. in the forum General 14 years, 4 months ago
Is anyone here going to the info day in Nottingham this coming Saturday? Has anyone attended a day elsewhere? Janet and I are going and I was wondering if there are any hints or tips etc., in how to make most of the day (it seems a long day on the face of it.). 🙂
Dai.
DaiCro started the topic Ah Well!. in the forum General 14 years, 4 months ago
Que sebugger, sebuggera, ah well, que sera, buggera, buggera.
SCT last March… it looks like its lasted a year. I had my eight week consultancy today and it looks as if activity has started. I was told I was 'in the top 10%', whatever that means – and that I could tentatively be looking at 5-8 years…??? I had responded well with CDT,…[Read more]
DaiCro started the topic I Wouldn't Be This. in the forum Off topic 14 years, 5 months ago
This is my Spring hit. 🙂
http://soundclick.com/share.cfm?id=10404988
Although winter still has a grip on my outdoor activities I can still write… and songwriting makes a good break from novelling.:-) I am in a reflective mood at the moment, I wonder why?:-P
Dai. 🙂
DaiCro started the topic Morris & Me. in the forum Off topic 14 years, 5 months ago
I have to join that unhappy club that several others here have joined recently in reporting that my mate Morris, my 14 year old Border Collie was put to sleep last week. One night of not eating, standing in one place and panting and we had him into the vets pronto. The vet kept him in for an x-ray and found an inoperable (80% chance) mass behind…[Read more]
DaiCro replied to the topic Pain in side anyone else in the forum General 14 years, 5 months ago
Hi Susan,
I am almost exactly a year post SCT and my consultant has had to explain/reassure me that most of the pains I get are from the residual damage caused by the original myeloma and not indicators that mm is back. She has told me that because I am on eight week cycles of consultations it is far more likely that mm will be picked up by…[Read more]
