You don't have to be anything but yourself at the moment Nicki and if down and irate is where you are right now then that's allowed; you know that things will change.

From the moment they start the drip for the mephalan everything goes out of our control; both patients or carers alike. After that its a matter of waiting for the mephalan to…[Read more]

Thank you Michelle.

Thanks Bridget,

Yes, as i thought, about the end of August. I don't know if Mary or Theresa ever left an email address, I'll go look. If not I just hope that they pop in now and again; I'd like to stay in touch.

Dai.

Ooh, I'm in. Holding mid-fielder. Can I reserve a shirt No.? 16 if its still available.

Thanks David.

Dai.

Hi Roz,

Good grief girl, you and Michael are certainly getting a rough ride; a real roller coaster of mights, maybes, ifs, whens and dependings. I appreciate what you say about the bad access, it sounds like a real, actual pain for you.

I am still crossing everything in sight that all this finally leads to your getting Michael home for a…[Read more]

Hi Gaye,

I'm glad that you are telling us about your adventure from this side of the hospital bed. I had the rigors before, during and after my Hickman Line replacement procedure and I know that they make for an extremely unpleasant experience. Sleep, a hot shower and clean smelling hair are real treats when you have to do without them but…[Read more]

Hi Mari,

It sounds like there are quite a few muso's within our clan, perhaps the idea of a concert should be taken seriously – I will start a train of thought about it when the present one has left my station (I'm a one platform kind of guy these days).

I didn't make it out, I got very tired during the day and my inner voice said 'no, not…[Read more]

Hi John,

I'm off out tonight to play at a local session – the first time in twenty odd months; feeling strangely nervous. :-S

Dai.

Hi John,

As a fellow muso I have been wondering about the logistics of putting on a concert – by mm'ers, carers, family and friends etc. as a promo/fundraiser. Any thoughts?

Dai.

Hi Nicki,

The Sam you know is still there, all this snapping and snarling is just a by-product of feeling so down and helpless, combined with his not really wanting you to see him like this.

Janet caught a cold just after my stem cells were returned and so I didn't get to see her (or anyone else for that matter) for twelve days. I missed…[Read more]

Hi Roberta, glad you made it – I hope we don't lose any friends in the move across to beta.

Dai.

Well I've done my bit. Didn't really want to as I find the whole exercise of relying on benefits both demeaning and humiliating but needs must (claiming and campaigning). I hope this survey helps show just how much out of tune the benefits system is in relation to mm patients.:-0

Dai.

Hi Nicki,

The idea of 'worse' is relative. Sam's system has just been given a massive jolt through chemo… or perhaps jolt isn't quite apposite, perhaps scour is better. His system has been scoured by the mephalan and he has had some really good stuff washed out with the bad, good stuff like his immune system and suchlike. He will have to…[Read more]

Ian's got the same camera as Gill – not enough exposure. Welcome Ian, we are getting there… here.

Dai.

Hi Gill – thank goodness for that.

Dai.

ps. you need to alter the exposure on your camera 8^).

Thank you team – for your patience and perseverance in getting us on board by hook and crook. If you could just pluck Gill out of the ether we will be almost complete.;-)

Thank you a thousandfold for such a wonderful site.:-) 😎

Dai Crowther.