Thanks so much for taking the time to reply.
Following four wonderful years in remission after her first SCT my Mam has had Thalidomide, velcade, revlamid and dex, but unfortunately nothing seemed to touch the myeloma. Her consultant says until they can get her light chain count down and stabilised a second SCT is not an option which is…[Read more]

Thanks so much for all the support, advice and information. It's nice to know we are not alone. It is soooo useful to know there is a nurse we can contact as, and I don't mean to complain, we have never been given treatment 'options'. We have been told what is going to happen next without explanation (on average our appointments last 2 minutes-…[Read more]

Hi Trish
Thanks for your reply. I'm sorry to hear about your husband's relapse and I wish him luck for biopsy. Most of what I have read mentions Melphalan before SCT. I guess as a smaller dose it can be used as a treatment?

Thanks x

Hi Foxley,
Thanks for your reply. It's reassuring to hear others have had this treatment because as far as I can tell it doesn't appear to be widely used anymore. I hope the results were also positive for you. I just find it worrying that it seems such a potent, and harmful, drug and that it is being used after so many years of damaging…[Read more]