Hi Megsn……….. hope Phil is improving………

The MRI… phil is not alone here….. it is a mind game and most of us hit the panic button eventually. I refused to have a second one so they agreed to sedate me, marginally… and it worked a treat. Part of my reluctance was that it was too painful(at the time) to lie on my back and the…[Read more]

Hi Sal…………. thank you for your story.
I am so sorry for your loss………. my thoughts are with you and yours..

Best regards

Grayham

Gosh guys……. I'm trying, not too successfully, to link my replies into your replies, but they seem to be going everywhere but to the right place:-D
Not even sure where this one will end up either:-D

Hopefully I'm catching up with my personal responses and hope I don't miss any of you.
I really appreciate your time and effort here. My…[Read more]

Hi Gill….

[b]YOU ARE A ROCK……… THANK YOU SO MUCH[/b]

(a shouted from the rooftops type of voice)

Grayham

Hi [b]HelenR[/b]…… thanks for your story and support. I had to backtrack on the PADIMAC trials that you spoke of….. but need to say thanks here because I am now the recipient of the drug (Valcade) you trialled and it has worked very well for me. So many of you have said to ignore the results that get posted from time to time and as I read…[Read more]

Hi [b]Jean[/b]……… thank you for your story. You didn't mention your husbands name but I hope he is over his cold, and his "bloody-mindedness" about the treatment…. you have come so far in this journey, you have to keep going….. if nothing else, we owe to those who are with us every step of the way – their love and support and their…[Read more]

Hi Michele………. thanks so much for your story and support. I too live in Perth, in Duncraig…. about three suburbs south of Sorrento and not far from the Swan Valley.

Wow!, you were lucky with them picking up your MM so early. They have suggested that mine could have been with me for years (even from my teens)as I've always had ankle/big…[Read more]

[b]Hi Megan[/b]………. thank so much for your story….. I'm pleased that Phil is on the mend, slow as it is. The PADIMAC trial obviously went well over there because I appear to be one of the first Australians to have the drug over here, and am responding well to it. I have Chemo in the day clinic every Tuesday for 30 minutes, and 3 out of 4…[Read more]

Hi [i][b]Megan, Jean,Tom, Andy, Tom (again)Eve and Gill[/b][/i]……….. you guys are amazing and I thank you for your upbeat approach to all of this…… your encouragement is awesome and I will get to writing to each and every one of you soon…….. gotta get some sleep first.

Grayham

Hi Vikki and Colin……….. thanks for your reply (got my picture up now).
I think that treatment seems to differ from Dr. to Dr. as I am still on a weekly Chemo course of 30min transfusion of Velcade and Cyclophosphamide that has been going on now for 3 months and is sceduled for 2 – 3 more. I then have two options to consider…. either the…[Read more]