Tom, I wish you well with your treatment and shall pray for you (hope this doesn’t offend, you’ve got to be so careful nowadays). Your positive energy radiates. I like your ‘onwards and upwards’ mentality -thinking of it has made me do 2 things. 1. Reduce my days at work. 2. Join a creative writing course. After all, we only get one life and…[Read more]

Hi Sarah,

I just wanted to say that I think that your love, strength and interest will be highly beneficial to your husband. It’s just the reassurance that comes from knowing that someone full of hope and positive energy which will help make things easier for him – not everybody has this. My husband very much follows the ‘let’s carry on as normal…[Read more]

Thank you Scott. I wish you well too.x

Hi Andy,

Thank you for your kind words. I’m thinking of you – I hope that the Pomalidomide works, I’ve read that they are inventing new drugs all of the time for our condition so I’m sure that the drug which will work for you is just waiting to be matched to you! This satanic disease is so unpredictable and that is the curse of it that we all…[Read more]

Hi Sarah,

Sorry to hear about your husband- sounds like you’ve both had a very tough time. I know how harsh the diagnosis can seem especially when the disease is more common in older people. I’m only 40 with smouldering Myeloma so it all feels a bit freakish. Let’s hope for all our sakes that they find a drug which will make this a chronic…[Read more]

Tom, hope you are having a great break. Seize the day!

Thank you Sarah. I’ll do some research. I hope that you are keeping well and wish you a positive New Year 2014. How are things for you?
Other people can be tough to deal with. I regret now that I didn’t take time off work after my diagnosis as I went in when I felt vulnerable and weepy. I now regret telling people. Today, I was working at a…[Read more]

Thank you all so much. I’ll make an appointment with my G.P to be referred for counselling. The fact that the counselling hasn’t come through makes me feel a slight lack of faith in the consultant – I accept that this could be irrational. I spoke to her secretary a few weeks ago to chase things up. I’m under Queens hospital in Romford.
I’m…[Read more]

I echo both of you. I’m praying that MM will become like diabetes or hypertension- a chronic, complicated condition that is manageable with a daily tablet. My father has had diabetes for over 35 years and he’s able to manage his condition – with insulin and metformin. I’m hoping that eventually all of us MM sufferers will be able to do the same…[Read more]

I’m a newbie Tom so I’ve no advice. I just wanted to tell you that I hope the new treatment goes well. You’ve offered me positive words in the past. You are such a positive person that I’ve no doubt that you’ll find the energy and strength to tackle this.x

Hi Nick,
This forum provides you with great support and reassurance. I was diagnosed with smouldering MM on 7th October and am so determined to pretend that things are okay that I use a pseudonym because then I can be 2 people- the pre-cancerous person that I was before diagnosis and the post-cancerous person who doesn’t understand where all this…[Read more]

I guess that we have to grab life with both hands and live and love and squeeze beautiful, precious moments out of it! x

Hi All,

Thanks for your replies. You all seem so confident, strong and in control. I admire that so much-it’s great to be able to press a button and receive so much reassurance. I need to ‘give’ more back to you all. At the moment, I seem to be doing all of the ‘taking’ in terms of advice and reassurance.
I’m not receiving medication at the…[Read more]

I hope that your partner smoulders for a long time too! My G.P recently told me about a patient who is now in his eighties who has been smouldering since his diagnosis, when he was in his forties! In the ‘Myeloma Matters magazine’ for Autumn, there’s a short piece written by a woman who was diagnosed with smouldering MM 21 years ago. I would love…[Read more]

Wish you both well Graham and Ann. Keep strong.x