Myeloma Forum | ChrissieAndrews | Activity https://forum.myeloma.org.uk/members/Harmony/activity/ Activity feed for ChrissieAndrews. Tue, 14 Apr 2026 20:56:26 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 4e0ff3babe0891bc200f09e03c32a6bd ChrissieAndrews replied to the topic hemoglobin in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/hemoglobin/page/2/#post-127770 Tue, 26 Apr 2016 21:21:08 +0100 Hi Ted, Thanks for your response. Apologies for the interrogation- I’m just desperate to know more and do more like most of us smoulderers.

]]> b89cbc876e87d56c50702810b7a979a4 ChrissieAndrews replied to the topic hemoglobin in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/hemoglobin/page/2/#post-127745 Sun, 24 Apr 2016 20:35:57 +0100 Ted- can I just ask, are you a vegetarian?

]]> e7a5dd50f2aa571e65de86f18db8f945 ChrissieAndrews replied to the topic hemoglobin in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/hemoglobin/#post-127744 Sun, 24 Apr 2016 20:33:52 +0100 So sorry for what you are going through. Sounds like you are having a difficult time. This is a cruel disease which randomly strikes – I have never smoked, am not an excessive drinker, have never taken drugs, have always tried to eat healthily and exercise and I’m 43 years old. I have been smouldering for 2.5 years. I guess we all have to take one…[Read more]

]]> 27a1978bd5eaade9a717d5489850ba25 ChrissieAndrews replied to the topic hemoglobin in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/hemoglobin/#post-127648 Sun, 17 Apr 2016 20:10:13 +0100 Hi Ted,

You’re right- we are incredibly lucky so far and long may we continue to be so. I have to admit that I was hoping that you could give me a long list of things to do and take to keep smouldering – I guess we all hope for some kind of miracle. Knowing my luck, I’ll end up poisoning myself with all of the concoctions that I take! At least,…[Read more]

]]> 4433896dcfdfe7bf380107343f111c84 ChrissieAndrews replied to the topic hemoglobin in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/hemoglobin/#post-127615 Tue, 12 Apr 2016 21:31:26 +0100 Hi Ted,

Hope things work out for you. when I read that you’ve been smouldering for over 10 years I felt much more positive about my own smouldering state. Just wondering, do you follow a special diet or take any supplements which may have helped you to remain in a smouldering condition? I have been smouldering for nearly 3 years and I’m trying…[Read more]

]]> dc7606e8bfcb2fcb6d85a298a440851f ChrissieAndrews replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/5/#post-126898 Mon, 15 Feb 2016 17:22:39 +0000 Hi Mike,
Sounds like you have really been through the mill – evidently, it’s a tough road to travel and inner strength seems to be an absolute necessity. I always get the sense that you ae able to be in control which I think is such a benefit. I hope that when my time comes for treatment, I can be as strong and proactive as you are. Let’s hope…[Read more]

]]> 2e358c5c0abc864bfd20de8b9f13ae93 ChrissieAndrews replied to the topic CURCUMIN in the forum General http://www.myeloma.org.uk/forums/topic/curcumin1379683671/page/3/#post-125127 Wed, 25 Nov 2015 21:01:24 +0000 Hi,
It’s interesting to read that you all get your curcumin online. I buy Nature’s Garden turmeric from holland and barrett. Is there any reason why you avoid their one?

]]> 32c086f84c75eaeb306f052b0c0011a8 ChrissieAndrews replied to the topic Just a little update on my progress. in the forum General http://www.myeloma.org.uk/forums/topic/just-a-little-update-on-my-progress/#post-124869 Fri, 06 Nov 2015 16:25:50 +0000 Hi Andy, one day at a time… Onwards and upwards (to quote Tom). Sending you cyber love and good wishes-carry on fighting the fight.xx

]]> 6545fe2c87f81c187948224598036352 ChrissieAndrews replied to the topic Reflections of a Smoulderer of 6+years in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/reflections-of-a-smoulderer-of-6years/#post-124856 Thu, 05 Nov 2015 11:42:07 +0000 I think targetted therapy in which each individual case of myeloma is looked at so that patients receive a personally-tailored approach has got to be the answer. It’s logical that if myeloma is such an individual disease, generic treatment will have it’s limitations. The American approach seems to be to look far more closely at the individual case…[Read more]

]]> 9db9396462f589a249be79711faf2a86 ChrissieAndrews replied to the topic CURCUMIN in the forum General http://www.myeloma.org.uk/forums/topic/curcumin1379683671/page/3/#post-124855 Thu, 05 Nov 2015 11:28:46 +0000 Hi, I’m smouldering and have taken turmeric capsules twice daily for the past year (800mg) because my motto is that if it’s not doing any harm, why not give it a try. Here’s my daily regime):
2 capsules of turmeric,
2 tbsp of aloe vera
3 cups of green tea
small amount of linseed with breakfast
Kale with dinner
selenium every other day.
I’m aware…[Read more]

]]> ac1cad7ea6cc9ead33314b5c116df4f4 ChrissieAndrews replied to the topic Continuously declining eGFR in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/continuously-declining-egfr/#post-124643 Sun, 18 Oct 2015 20:58:01 +0100 Oh Graham, I really feel for you. It seems that you have so much to deal with and so much to keep track of all of the time. You don’t need this. You need to feel confident that you can place yourself in the hands of competent medics and your only focus should be on getting well. It’s so unfair that I want to weep for you and weep for myself too, I…[Read more]

]]> 4e6dfb7097234d7ad4b2e42295182563 ChrissieAndrews replied to the topic Sooo frustrating.... in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/sooo-frustrating/#post-124288 Mon, 21 Sep 2015 08:33:15 +0100 Very true Graham -I have to remind myself that we are lucky to be aware even though the word ‘lucky’ feels highly inappropriate! A
bit of a double-edged sword really because I’d also like the carefree freedom of not knowing, of being a ‘normal’ once again!

]]> f3ef638458d2fb0afa959387b6ee295a ChrissieAndrews replied to the topic Sooo frustrating.... in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/sooo-frustrating/#post-124176 Wed, 16 Sep 2015 21:04:21 +0100 I’m so with you Helen!

]]> c482dca83d0a3080cb53722cc19b6309 ChrissieAndrews replied to the topic life after the transplant in the forum Under 50s http://www.myeloma.org.uk/forums/topic/life-after-the-transplant/page/2/#post-123803 Thu, 27 Aug 2015 21:47:59 +0100 As a smouldered, I share your worry. I think that due to the incurable nature of this disease, we all worry about when/if it will strike. I’ve convinced myself that we are just the same as everyone else. After all Cilla Black, Charles Kennedy and Bob Crowe didn’t know that they would meet their ends so soon. There are no guarantees for anyone. Our…[Read more]

]]> 303877dc69e02fa1753af93c289f40ae ChrissieAndrews replied to the topic Continuously declining eGFR in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/continuously-declining-egfr/#post-123801 Thu, 27 Aug 2015 21:28:55 +0100 I think that you’re right to track things closely Graham. We need to empower ourselves so that we can feel some sense of control and not as if we are completely at the mercy of others.This cruel, merciless disease should never take that away from us. Each time I get my pp results, I plot them on a line graph-not quite sure why I’m doing this but I…[Read more]

]]> 51a3a5d95579b9ee07eb4efc02e25d68 ChrissieAndrews replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/4/#post-123800 Thu, 27 Aug 2015 21:19:44 +0100 So pleased to hear this Mike. Any downward movement is a good thing.x

]]> 3fb38d3ecda05d4c5079b80fdc6332fc ChrissieAndrews replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/4/#post-123123 Fri, 17 Jul 2015 16:19:27 +0100 Thinking of you Mike. Hope you are managing to have a touch of normality in between the torture of waiting for test results.x

]]> 497d79f5a5a0b88710f9908350259163 ChrissieAndrews replied to the topic Ian home after SCT in the forum General http://www.myeloma.org.uk/forums/topic/ian-home-after-sct/page/2/#post-122507 Thu, 04 Jun 2015 21:33:34 +0100 Hi Maureen,
I hope that Ian comes home for the weekend and is able to enjoy a bit of normality. One day at a time. God Bless you both.x

]]> 49d81b0644ad27cb00f2434e66059762 ChrissieAndrews replied to the topic Pain I can't get rid of in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/pain-i-cant-get-rid-of/#post-122506 Thu, 04 Jun 2015 21:25:55 +0100 Hi, I hear your frustration and pain and I’m so sorry that you’re not getting any real answers. How about phoning the myeloma info line? There’s always a reassuring voice willing to listen and help.x

]]> 4e16edd67c82490f4303deab644bc742 ChrissieAndrews replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/3/#post-122357 Mon, 01 Jun 2015 21:10:28 +0100 Great news Mike! I’m so pleased to hear.

]]> 240b3b727625c3714986f0a411242d3c ChrissieAndrews replied to the topic breast lump in the forum Newcomers http://www.myeloma.org.uk/forums/topic/breast-lump/#post-122303 Wed, 27 May 2015 22:03:35 +0100 Thnx again Cygnet. I’m sorry to hear about your pneumonia and I hope that you are feeling well again. I can tell that you experience the same emotions as me and I’m sure many other people in our situation feel it too – every twinge in the back makes us think that bone damage is settling in. Every lump or ache feels like evidence of advancing…[Read more]

]]> 320f13799d7d46745c8184bbc8f93f7b ChrissieAndrews replied to the topic breast lump in the forum Newcomers http://www.myeloma.org.uk/forums/topic/breast-lump/#post-122282 Tue, 26 May 2015 21:42:03 +0100 Thank you – I’m feeling blessed as the lump has turned out to be innocent breast tissue. Thank God – I was beginning to think that Cancer was a buy one get one free disease! A load has been lifted from me.

]]> 5d5789b27958d0c432c5aabc98362f81 ChrissieAndrews replied to the topic SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-4/#post-122190 Tue, 19 May 2015 19:04:11 +0100 Hope all goes well and that you both keep strong and positive.x

]]> 09a484b464ba5d0e9e343ef3e97615e9 ChrissieAndrews started the topic breast lump in the forum Newcomers http://www.myeloma.org.uk/forums/topic/breast-lump/ Tue, 19 May 2015 18:53:40 +0100 Feeling as if I’m doomed at the moment- after getting used to the myeloma diagnosis, I have now found a lump in my breast. I ignored it for a few weeks but finally faced up to things and went to the G.P. Tomorrow, I have to see a breast surgeon to have an ultrasound scan, mammogram and possible biopsy and I’m in a state of absolute fear and…[Read more]

]]> f57671c5c6e72eea68582244e0a7b266 ChrissieAndrews replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/3/#post-122188 Tue, 19 May 2015 18:41:57 +0100 A beautiful picture – I hope you find some comfort in good memories of happy times. Sometimes I think that the people that we lose stay alive when we have vivid dreams about happier times. At least, I hope that this will be the case for my children if my myeloma progresses. May we all smoulder forever!

]]> 3cb7504ea36e5a81efed47341120899a ChrissieAndrews replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/3/#post-122187 Tue, 19 May 2015 18:37:59 +0100 Seems like your having a positive response Mike – keep strong, one day at a time.(Apologies for the clichés) but I wish you well.

]]> c3539d72abc7cec9f5ffca2c91b0ab49 ChrissieAndrews replied to the topic Is this really happening? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/is-this-really-happening/#post-121706 Fri, 10 Apr 2015 21:38:37 +0100 I know exactly how you feel and what you are going through. 18 months ago, I was diagnosed at the age of 40 -my children were aged 10 and 7 and I had to keep pinching myself to check that it wasn’t a nightmare. I spent my nights crying myself to sleep and my days trying to be normal so that the kids wouldn’t suspect anything.I am still smouldering…[Read more]

]]> 1f075b6eafe7d2534697d80fc95908d6 ChrissieAndrews replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/2/#post-121523 Wed, 01 Apr 2015 21:11:11 +0100 Just keep carrying on Mike-one foot in front of the other. Defy it. Do what you have to do. If you’re angry, let it empower you. If you are weepy, let tears be relief-catharsis. My thoughts are with you and with all of us who are on this journey.x

]]> bf444d078c0ce32a970c5229da1b1bee ChrissieAndrews replied to the topic Husband recently diognosed in the forum Newcomers http://www.myeloma.org.uk/forums/topic/husband-recently-diognosed/#post-121425 Tue, 24 Mar 2015 21:20:09 +0000 Hi Jan, I received my asymptomatic myeloma diagnosis on the 7th of October 2013 aged 40 – a date imprinted in my brain! The good news is that I’m still smouldering 17 months later. I’m learning that anxiety about the future is wasted time and energy. Smoulderers have the opportunity to grab life by the horns while we’re well. Here are the changes…[Read more]

]]> 746d49ed24766331b01589cd5bb1648e ChrissieAndrews replied to the topic Heartbroken that he's gone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/heartbroken-that-hes-gone/page/2/#post-121270 Thu, 12 Mar 2015 22:23:00 +0000 I’m so sorry for your loss and for the pain that you are all going through – especially your young children. I am a forty two year old mother of two children, aged 11 and 8, and I have myeloma. I would like to think that after my death, my children would get the opportunity to talk about me, take out photos and discuss memories. I would like my…[Read more]

]]> 73934cfd9a082d4b6df21d12f204ba76 ChrissieAndrews replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/#post-121219 Tue, 10 Mar 2015 22:06:51 +0000 Oh Mike, I’m so sorry about the sixty percent plasma cells but u r so incredibly knowledgeable and informed that I’m sure that you’ll make the right treatment choice for yourself. At least you won’t get blinded by the science- I try to take stuff in but my brain is unable to unravel it all most of the time. To be honest, I barely had a grasp of…[Read more]

]]> 9b08934d97aa4aa0ec9c2282c3c29040 ChrissieAndrews replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/6/#post-120888 Tue, 17 Feb 2015 16:55:27 +0000 Glad you’re coping so well with the treatment-I know what you mean about waiting and the car park costs are pretty astronomical to boot! Keep moving, one step at a time-carry on! My thoughts are with you.x

]]> a7ac857519167e56d2f61ac01dc65abf ChrissieAndrews started the topic Playing the waiting game in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/playing-the-waiting-game/ Thu, 12 Feb 2015 17:14:04 +0000 Thanks to Helene Cygnet and Yvonne for their kind words as I tie myself in knots anticipating my appt on Monday. Hlelene- you’re so right and I keep on reminding myself that being a smoulderer is a time of good health-not to be taken for granted. Although I know this, it’s just not sinking in very well at this precise moment in time. I phoned the…[Read more]

]]> 73f6e54e070b2b5a2cadcda815cd66a1 ChrissieAndrews replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/#post-120799 Thu, 12 Feb 2015 17:01:22 +0000 Hi Mike,
Hope the results are positive- I know how torturous the waiting is! One step at a time.x

]]> fc1e612397b3d14aaae9600596e73ce0 ChrissieAndrews replied to the topic mgus/borderline myeloma in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/mgusborderline-myeloma/#post-120729 Tue, 10 Feb 2015 22:40:19 +0000 Hi Helen and Yvonne, I share your fear and sleeplessness. My appt is on Monday so I’m currently tortured by nightmares. The days aren’t too bad but I’m a basket of rattling anxiety at night. I’m trying to convince myself that worrying won’t change anything and is wasted anxiety but I have a head/ heart battle going on. Fingers crossed for all of…[Read more]

]]> 43dba75a4687b38ab2283424f2c074de ChrissieAndrews replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/#post-120259 Mon, 12 Jan 2015 16:35:47 +0000 Wishing you strength and courage for the next phase Mike. The confusing thing is that the stats suggest that there’s only a 10% chance of progression in the first 10 years but I haven’t heard of anyone who doesn’t progress at some point, You have the advantage of being medical and therefore able to understand all of the terms and as they say,…[Read more]

]]> 0d9328b40b563e7864868b2e78326d55 ChrissieAndrews replied to the topic Advice welcome in the forum Newcomers http://www.myeloma.org.uk/forums/topic/advice-welcome/page/2/#post-119961 Sun, 14 Dec 2014 09:01:58 +0000 Hi Lynda,
I know exactly how you feel. I was diagnosed with asymptomatic myeloma at the age of 40 in October 2013. My children were aged 7 and 10. The fear that you feel will eventually turn into calmish acceptance as you gather more information and see that this is a treatable disease – so there’s lots of hope. I know that the word ‘incurable’ is…[Read more]

]]> 9fb22629fa4ae7147fd05f27ba422911 ChrissieAndrews replied to the topic The Cutting Edge in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/the-cutting-edge/#post-119930 Thu, 11 Dec 2014 10:03:01 +0000 Hi Mike,

Just watched some of this- it’s exciting that there are these new drug combinations and that research is being done on when to intervene but the cynic in me wonders if our cash-strapped NHS would be likely to allow us to have access to these drugs and treatments anyway. After all, myeloma is a rare form of cancer that affects so few of…[Read more]

]]> 2391d94d6f81c94d5b47725227f180f2 ChrissieAndrews replied to the topic Paraprotein- rates of increase in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/paraprotein-rates-of-increase/#post-119872 Mon, 08 Dec 2014 17:00:57 +0000 Thanks Ted – I didn’t realise that it can actually go down too. Do you take any supplements or follow a special diet plan? Judging by my pp level, I seem to be further along the smouldering journey than you.

]]> 0d2dbc169774d320330253ba71038952 ChrissieAndrews replied to the topic Advice welcome in the forum Newcomers http://www.myeloma.org.uk/forums/topic/advice-welcome/#post-119870 Mon, 08 Dec 2014 16:43:30 +0000 Hi Cygnet,

Excuse my ignorance but I had to google ‘conscious sedation’! No, I didn’t have it; I had a combination of local anaesthetic and Bob Marley singing ‘three little birds’ on the Ipod. I returned to work the next day.

Sorry to hear about your mum – I hope that she is at peace and as pain-free as possible. Sometimes life sets us enormous…[Read more]

]]> f8fd171f777168cf8422e633728a48c0 ChrissieAndrews replied to the topic Advice welcome in the forum Newcomers http://www.myeloma.org.uk/forums/topic/advice-welcome/#post-119858 Sun, 07 Dec 2014 22:11:16 +0000 Hi,
I remember being in your situation last year and I hope I can reassure you by saying that the anxiety that you are experiencing now is far worse than the reality. I would recommend taking someone to the appt with you as it’s hard to take everything in. My consultant was very positive and talked about how treatable myeloma is nowadays. She then…[Read more]

]]> ab2a700614582082a3a6c288bc665de1 ChrissieAndrews started the topic Paraprotein- rates of increase in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/paraprotein-rates-of-increase/ Sun, 07 Dec 2014 11:32:55 +0000 Just feeling curious about what a ‘normal’ rate of paraprotein increase is. I see my consultant every 4 months and each time the paraprotein level increases by one. In the last year, it has increased from 20 to 23. Just wondering, do other smoulderers have a similar rate of increase?

]]> 015fcd64e984df1849c5bec0a8ae2a88 ChrissieAndrews replied to the topic Heartbroken that he's gone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/heartbroken-that-hes-gone/#post-119844 Fri, 05 Dec 2014 16:41:58 +0000 Hi Rosie,

I’m so sorry for your loss. The picture is beautiful – he looks so well in it. Hope you and the children can keep strong and keep memories of special times alive. He lives on in your hearts and your memories. God bless you all.x

]]> e86e60545d6dd6525d388fdad0dc06fa ChrissieAndrews replied to the topic Myeloma Diagonsis Pathway download for GP's in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/myeloma-diagonsis-pathway-download-for-gps/#post-119843 Fri, 05 Dec 2014 16:36:13 +0000 Well done Helen. I think that this also illustrates that we can’t blindly assume that Doctors are completely up to date with everything -nowadays, we can be better or equally informed.

]]> b1bdbb1884175fd973495b605167aede ChrissieAndrews replied to the topic Can our profiles or posts give name of treating hospital @consultant? in the forum General http://www.myeloma.org.uk/forums/topic/can-our-profiles-or-posts-give-name-of-treating-hospital-consultant/#post-119831 Thu, 04 Dec 2014 15:13:24 +0000 I am so sorry Graham- sounds like a bloody nightmare which is the last thing that you need when you are in pain and therefore vulnerable. I’m afraid that it just shows that we can’t have blind faith in the medics but always have to question, query and even make suggestions- which is so wrong but necessary. Is it possible for someone to attend…[Read more]

]]> 9d38785fbd690c6cfaf433f51df3a07f ChrissieAndrews replied to the topic Getting better for now. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/getting-better-for-now/#post-119830 Thu, 04 Dec 2014 15:05:28 +0000 I think that you thoroughly deserve the TV John! Glad to hear that the Velcade is working.x

]]> 6c46fea410703acf40cd43c2631cc423 ChrissieAndrews replied to the topic Finally saying hello. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/finally-saying-hello/#post-119810 Wed, 03 Dec 2014 17:17:57 +0000 Hello Noel,

I wish you well – fingers crossed for a positive outcome.

]]> 65d81a2b61002a6dc26a156476cfcf16 ChrissieAndrews replied to the topic Another agonising wait... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/another-agonising-wait/#post-119786 Mon, 01 Dec 2014 22:16:10 +0000 Hi Tony,

I haven’t had treatment since being diagnosed as smouldering a year ago. The skeletal x-ray didn’t show lytic lesions and I haven’t experienced any complications so I think this is why they haven’t gone down that route instead. My pp level was 20 when I was first diagnosed but my consultant indicated that the rise in the level indicates…[Read more]

]]> 64f065efbcf71d424b05e2cfc64a8b2e ChrissieAndrews replied to the topic Another agonising wait... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/another-agonising-wait/#post-119781 Mon, 01 Dec 2014 17:27:47 +0000 Well, with my pp level at 23, I top both of you and am not receiving treatment!! Not that we’re competing… (Excuse me for being facetious but laughing has to be better than crying, right?

]]> 269e17cf62e89a51f0b7424aa388ca2e ChrissieAndrews started the topic The Smoulderers guilt- thoughts of the day in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/the-smoulderers-guilt-thoughts-of-the-day/ Sat, 29 Nov 2014 11:38:36 +0000 One year post-diagnosis and I still struggle to process the diagnosis. What I mean is, I know that I have it but I don’t know how I’m supposed to internalise the information.I feel and look healthy – and I’m grateful for this-but I don’t know what to do with the diagnosis if that makes sense. I want to put it in a box and bury it deep down but it…[Read more]

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