Well Tom, am envisaging you in the onesie:-P with a/bs and sorry face:-( hope you better soon
Love Helen

Oh how lovely, I hope you get them sorted, and next year I expect you to post a picture
Love Helen

Dear Vikki
I don't know what is normal and not normal still! I took nigh on a year to recover enough after sct to go back to work! So maybe Colin is trying too hard, who knows . Like Ali's mum, we have to do what we feel is best on that day! I have good days still, then I have really bad days where I struggle to get in to work, need lots of…[Read more]

Hi Jean
It's good to know he's doing ok, I still can't take wine or curry, my sense of taste is quite weird still, but it means I'm still very thin! Silver lining:-) actually it more likely means I drank too much before! As for the bmb… Results next week, but I'm fine really, I'm hoping I have a slow return to more treatment and fit in a few…[Read more]

Hi Jacquie
I finished my chemo on the 6th June and was booked for harvest on the 18-19th July. I waited from the 20th July when harvest completed to 15th August for HDT and SCT . Our hospital doesn't book HDT until successful harvest is completed so it is first available space after that….. About 4 weeks in all as they like you to bet fit as…[Read more]

Hi David
Re bulbs, did you tell her what it was supposed to say? Or is that still a romantic secret?

How is Frank today Jean?
Love Helen

Hi David
I have an old style passport which runs out on 29th April. We went to lanzarote 2 weeks ago. It was fine for Europe but lots of officials pointed its date to me! Had I been going to America I would have needed 6 months on it they said.
Hope that helps
Love Helen

Hi Dai
Having only recently ( yesterday?) thought you seemed to be doing rather better than for a while I am finding it really disappointing to read of your recent encounters and frustrations, I can totally see your point and don't understand the reasoning behind it,do they think gcsf might exacerbate myeloma cells ? Other people seem to get it…[Read more]

Hello Jo
Like all the others I wondered where you were, especially when the hair dye question was raised a few weeks ago! You wre instrumental in my taking the plunge there again.
I'm thinking of calling a register soon, just to keep tabs on everyone!:-) or maybe one of those map things that Harry potter had would be good.
I'm sorry to hear…[Read more]

Hi Debs
I think I'd pop into the GP too, it could be the sun…. If you've had chemo you are more at risk of burning, it could be hormones as well and even …. As you have small children …there is a childhood illness called 'slap cheek syndrome' which is a virus rash you could pick up I suppose, I've not looked it up at all but if it…[Read more]

Hi Andy
Brilliant news for you and Steph, it taken a long time but lets hope the pps stay down there for a very long time. I'm so pleased.

Dai .. nice to see you are staying on the straight and narrow with this treatment so far

Ali it's good to hear your mum is doing so well

And Vikki I admire Colin's get up and go back to work but is it…[Read more]

Hi Wendy
Peru wasn't shelved permanently but I had chest infection after chest infection so thought thin air might be a step too far and was going to leave it until later, I've not asked again.
I get the bone marrow result next week. If it is ok he thinks I might have up to 2 years before I need more treatment but as the sflc went 43, 58, 119,…[Read more]

Ha Wendy
I know, but to be fair I was only going to Spain, and only the myeloma would not be covered, but yes it was a risk. I'd have been a lot less gung ho if I'd gone to Peru as originally planned. And when I booked it he thought it might go down as the chest infections have all gone now and I'm really feeling well, if slow at walking…[Read more]

Hi Jean
Good to hear Franks bloods are looking good, at this stage ' close to normal with no pp' is good…. Look how long some people have taken to get neutrophils and platelets up enough to get out of hospital. I had a bmb at 3 months post SCT to check I was still in remission.
Love Helen

Hi Andy
Revlimid is certainly doing its stuff for you, Have a good trip to Greece, some sun certainly lifts the spirits.

Hi Jill I always take the Revlimid at night too as it makes me weary about an hour after I take it, but everyone differs
Love Helen

Welcome back Wendy, your trip looks amazing, I confess to not changing my insurance before we went to Lanzarote, didn't think about it really, I had nothing I writing, just a 'you need a bone marrow biopsy to see what is going on so we will do it when you are back from holiday' anyway. It is done now, results next week.
I think living with…[Read more]

Hi David
Good luck with the Velcade, I hope it works quickly and well for you. Do keep posting about your velcade journey.
Love Helen
Ps how is your garden? Any sign of those bulbs you planted? Mine's a mess!

Hi Jean
I'm with Eve here, I'd be requesting cheese on toast a lot too! It's funny but that was one of my favourite dishes after SCT also. Blood results look really good too
Love Helen

Dear Jean
Home at last …. Hurrah …and managing to eat as well. It's all good progress. Hope you both manage to relax and recover together.
Love Helen

Hi Eve
I've not started any on any more treatment yet, but I had the long discussion about the options available and it will be velcade and possibly a trial which is coming up with velcade and something else, I don't even know what it is called, then second SCT with the hope I will get 2-3 more years!….he said!! . I was a bit shell shocked…[Read more]