Hello Helen
Good name! I kept our cat at a distance for about 6 months, he was fed in the garage and I never touched him or his food dishes nor was he allowed to sit on the sofa I sat on- which we had cleaned before transplant- he still doesn't sit beside me very often, I think he was traumatised by the experience! He too is 13. I've had lots of…[Read more]

Well Dai
If its working .. keep at it is all I can say, this teak you are wearing will no doubt be your wooden leg? I hope tomorrow's session goes ok.
Love Helen

No it's normal I think…. The stem cell transplant is the endpoint…. It's what you have been looking and working towards for such a long time, and it's still going to give the best chance for long remission, so it's very important. I remember being quite excited about the cells going back, which is also weird. Though without them I'd have been…[Read more]

Hi Jean
How was today? Did it happen? I'm off to Lanzarote – to paint I hope, while husband goes walking, we go in 12 days. Not that I'm counting you understand!
I'm pretty good at the minute, thanks, less tired and …….no cough!!!!!!!! Finally! After 6 months it is gone.
Love Helen

Hi Jill
I've been on Revlimid now for nearly 2 years all told, each cycle makes me gradually constipated then it reverses and gives me terrible diarrhoea so I now try to control it by having lots of fibre for the first 2 weeks of the cycle, then back pedal a bit in the last week , but it doesn't always work! i get muscle pain and tiredness with…[Read more]

Dear jean
Here's hoping all goes to plan tomorrow, keep in touch.
Love to Frank (and you)
Helen

Tom you are sooooooo kind
H

He he
nice to know she treats you 'normal'
Love Helen

Hi Eve, Tom and Babs
I'm getting as many holidays as possible sorted, trying not to be fedup, though that is hard. I'm not a depressed sort of person but its a close thing now and again! My optimism is suffering!!
I'm not in line for more treatment any time soon I think, though it was mentioned then decided against, I suppose I'll find out in a…[Read more]

Dear Keith
It's horrible having all these infections one after the other, no resistance is such a pig. I'm wishing you much strength and fortitude, when's the BMB going to happen?
Love Helen

Oh jean
Does this mean frank gets home for the weekend?
Love Helen

Hi Eve
Sadly it is me who is no longer in complete remission, only low levels so far so I might get a year or more before I need more treatment, we just have to wait and see now. I hate this watch and wait, so uncertain!!!
Love Helen

Hi Vikki
Hurrah ! Just get out and do all the things you want to now.
Love Helen

Dear Helen
I'm a lot further along the work road than you so the pension situation is very different, but I'm back to work full time, I could retire on ill health grounds but this would mean reducing our income – as i had time off when the children were little my pension will not be great and as my husband is still working, I'm going to work…[Read more]

Dear Sue
How terribly sad a time for you all, but you have given Michael such a precious gift in his last months – all that love and care.
Love Helen

Hi David
Hope your MRI shows nothing untoward.

And yes Eve and Jean I'm back from Barcelona, Gaudi and Picasso'd out but was much warmer there than here. Lanzarote next month for more sun, and still desperately trying to get my head round the increased light chains, can't tell you how devastated that result last week has felt. It was…[Read more]

Dear Tom
Brilliant news keep it like that:-)
Love Helen

Hi Maureen
Phone the hospital, could be sub clinical infection, or anything especially if temperature isnormal. Tell them about the confusion, can't harm and will put your mind at rest.
Love Helen

Hi Ali and Suzy
I swore by Aveno and the itch seems a common problem.
Love Helen

Thanks Tom and Wendy
I will do my best visiting all the high spots – tops of towers etc! Never been before, he did say it could be some months before I might need more treatment. Ironically the cough seems to finally be going.
Love Helen