Wow Chris
Doing well, eating and drinking 🙂 make the most of it, back numbers of old Dallas to watch? congrats on getting out.
Love Helen

Hi Vikki
I didn't have much gcsf after SCT 2-3 doses I think but I can't remember and my diary is packed somewhere while our bedroom gets decorated! Anyway, I was on lots of morphine for weeks so the pain was usually under extremely good control (I'm a nurse, I don't do pain 😛 ) However, prior to my Stem cell harvest, my first posting on this…[Read more]

Hi Keith
I really hope this works for you, ironic that you look and feel so well now. So keep us posted and I hope the side effects are small and manageable
Love Helen

Dear Keith
All I can add to what the others have said is to hope tomorrow gives you some positive treatment approaches. Be sure to let us know how you get on, thinking of you
Love Helen

Hi Vikki
Sounds as though its all progress, I had lots of phosphate, it's a bit of a b*****r as they have to give it really slowly so you really have to drink lots, which is really hard when you feel so sick. I'd banished all visitors except hubby by this stage, didn't want anyone to see me in that state! No hair, running to the loo, throwing up…[Read more]

Dear Carol
Very sorry to hear its back, I really hope PAD does the trick for a very long time, look after yourself,
Love Helen

Hi Debs
How did the ball go? And was your trip to china a success? I'm interested to hear how you got on?
Love Helen

Dear Sue
I'm sorry to hear about Michael, it must be so hard for you all. I do hope you have lots of support at home and can make the most of your time. love Helen

Hi Jean and Phil
I'd love to give the cough it's marching orders but its still here, slowly getting better, I think I'm just one of those people who takes longer to get better for some reason, very annoying but nothing I can do about it.
And thanks Phil yes I have had my flu jab, in view of the number of infections I've had there was no choice…[Read more]

Hi Chris
You seem to be quite upbeat now, hope you get out soon. I got out 14 days after the stem cells went back, i still felt dreadful but so much happier as you say, with all my own stuff around me. Carry on in this direction, can't be long now.
Love Helen

Hi Tina
Good to hear you are home at last. Just have to take each day steadily now, lots of rest, gentle exercise and all you can eat and drink. Don't try to push yourself too much, your body has to do some serious mending now.
Love Helen

Dear Vikki
Just hang on in there for a few days more, you will soon get Colin home then he'll be all grumpy and impatient that he's not getting better fast enough for himself.:-P :-/ It can take a long ……. slow……. time as Tina is currently finding.
Love Helen

Dear Jo
Sorry to hear about your relapse, but good that you are still so supportive and still getting your hair done. Hope the velcade works well.
Love Helen

Dear Emma
Taking temp every day when on the chemo is one thing I found vital, you need early warnings as you feel quite rough anyway.
The Newcastle support group meets on Monday, the details are on the web site here, might be of use?
Love Helen

Thanks Phil. It is improving and…. I'm really trying not to pick anything else up …. My family reckon its just my turn, having never had so much as flu in my entire life, just walloped with everything recently!
Love Helen

Dear Keith, Dai and Andy
You are all struggling in your different ways, but I love the sparky positivity you all have, just keep it going please. It feels like having a bunch of brothers fighting against the mm corner( I only have sisters, so I can only imagine)
Hope you all get some better numbers soon.
Love Helen

Hi Ali
Thanks for asking, I'm still coughing! It's day 84 today, not as bad of course, but annoying for everyone else and tiring for me, but I'm ok I'm not letting it get in the way though its a constant reminder at a point when I feel I want to put ill health behind me, Anyway, planning next holiday:-) following Tom's mantra now!
Love…

Hello Mavis
Welcome to the remission club, lets hope we are in it for a long time.
Love Helen

Hi Chris
Hope you are still feeling chipper, and if we are talking about the dire horrors, as you know from my many previous posts 2 days is what I can only describe as merciful, mine went on for 10 months. All better now though:-)
Hope you continue to have an 'easy ride'
Love Helen

Hi Vikki
I'm just back from another holiday 🙂 Cornwall this time ( cold and rainy) and I see a lot has gone on in my absence:-) this is the tough bit where you have to look at Colin and not wince if he looks c**p, I felt sick from day 1 ( melphalan) and really really REALLY awful from day 5 to day 12 🙁 😐 they let me go home on day 16 but…[Read more]