Hello David
What a relief to get results like that, hope the RT goes smoothly. Keep us posted.
Love Helen

Dear Gill
How desperately sad, I have no idea nor have any words to make it better or easier for you. Just know we are thinking of you and Stephen.
Love Helen

Hi Chris
Glad the wedding was a happy time, And that the commissioners have been leant on enough to come up with plerixafor for you, I do hope it does the trick and you get to ASCT. I am at last feeling the benefit of mine and my quality of life is pretty good.
Love Helen

Hi both
For what it's worth, I've never consumed much aspartame, and our diet has always been a very healthy, organic where possible, low fat etc diet as my husbands family all seemed to die in their 40's of heart disease. My family all live to 100! So here am I with MM!. I think it is just one of those things, probably a tiny cell malfunction…[Read more]

Hi Andy
I'm there on the 11th too, let me know when you get there?
Love Helen

Hi Jimmy, Phil, Colin, Dilini
I thought it was just me being tired and unable to sleep, interesting too that there is no pattern, I'm not finding one either. Still it's working so I'll take it!
Love Helen

Hi Vicki
This is a terrible blow for you both, i can't imagine how i'd have felt if that had been me. It is to be hoped that Plerixafor is now going to be allowed for Colin. Keep us posted about plan C.
Love Helen

Congratulations Wendy, from one to another. Its a funny feeling to be here, one year on and in pretty good shape, all things considered. Did you have cake? I wasn't sure how to behave, I think I secretly wanted the family to put balloons on the door and send cards! I did have a good day though. Well done.
Love Helen

Hi Cathy
I'm a year post transplant and what the others say is exactly right, once you have the drugs and transplant, it is a process which you just have to endure. Most of us get through it in one piece. It's horrible, I was taking anti sickness, anti diarrhoea, antibiotics, antacid and painkillers for many months, I'm good enough now, about a…[Read more]

Really good news Eve, get away on those holidays and enjoy them
Love Helen

Hi Ali
I think the jelly beans will sit on the side for a while, but she will share them I'd say:-) And they are small so you can keep trying them until they taste right. I drove from the 3 rd week, but I didn't have a line in, even now though I don't like driving more than about 30 miles as I can't concentrate well enough, I'm still struggling…[Read more]

Dear Dai
It's good to know someone is keeping a good eye on you at the hospital, I hope you get some answers soon. I've been back on the Revlimid for 2 months now, no pain so far but it is already playing havoc with my guts again.
Love Helen

Dear Teresa
I do not have the words to help, it must be such a difficult time. I love the idea that Peter is a visitor wandering through your mind. It is a comforting thought. Take care of yourself on your journey into your altered life.
Love Helen

Hi Ali
The down feeling is very normal, after everything and all the hype, suddenly you have to pick up the bits and try to put life back together, it's not easy. Keep reminding her that she's been through so much she's allowed to feel 'off it ' a bit. Just not too much though….! they will offer counselling if needed, and it might be!…[Read more]

(with heavy irony tone) Phew Dai it's good to know that they can sort out the minor stuff so efficiently………..

hope you are mending now, what will they do about the Hb level do you know yet?
Love Helen

Hi ?.
revlimid makes me Very tired, I'm afraid that all I do is give in to the tiredness,
Love Helen

Hi Jacqui
I too have IgA lambda light chain myeloma and am oligo secretory, I was told a similar story to Tracey, though I'm without the Amyloid, I have not asked what my chromosomal risks are, I'm not sure I want to know that just yet, when I relapse I'll ask. I had my SCT a year ago. At the minute I'm in comple remission, but I'm on Revlimid…[Read more]

Happy Birthday Ali, I'm guessing you will have to take the cake round to your mums today to celebrate with the family, make the most of it, it's time to start the rest of life with happy things. Have a lovely day.
Love Helen

Hi Angela
I'm glad Mavis was able to tell you about hip replacement first hand, as I've only looked after people with them. Once the SCT is over and you have recovered, the hip replacement should be straightforward, the damaged section is removed and you should have a pain free joint without loss of height. Many of the patients I looked after…[Read more]

Oh David
What a blow for you, what does this mean for the anniversary plans? Is the new treatment as long as the mm one?
Love Helen