Hi Angie
Eve said it all, hold her hand, be there, tell her you love and give her permission to leave. How hard it must be.
Love Helen

Thanks Teresa

Dear Eve and Teresa
I had abandoned the computer, didn't realise the post finally loaded, it is of Sullivan Bay in the Mahurangi Park, north of Auckland. I think we were gathering shells for the little boys, though secretly I stashed some in my pocket and they are on my kitchen table now.
You are right Eve the scenery is spectacular, round…[Read more]

Dear Teresa, well, I tried to put new pics on, failed again, it is in the profile but not on the site. :-/

Wendy I'm glad you are pleased with your new hair too, it's good to do the normal things again. Even if you don't feel normal.

Eve I told my husband about all his different women, he laughed, said they were all very bad tempered!…[Read more]

i'm trying to post some photos and failing miserably:-(

Hi Teresa,
Tomorrow! I will try and put new pic on, have to use mother ship computer as I don't know how to do it on very convenient iPad. Hope you are well.
Love Helen

Hi again Judd, in the patient services link on this page, in the bottom left corner is the section on current Myeloma trials, which talks about what is available to patients. There are a few people who have done this trial, I am on myeloma xi trial so haven't experienced this one myself
Take care
Helen

Dear Judd
What a terrible experience! This disease creeps up on people so silently and with little to show until things are going horribly wrong.
Welcome?? to the site. There are many here who will be able to hold your virtual hand and offer help and advice if you need it. Read the back posts and learn as much as possible about the disease and…[Read more]

Ha ha Eve! You'll have to get your clippers at him in a few months then. >:-(
While i was away my hair was ok then seemed to suddenly grow lots.! I was looking like a poodle last week, the fine curls were just too grey and unmanageable, so a bit of bleach and toner yesterday, and a short choppy cut and here I am, a blonde:-) its strange to see,…[Read more]

Dear Angie
This is the very hardest part of loving someone isn't it? As Tom has said, you who watch have to try to keep things together. I shall be thinking about you, hope your mum improves as the day wears on.
Love Helen

Well, I've been to the hairdresser again. First proper cut in a year, almost to the day. All poodle like curls consigned to the salon floor and very short 'do' again. Quite liberating. Only difference this time is that it's blonde:-) I've never been a blonde before so that's a bit of a novelty to get used to.
Still got horrible dry skin and lots…[Read more]

Hi Vicki
SCT is straightforward for some and difficult for others, mine was a long hard road and I thought that I'd never feel better. But 10 months later I'm ok and I'd do it again if I thought it would buy more time. I did get very fed up with all the fussing and tended to growl at anyone who was only trying to help, or was worried about me.…[Read more]

Hello Paul
As Carol says, how are you getting on, you seem to have had a tough time recently.
Love Helen

Hi Eve
I don't know much about this and perhaps the best person to speak to is the nurse specialist at Kings, but I think it is not uncommon for a few people to take a long time for their new cells to engraft and consistantly produce the full range of normal blood cells. Are Slims platelets and neutrophils going up and then down a bit? He needs…[Read more]

Dear Siobhan
I talked to your mum mostly in the early hours of the night, I'd just had my transplant and felt very dreadful and down. She was in a lot of pain I think but gave me that cosy feeling of not being alone, not being a burden. You are a lucky woman to have grown up in a home with such an altruistic, generous and kind mother. While I am…[Read more]

I am so sorry to hear about Bridget, she was such a support to me in the dark hours
Helen

Hi girls
Just thought I'd add my 10 pence worth here. I've been on revlimid for some time and my sense of taste is poor now. Lots of things taste wrong and a few even burn my mouth, alcohol feels like it has chile in it and all citrus except orange are painful to taste. Lamb has a weird taste and spiced food is also uncomfortable after a couple…[Read more]

Hi Wendy
Well done for the run, not something I'm likely to ever do so I take my hat off to you. And a brilliant total for the charity
Love Helen

Hi Keith and all
I too am just on an aspirin a day with the revlimid, though I did take the heparin injections with me to NZ for the long haul flight, just as a belt and braces approach which seemed to do the trick. Revlimid makes me tired too and everything still tastes funny, but it's working so not complaining:-)
I hope you get on ok with…[Read more]

Hello Teresa
How are you? I thought a lot about you while I was away. I'm over the jet lag now and feeling pretty good. Have you done much in your garden, mine is a wilderness, we've had so much rain every weed is 6 feet tall and all plants washed out, you get the picture!:-/
Love Helen