Hi Stephanie
Hard luck on having to join the site but you will get good support, as Eve has said it must be hard for you both at the moment with the reluctant pps. Hope the revlimid does the trick.
Love Helen

Hurrah David
Time to get more done in that garden, love Helen

That's great Eve, Slim is catching up fast, hope he sticks to the plan now.

Dai, what you chaps will do to attract a mate never ceases to amaze;-) made me laugh!

And Elizabeth, how did you do that enormous smiley?
Love Helen

Dear Jean
I can't imagine losing one of my sisters (I have 3) we are all quite close and they have our shared childhood memory. I'm glad the funeral went well, nice to have a minister with the personal connection.
Take care
Helen

Oh Mavis I am sorry, I have been wondering what had happened to you and your appointments. Hope they manage to get you on your feet soon and the CDT does the trick.
Helen

Hi Dai
Will keep my fingers crossed that blood levels improve. I'm on to the 5th cycle now, so far so good:-)
Love Helen

Hi Terry
My get up and go got up and left about 5 years ago and is only just coming back lol!
I forgot to say that I have had a hot water bottle practically welded to my back until about 3 days ago and have worn socks and many jumpers constantly in bed I was so cold. And as David says when you get cold everything seems worse.
As for Macmillan…[Read more]

Hi eve I'm with Paul on this one, ring your specialist nurse and ask for all the screening tests to be done on one day, it should be possible.
Up here we don't have the cyclophos priming, just the heavy duty gcsf then harvest, when that is done ok the transplant date is booked about 3 weeks later so that you can recover a bit before sct. Hope it…[Read more]

Hello Kirsty
Not the nicest site to join but has the nicest people, especially when the going is getting tough. You are very young to have this disease thrust upon you but there are others your age and the under 50s have some other place where they communicate in a different language or something;-)
I've been struggling with the diagnosis and…[Read more]

Hi Andy
We'll keep our fingers crossed that the chemo gets the evil paraproteins and zaps them all!
Love Helen

Minus 8……Brrrrr that's cold, I'm enjoying a heat wave here In unseasonably sunny Newcastle, it is 23*at 5pm, I'm in shorts and a t shirt and factor 50. So much for the maxim never cast a clout until May is out.
Good luck with the trial ,keep us posted with how it goes, it's interesting to hear what goes on in other areas of the globe. I'm…[Read more]

Hi Terry
I was out by day14 and felt dreadful for weeks. I did as much as I could, slept, cooked, slept, went out, slept, saw people, slept, ate a bit, slept, got infection after infection, slept you can see the recurring theme here :-S

I'm now 7 months post SCT, still have some residual problems BUT for the last 10 days I'm more like myself…[Read more]

Hi Eve
Good to see you enjoying a bit of time off at last even though it was cut short a bit. Hope you have a spell of plain sailing into the SCT
Love Helen

Dear Michelle
So so sorry to hear about Phill, he was too young to leave and you must be heartbroken. I wish you all the strength you and your children need in the days, weeks and times to come. Remember all the good things and talk about them to your children keep him live in your memories.
love Helen

Hi Debs
No I understand trying to distance yourself from mm, it's a bit invasive on the mind! And escaping from it as much as possible is probably a good idea. I'm ok, getting better, the pneumonia was a set back which I didn't expect but I'm good now. I'm also sporting a short' 'do' which I quite like, though I wouldn't have chosen it. Like you…[Read more]

Hi Dai
I could never work out what was doing what when I was on the rev/dex/cyclophos combo but now I'm on revlimid only, I have the running nose, especially at meal times, tingling mouth and trembling fingers, sudden fatigue and occasional headaches i think when I've done too much.
Being a girlie I can't comment about the hesitancy! Different…[Read more]

Dear Nicola
How tremendously sad for you all, after so short a time. Remember he will be with you every time you think of him and how much he was loved. Chin up and live your life well in his memory.
Love Helen

Hi Debs
I'm delighted to hear you are doing well and take my hat off to you organising such a splendid event.
Where do we post stuff to if we want to send you raffle prizes?
And how is your hair doing? Shall you have a delightful coiffure in time for the event – very clever of you to pick the date for when you would have chic short hair.:-)…[Read more]

Hi Theresa
Thanks for explaining about the trial, I understand a little bit about how some of these proteins work and the race to find a drug which switches off the malignant plasma cell production is important for all of us. I hope it works well for Peter and that he is recovered from the work up.
You are allowed to be negative, it's a very…[Read more]

Hi David
Very nice , good all year round by the look of it, it's not one I've tried growing. I just bought some snakes head fritillaries and some alliums to brighten up the pots on the terrace. I'm going to have flowers out side the window all the time now! Even if it's expensive, it makes me smile. Even when the blackbirds uproot the…[Read more]