Hi David
What about a mixture of viburnum, spirea, hebe and a couple of hydrangea. You have a lot of space there. We can grow all of these shrubs on our heavy clay soil and it will give you a variety of flowering phases all through the year. Or just stick with viburnum, dark green leaves lots of varieties generally with a tiny pink flower, needs…[Read more]

Hi Paul I'm much better today thanks, got to be better by tomorrow, I've got tickets for the theatre and don't want to miss out!
Do you have siblings to collect an allograft from? And I think you are right to just get on with life as much as possible. I felt much the same about the treatment, it was a case of get on with it, toe the line and…[Read more]

Dear Kerry
How are you and Melvin getting on? Sorry to have hi-jacked your post a bit:-)
Helen

Oh Paul that is one big hiccup! Oh how unpredictable this disease is. It is an effort in its self trying to remain optimistic when hiccups! happen. I do hope things are progressing well for you now, do you have a future date on the horizon yet? Or have you turned superstitious and not disclosing it in case it changes again?
I am doing ok, they…[Read more]

Hi Paul
How are you doing? You must be close to sct now as I seem to remember you joining the site while I was in hospital having mine! Love Helen

Disappointing for you Dai, but hope the rev and dex works for you, love Helen

Thanks Eve we might just do that. We go for 3 weeks, to fit between trial visits, I'm really excited about it. This time last year I never thought I'd be able to go any where ever again, so I've already come a long way, in my head, so you have to just hang on in there and hope you and Slim get to go again, just think I shall be able to bore you…[Read more]

Hi Andy
Welcome, as David and Bridget have said, lots of post goes on in the early hours, dex, sleeplessness, worry, whatever….. We do it all. The mm journey is like a roller coaster ride, feels different to each one of us, can be bumpy or smooth…….. Hope you've got the seat belt on………..!
Helen

Hello Eve good news for you at last, Can't help with london, only ever use public transport there. Hope you get away, i managed to fit in a trip to France between stem cell harvest and transplant so use that time well!
Despite having pneumonia now I have booked my ticket to New Zealand today and got insurance for both of us- husband only £50…[Read more]

Hello Keith
See you on Saturday
Helen

Hurrah, hope it's a very long remission
Love Helen

Hi Terry
I didnt have the chemo priming either, just the gcsf injections, then I had a needle in each arm and lay flat on my back for 5 hours the first day and an hour the second day. They got enough cells for 2 scts. I took a book but couldn't read as couldn't bend my arms to turn the pages! I could not get up to go to the loo either, but had…[Read more]

Dear Bridget
This must be such a blow for you, I hope they can sort it for you soon, keep going, you really are a tower of strength you know.
Love Helen

Hi Penny
It's really hard to describe this procedure, no one wants to put you off, but as it is still the best hope for longer remission especially for the younger age group, i felt i just had to get on with it. I'm sure you have read some of our stories and know how different it is for everyone.
It is unpleasant to go through, terrible…[Read more]

Aw Tom, it's a goodie but I think 'thank you' from LZ2 is my choice. Bit smooth but what does that matter to ageing rocker. Love Helen

Hi Carol
I'm nearly 6 months post sct now, I was really well for a few days before the stem cell collection gcsf drugs started so had my hair styled short and went away walking, after the collection ( it took me about 3 weeks to recover from it, I was particularly slow!) I was again very well for about 10 days before sct so we went on holiday to…[Read more]

Amazing! I'm truly impressed with the skill. On a different note, I'd like a bit of Led Zeppelin
Love Helen

Hi Jet
I'm a couple of weeks behind you, mid august. Debs is Ms July! I'm ok, been a much slower recovery than I expected, still tired and have trouble with an unpredictable gut and all the pain and unpleasantness that goes with it, but I'm getting there, enduring the lenalidomide, trying to eat properly and do normal stuff, but it is hard work…[Read more]

Dear Jet
I'm so sorry to hear about your sct, I hope the Velcade works effectively for you.
Love Helen

Hi Gary
I'm with Wendy on this one, myeloma nurse specialist here on the site or at hospital might be able to explain more, does your sister see the consultant alone? If she is this confused she should have someone with her to ensure that there is no misunderstanding. High doses of dex can cause paranoid and depressive symptoms and should be…[Read more]