Dear Ivan
I was diagnosed in February and also was fairly fit, bit anaemic and tired so the shock was overwhelming, even checked that it was my name on all the sample tubes! I've been at work all through the induction chemo, some good days some bad days and everything in-between, I'm off sick now as i head off for my stem cell transplant next…[Read more]

Hi Helen
Hope today goes alright, fingers crossed for your mum, I'm going away for a few days today before the next hosp visit next week.
Stay strong
Helen

Hi Helen
The drugs are really hard to get used to, I'm glad I only had a few months- I was really responsive to them and my sflc dropped from 750 to 11 at the end of the fourth, the pp level went from 5 to 4 and has been untraceable since, and my anaemia resolved quickly, in fact I'm probably physically better than I have been for about 5 years…[Read more]

Hi Helen
Thank you I'm booked for 15th if there is a bed free, our unit is very busy at the moment.
I have had a very different course to that of your mum by the sound of it, I had an early diagnosis as I was found to be very anaemic with joint pains and have no obvious bone or kidney problems but the treatment is all a bit arduous and we all…[Read more]

Hi Elizabeth
Thanks for your post, I'm much improved, clearly a few days can be as long as a week!!
Helen

Hi Helen
I've been diagnosed for 5 months now and had 4 courses of revlimid on the myeloma xi trial, it has been an emotional nightmare and I have only just found the energy to even look for, let alone contribute to, the forum. But I'm doing ok and on target for sct next month.
I had no rashes with revlimid but suggest go to hospital for…[Read more]

Hi Gill
Thanks, I'm still not back to normal but slow improvement continues, the trouble is that ' a few days ' to recover is hard to judge and i'm clearly impatient!
Helen

Hi Dai
Improving now, headache gone, just the back pain to settle down to pre gcsf levels, still unbelievably tired. SCT going to be mid August.
Thanks for your help
Helen

Thanks, I've had the collection, it finished yesterday, and they got good numbers too, so was worth the gcsf pain over the weekend. I am unable to move today with muscle pain and exhaustion, just hope it goes soon. H