Hi

Sorry to hear your dad passed away so quickly after diagnosis.

My husband was diagnosed in October 2012 and he has had a rough time but as long as treatment is working we live one day at a time and try our best to live a normal life. I get very anxious when we go for his monthly results.

Can you let me know the name of the book.

Time is…[Read more]

Tom posts on myeloma support group on Facebook.

Megan

Sorry to hear Phil has relapsed. Hope you get treatment sorted and on to remission x

Hi Vicki

We don’t know if Ian will get a SCT, it’s wait and see how low his FLC come down but some people have been on revlimid for years. The dosage of dex will be reduced to 20mg for the first 4 days on his next cycle. I am seriously thinking of Ian being referred to The Beatson in Glasgow as they have myeloma specialists. Consultants at…[Read more]

Hi Vicki

Sorry to hear you have both been having a tough time. Myeloma is so unpredictable and we try to live our lives as normal as possible until a relapse.

Velcade didn’t work for Ian but he didn’t have cyclophosphamide with the dex. He has just finished cycle 3 of revlimid and dex. FLC are down to 329. He had a blip where they rose by 200…[Read more]

My husband was diagnosed 2 years ago at the age of 56. I cried all the time and could not function as he was kept in hospital with a lesion on his spine and then had spinal compression . He did not cope very well and is on an antidepressant , which does help. He also had a psychologist .

I take diazapan when I feel really anxious and can’t sleep…[Read more]

Thanks Megan

No results yet but spoke to a specialist myeloma nurse at The Beatson in Glasgow who was very nice and calmed me down. She thinks it is too early to change treatment yet and to be referred for a second opinion to Glasgow

Brilliant news Michele. My husband hopes to get remission and SCT. He is on his 3rd treatment revlimid and FLC have come down from 1200 to 530 after his 2nd cycle.

Andy went through CTD, velcade and DTPACE pace but didn’t get remission. He went onto revlimid for 2 and a half years and now on polimoid. Look at his posts.

My hubbys consultant would not put anyone through SCT who are not fit. Think carefully about treatment.

Good luck x

Thanks

Sarah how are you coping?

We’ll done Andy you have come a long way and manage to stay positive. Ian was diagnosed 2 years on 25 October.

Keep it up x

Hi Peter

Hope the new treatment works for you will

Maureen

Please phone the myeloma nurses on this site who can advise you on treatment. You could also ask for a second opinion.

Good luck

Maureen

Hope all goes well with the operation David and you get home soon.

Maureen

We don’t have the cancer drug fund in Scotland either and pomalidomide has been refused here. Hoping it will be passed as it will be Ian’s next treatment if revlimid fails.

Maureen