[HelenParticipant]

Awwww David, drug free Christmas and birthday sounds good, it's funny, I don't know what drug free is like! I have no idea if I'd be better off the Revlimid than I am on it, but I'm not planning on stopping to see, if that makes sense 🙂
Have a good Xmas
Love Helen

[HelenParticipant]

Dear Ali, Andy, Sandy ,Helen ( so right – good name:-D ) David, Michelle, Tom, Jo, and Vikki
Thank you all, yesterday and today have been really good days despite the horrible zometa, at last I feel really well.
Ali it is very kind of you, I'm only doing what others did for me to keep me going in the dark hours, do have a lovely Christmas with your family.
Helen, you will feel quite liberated to be free of the line, I'm glad i never had one.
and yes Sandy same Prof, very charming. No ..Andy, not a hobbit…… He's much taller than me! Oh … I'm not very tall either, maybe I am a hobbit? Hairy toes ……hmmmm
Tom and Vikki .. am thinking new stem cells slightly drastic way to look younger and it'll never catch on, but I'm not complaining. Jo have had hair done again, ash blonde now, going to a wedding on Saturday got to glam up, but will certainly relax after that.
Enjoy the holiday
Love Helen

[HelenParticipant]

Hi Andy
Free coffee!! Well not round here it isn't. V expensive here! And we do want to hear about how you get on, we worry about the ones who go too quiet, it's all about the balance again.
Love Helen

[HelenParticipant]

Dear Keith
Really hope you feel better soon and enjoy Christmas, you are so right to emphasise the need to spot things early, it's so easy to let things go ' just a day or 2 ' then have major problems.
Love Helen

[HelenParticipant]

Dear Jean and Frank
Great result!:-) if it were not true they would bring him back tomorrow to have another go, and it doesn't sound like you have to go back? looks nearly enough for 3 there. Everyone is sooo different
Love Helen

[HelenParticipant]

Hi Sarah Jane
Very good response there, keep it up, I did the same as Andy when I had the cyclophosphamide, Ondansetron regularly worked well for me. I was on Revlimid too and went to 0 in 2 moths, been there ever since!
Love Helen

[HelenParticipant]

Dear Tom
Prior to Zometa I always have a couple of paracetamol, I've always had those aches and pains with it, it lasts 4 days for me and is kept at bay with regular doses of said paracetamol and the occasional codeine if I forget. Some people never react to it, some only to the first one and others at every time, just another of those individuality things. Here's hoping you are a once only. I got admitted to the day unit after my first dose as I couldn't move most of my muscles after 12 hours, very unpleasant, but its worth taking, we have it for 2 years here, 26 doses, then stop if no bone damage, longer if you do.
Love Helen

[HelenParticipant]

Dear Jean
You don't look a day over 45 yourself, and I'd have just flaunted a toy boy if I had one, or pretended !! Hmm now I come to think of it I married a younger man any way…….. I enjoyed the Bond movie very much, better than the last one.
Love Helen

[HelenParticipant]

Dear David, Jo, Jean, Peter, Sue and all
I totally agree, someone always comes up with little nuggets of golden help when you need them most, have a really good Christmas every one
Love Helen

[HelenParticipant]

Thanks very much Jean and Megan, some times it feels a bit mean talking about good news when there are so many others just coming to terms with the diagnosis, treatment or relapse. But I suppose we should be balanced, and remission is what we all hope for, for as long as possible. I went to see The Hobbit tonight and need to see the next 2 episodes in 2013 and 2014, so, another 2 things on the 'to do' list 🙂 it was really weird to know that we had been on the actual Hobbiton set in June this year on our New Zealand trip.
And Jean, that back and chest pain that Frank is getting, I really remember it!!! I felt terrible, as though my ribs were being pulled away from my chest and springing back, every time I moved. I looked and acted like an old lady! Today …… I was told I looked and moved like a 45 year old, so hurrah, a new lease of life. Hope Frank is more like his old self between times.
Love Helen

[HelenParticipant]

Dear Dai
Really hope you have a good birthday and Christmas Dai and continue to improve. Love Helen

[HelenParticipant]

Hi Andy
Sorry we aren't getting together this week, I go for the Zometa and clinic tomorrow, I'm glad you seem ok perhaps we could get together in the New Year?
Love Helen

[HelenParticipant]

Dear Jean
I've just read what Dai wrote on here a few days ago and can't add anything to that, I took 11 months to feel normal after my SCT, it is a terribly slow recovery sometimes. Now I'm able to do so much more but I did think I'd never get to this point. I felt really well for a couple of weeks after my harvest settled down too so it sounds like Frank has got over his induction chemo, so he might be really well over Christmas, just enjoy it as much as possible before the transplant starts.
Love Helen

[HelenParticipant]

Hmm, oh dear it's not easy is it? It's a good job you were there! How is your mum today?
Love Helen

[HelenParticipant]

Phew, good news Wendy, now relax and take time to enjoy that Merry Christmas you probably haven't had time to prepare for yet?
Love Helen

[Author]

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