HelenWatkinson

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Viewing 15 posts - 526 through 540 (of 989 total)
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  • #110438

    Helen
    Participant

    Oh David
    What a blow for you, what does this mean for the anniversary plans? Is the new treatment as long as the mm one?
    Love Helen

    #104679

    Helen
    Participant

    Hi Dai
    Does the silence mean that they kept you in again? Hope it's getting better
    Love Helen

    #104670

    Helen
    Participant

    Are you and Slim getting on ok now Eve? You're a bit quiet at the minute. Hope you are all right.
    Love Helen

    #100340

    Helen
    Participant

    Hi Vicki and Craig
    Onto the home straight now, just a few more weeks of horribleness then recovery.
    Yes take the anti sickness stuff every time it is offered was my motto, I slept through one med round and forgot to ask and lived to regret it. The process is horrid enough without being extra sick, it doesn't always stop it or the nausea too, so better to take it.
    Love Helen

    #110420

    Helen
    Participant

    Hi Tom
    It's a relief to hear that you don't need insurance to come to Newcastle, 😀 I know it's a wild place…..the Marriots a bit posh mind and far enough from the quayside
    Love Helen

    #100173

    Helen
    Participant

    Ok Vicki, we've all got our fingers crossed now and hope that it all goes according to the book.
    Love Helen

    #100085

    Helen
    Participant

    Hi Ali
    No real celebrations, big bunch of flowers and family lunch today, very nice:-)
    I had terrible trouble with my gut from end to end after transplant, only settled really slowly, still not 100% but close now. I was on metoclopramide, gaviscon and lansoprazole for about 2 months afterwards and only ate bland stuff for weeks. In the old days in hospital it was called a gastric or 'white' diet. ( chicken, rice, yoghurt, fish, toast, porridge etc.) I kept on that with a few vegetables until Christmas then started eating a bit more varied stuff. The first few months I only ate because i had to, not because I wanted it. I did cook but often couldn't bear to eat it. I now get hungry again and am enjoying food. Don't push too hard because it's easy to become food averse. I felt much better when I stopped the lansoprazole, so it worked well for a while and then seemed to not work, I suppose the gut begins to repair and then you begin to not need the meds and begin to get better it's a bit of a juggling act, I have had a couple of gut upsets when I went back on it and again it helped for a few days then started to make me feel more nauseous again. Trial and error and that individuality thing again! Ice cream, Eton mess, wine and chocolate were my test dishes and when I was able to eat them again I knew I was on the mend. Still can't do the wine yet though:-( You'll have to have it instead! Get yourself away for a week or 2 now and blow away the cobwebs. Your mum will want you to relax a bit now and anyway she'll only be sleeping 🙂
    Love Helen

    #104741

    Helen
    Participant

    Hi Dai
    I was just wondering why you were so quiet and hoping the revlimid hadn't rendered you ill again. You'll have to keep us up to date on your set for Johns fundraiser too.
    Love Helen

    #104749

    Helen
    Participant

    Dear Keith
    It's a rough ride you are having with this, I don't know how I'd feel about it. 🙁 but there is evidence that this works quite well in slowing the disease down. Hopefully, after month 5's reduction in the dex you will stop the diabetes complications and pick up a bit, I do hope so. Hang on in there.
    Love Helen

    #86486

    Helen
    Participant

    Hi Angela
    Welcome, I've had a stem cell transplant so can tell you about that from my point of view, and there is much about them on the site which will give you a good idea about what to expect. I've not had a hip replacement but have looked after people with them and this is a specialist orthopaedic subject when it comes to myeloma.
    Which do you want to know about and what can we help with first? The stem cell collections have been covered a lot recently with varying results for different people too, so it will help us a bit if we know which area of the country you live and you should get local knowledge too which is always a help.
    Love Helen

    #93306

    Helen
    Participant

    Hi Wendy
    Another close contemporary then, I didn't do anything special for my anniversary but got a large bunch of flowers which was nice. Had a sip of wine again, but it still tastes terrible, I tried! 🙁
    As for Peru, my theory is that mosquitoes don't like altitude so if I go to Machu Picchu it's all above 2000ft, can't do the rain forest but can do Lake Titicaca.
    I got the green ( ish) light from consultant to look at May next year so will investigate insurance and plan itinerary and hotels in the next few months and then book sometime after Christmas. I think it will be quite expensive but I'm determined to have a go at it. 😎
    Anyway got Venice in September to look forward to first.
    Love Helen

    #100081

    Helen
    Participant

    Hi Ali
    Hope all is progressing well? Bet your mums spark out on the sofa for large parts of the day still? Are you coping ok?
    Love Helen

    #100130

    Helen
    Participant

    Hi Jo
    No idea about this subject really but the cost is dependant on what drug is used and how much you have, for example,
    Aranesp is about £15 per 10mcg, up to £735 per 500mcg injection. I'm not familiar with these drugs but can look them up in the magic book at work if it's of interest. Good luck with it, if it works it has to be better than trashing into the hospital every so often.
    Love Helen

    #100078

    Helen
    Participant

    Hurrah

    #110413

    Helen
    Participant

    How did you get on Tom? Was sunny Newcastle all you expected it to be? Where did you stay? Did they put you up or did you have to do that for yourselves?
    Love Helen

Viewing 15 posts - 526 through 540 (of 989 total)