HelenWatkinson

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Viewing 15 posts - 541 through 555 (of 989 total)
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  • #93301

    Helen
    Participant

    Hello Wendy , don't think that was an over reaction, I'd have been the same. Its good to know they have trucked back down again. Lets hope they stay there, where they belong. I'm totally paranoid about every ache and pain now as well. I'm sitting here aching all over since the zometa on Tuesday, it still knocks me out for a few days, even after all this time.
    Also, I'm still in complete remission with a normal kappa/lambda ratio, tomorrow will be a year since my stem cells were returned to me, do I have a party? Should I celebrate? Probably will!
    🙂
    Love Helen

    #100071

    Helen
    Participant

    Hi Ali
    It's nice to know contemporaries are out there, thank you 🙂 Do you have a homecoming imminent? Are the platelets up?
    Love Helen

    #104730

    Helen
    Participant

    Hi Jean
    I'm told it doesn't matter when you take them. Always at the same time means you are less likely to forget them. Dex keeps you buzzing sometimes so morning works for many, thalidomide and lenalidomide make you tired so evening is often better, cyclophos needs lots of fluid so you can be up all night peeing! >:-) but if Frank is able to minimise the feelings of grimness and side effects by taking them at night then do it, it's another individuality thing. Consistency is the key, so same time each day is advised, ( it what is done when you test medication) but even that is an individual thing too as everyone absorbs and metabolises drugs differently, so roughly the same time of day is whats usually advised.
    I'm interested to hear what Ellen says though so do let us know.
    Love Helen

    #104668

    Helen
    Participant

    Hello Dai
    Are you cured now?
    Love Helen

    #105582

    Helen
    Participant

    Hi Richie
    Welcome to the site, hope you get some normality back soon, it's a very frustrating situation to be in. No doubt you will be. Kept under observation quite closely from now.
    You should look on the under 50 site for some contemporary views of the situation, not that we don't want you looking in here too.
    Love Helen

    #100068

    Helen
    Participant

    Hi Ali
    Seems she's on the up now, Don't let the side effects worry you, she just has to tell them when she goes to clinic that they are still there, ( or have gone) I was nauseous with the dreadeful Diarrhoea for months. It's still not gone away completely but is more associated with the revlimid cycle now. Your mum appears to be the same age as me I notice. Let's hope we are discussing this for years to come.:-)
    Love Helen

    #100059

    Helen
    Participant

    Hi Ali
    I came home on day 16 after the chemo, 14 after the cell return, And yes you do feel suddenly better once the new cells begin to get a grip. It is better to be at home too, my lovely husband kept the house clean by damp dusting with furniture wipes and disinfectant wipes every day, especially door handles and taps, clean towels and bedding every day for the first couple of weeks and very few visitors, all kept at least 5 feet away from me, no kissing, which was hard. I did what I felt like doing, then rested in between. Woe betide anyone who got in my way! It was my way or no way, it's a very emotional time too, the bulk of the treatment is over and though you feel shot, you can't quite believe you are out the other side. You keep expecting disaster to strike and it's emotionally draining. Don't infantilise her unless that is what she wants, I did not want a fuss, just my own way, and space to be quiet, i was back to cooking all meals at the end of the first week, still not cleaning much now i know other people can do it;-) I needed to escape people after quite short times really, there is only so much you can burden people with. The worst visitors were the ones who came to see me for hours and ignored my husband, the best brought dinner, sat with me for 10 minutes then ate the dinner and had a beer with my husband! 🙂
    I know you are worried but just relax and let her recover at her own pace.
    Chin up
    Love Helen

    #86448

    Helen
    Participant

    Hi Rach
    Welcome to the site, if you private message me I can put you in touch with my 26 yr old daughter. She went through all of this with me nearly a year ago, it's a tough journey for all of you, just let your mum get on with it in her own way.
    Love Helen

    #107705

    Helen
    Participant

    It's good to know you are back on the road again, many more miles I hope, just shows what they can do sometimes.
    Love Helen

    #100118

    Helen
    Participant

    Hi Paul
    Glad to see you got this hurdle passed, take it easy for a bit, just eat lots.
    Love Helen

    #107681

    Helen
    Participant

    Hello Teresa
    I'm sitting in the garden on one of the few summer days we have had here this year. I'm looking at the flowers and thinking of you.
    Love Helen

    #93299

    Helen
    Participant

    Hi Wendy
    Well let us know the result when you get it. I'm planning Peru next year for the same reasons as you, if there is a biting creature around, it will always tackle me first. So I always smell decidedly unattractively of insect repellant whenever I go away:-(
    Jean I'm really looking forward to Venice, we will be cruising on a boat for a week, so hope the weather is kind to us.
    Love Helen

    #93339

    Helen
    Participant

    Hi Vicki
    I finished induction treatment early June last year and had sct in mid august, ( nearly 1st anniversary, hurrah) my first posts on this site were when I was recovering from gcsf and induction and I was just beyond myself with fatigue. I only had 10 days, just before sct when I felt well. Those few days were really good and I'm probably now back at that point now, and have been for the last month. So don't despair, some of us are just slow at recovery. I burst into tirades of abuse at a box of photocopy paper last week, to my colleagues amusement thankfully, as I was unable to lift the thing due to intense pain in my upper arm muscles, totally unexpected, now I have to ask for help and it IS SO FRUSTRATING. Anyway as Michelle says, you have to carry the bags!
    Love Helen

    #104664

    Helen
    Participant

    Hi Dai
    You do sound a bit more cheerful.
    I'm glad to see there is a possible reason/cure in process, how has this latest development affected the armchair Olympics? Will you be disqualified now for taking life enhancing drugs?
    Love Helen

    #93295

    Helen
    Participant

    Hi Wendy
    Ostrich behaviour is a good holding strategy until you make your mind up about things I find! I'm going to use it when I need to! I'll keep my fingers crossed that it's just a blip in the sflc's, and everything settles down.
    Your holiday in Asia sounds exciting, where abouts are you going? I've just booked to go to Venice in September.
    Love Helen

Viewing 15 posts - 541 through 555 (of 989 total)