[HelenParticipant]

Hi Nicola
That's a fantastic send off for your dad, you must feel so proud that people thought so much about him, I hope that gives you a little bit of strength to cope with the tearful times.
Thinking of you
Love Helen

[HelenParticipant]

Hi Tina et al
If you need pain relief, take it. I have looked after people who have taken colossal doses of opiates and functioned very well for years. ( you wouldn't believe the amounts we see in the addicion service:-P ) There is nothing so wearying and depressing as pain. As long as your docs are aware of what you take they generally don't let you have more than you need. If they are worried they send you to pain clinics, anyway, bone pain is so gnawing and tiring you need the hard stuff, 🙂
Love Helen

[HelenParticipant]

Hi Kay and all
I'm a few weeks ahead of you on the sct front and also have the curls now, getting them cut next week, will post new photo then I think. Today I can barely move, having woken up with severe back pain, the first I've had for a year as it went when I started the chemo last February, I'm hoping it will settle in a day or so, and I did nothing to induce it which is a mystery. Anyway, I'm not back at work yet, doc thinks after holiday is the time to aim for. It's hard not to push yourself but I understand that feeling of trying to get back to normality as soon as possible and put the 'ill' role in the background for as long as possible.

I think Dai is right and you sound as though you are pushing a bit hard on your traumatised body. When you think about it, if you have a minor op on your toe or nose, the cells are not fully recovered for a year though they are at about 80% after 6-812 weeks, so the cell damage and regeneration after sct is much more comprehensive. Be gentle on yourself:-D
Love Helen

[HelenParticipant]

Hi Sarah
Good to hear Henry doing well, now lots of food and sleep and mending
Love Helen

[HelenParticipant]

Hi Neelie
What an awful experience, your poor dad. I think a letter to the practice asking how this decision was made is in order. I had my blood taken a year before diagnosis because I was anaemic and was told the results were ok and stop worrying about them! Turns out 12 months later when they were repeated, the telltale signs had always been there. I have had a grovelling apology from my practice since then and as Eve says they can't do enough for me now. I didn't make a complaint just asked the questions as I didn't want to change docs or really antagonise them but I did feel I neede to make the point.
I do hope your dad gets on ok from now
Love helen

[HelenParticipant]

Hi Andy
Always been a night bird, descended from a long line of owls I think, and never used to need more than 6 hours sleep. Now I need about10! Dex time is weird, I could never switch my brain off, so even when I think I was asleep I felt awake, – dreaming was vivid reruns of the day and little plans for the next.

Hi Susie
A few days pain is normal, agree about the horse
Love Helen

[HelenParticipant]

How are you now Andy ? Can't sleep I guess!!
Helen

[HelenParticipant]

Hi Mavis
How are you now? Have you got the pain under control yet?
Love Helen

[HelenParticipant]

Hi Susie
Welcome
A very worrying time for you but Kay seems to have covered it well. I have a different, low secretory myeloma so my pp was only 5 at its highest, though the anaemia I had meant immediate treatment. Each of us has their own 'level' and the pp is only one of the measurements used, when all the tests are done then they will decide what happens next. Where are you being treated?
Helen

[HelenParticipant]

Hi Elizabeth
I only use my iPad and can't work out how to cut and paste anything but see how it will work on the pc, very clever
Love Helen

[HelenParticipant]

Hi all
Yes I was told alcohol was permitted but not stonking drunk! Since being on the revlimid though I can't bear the taste, it feels like its laced with chile and burns, but I'm keeping on trying, on a weekly basis….. The taste has to come back….:-(
Helen with cup of mint tea in hand…….

[HelenParticipant]

Well done Becky, don't they make you proud to be their parents, Dai and Janet.
Helen

[HelenParticipant]

Hi Stephanie
Hard luck on having to join the site but you will get good support, as Eve has said it must be hard for you both at the moment with the reluctant pps. Hope the revlimid does the trick.
Love Helen

[HelenParticipant]

Hurrah David
Time to get more done in that garden, love Helen

[HelenParticipant]

That's great Eve, Slim is catching up fast, hope he sticks to the plan now.

Dai, what you chaps will do to attract a mate never ceases to amaze;-) made me laugh!

And Elizabeth, how did you do that enormous smiley?
Love Helen

[Author]

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