Dear Helen
I think the side effects of the drugs are so many and varied it is really hard to work out which is doing what, I only had them for 4 cycles but they were terrible, my consolation was the lowering sflc each month, I don't know how i' d have reacted if it had not done that.
I still have shakey hands and certain foods still seem to taste wrong and my nose runs when ever I eat too, I can't concentrate as well and tire easily but managed a 5 mile walk at the weekend, first time in 6 months
The electric shock feelings in my skin and the weird breathlessness have gone and I have less joint pain now, I also don't have the feeling of doom that went with the days after the dex finished, that was so depressing. I didn't find the 4 th month any better than the first but I think I managed it better, I took the anti sickness stuff as often as prescribed and on more days and felt marginally better because of them, I took over 500 tablets in month 3 for the various maladies I was suffering and I had an extra 3 day 'holiday' of all drugs to give my body a rest at the end of cycle 3. They were going to reduce the Revlimid dose but I was very keen to maintain the drop in sflc that I carried on, I was VILE to live with…… My poor family and shortly to be canonised husband will need medals before my treatment is finished!!!
Someone here keeps saying onwards and upwards- makes me smile when I see it but it's the only way 🙂
Helen
