Hi Vicki

Ian is feeling better this morning. I phoned The Beatson in Glasgow on Monday,where he had his transplant and passed on my concerns about Ian. FVRH had put him on oral antibiotics and he had rigors all night as he had taken his quota of paracetamol. Yesterday he was changed to a stronger iv antibiotics which are now working. I think…[Read more]

Hi Vicki

Ian is still in hospital as he is still experiencing rigors and high temperatures but now on oral antibiotics and paracetamol. It is quite worrying. I only IraniAn will have a good remission.

I read your post that Colin is on melphalan and dex. Is he having to stay in hospital for this treatment? Ian would not have been referred for…[Read more]

Ian had a high temperature (39.7) yesterday so he is back in hospital. He is responding to iv antibiotics and should be home either tomorrow or Tuesday. It could have been a urine infection but doctor not sure yet, his temperature is back to normal.

How are you Richard, did you pass your exam?

Maureen

Ian is now nutropenic so hopefully he will not get any infections. He is a little tired and nauseous but otherwise doing well. He has lost 2 kilos but ate like a horse before he went into hospital so he needed to loose some weight. He has wi fi , kindle and ipod but still bored.
Hopefully he will get out around day all being well.

Maureen

Hi Vicki

What a worrying time for you both. Ian had revlimid and dex for 5 cycles before it stopped working. I think if cyclophosphamide had been added it might have worked but the consultant didn’t agree.

Ian is waiting on a SCT which has been delayed as he had to have 2 teeth extracted and now waiting for gum to heal. He had a strong dose…[Read more]

Hi Richard

Hope your mock exam went well.

We had a visit to the consultant today and Ian’s FLC came down to 300 from 580 without treatment. SCT should be around 2 weeks depending on his gum.

Maureen

Hi Richard

Hope your mock exam went well.

We had a visit to the consultant today and Ian’s FLC overcome down to 300 from 580 without treatment. SCT should be around 2 weeks depending on his gum.

Maureen

Richard

Sorry didn’t read your post saying you are on revlimid. Ian didn’t have too many side effects.

Maureen

Hi Richard

Just heard your news and I am sorry to hear you are back on treatment. Are you going back on velcade or revlimid?

Ian hasn’t had his SCT yet as his gum hasn’t healed yet from his teeth extractions. Dentist wants him to wait another 2 to 4 weeks but I’m concerned his FLC will be rising as he is not on any treatment. We see the…[Read more]

Hi Tony

I remember the anxiety, tears and sleepless nights then my husband was diagnosed with Free Light Chain Myeloma but you will come to accept it. My advice is to take each day at a time and find out as much as you can about myeloma from myeloma.org.UK. I have found the nurses on this site very helpful and friendly. Get in touch with them…[Read more]

Ian had a wisdom and back tooth extracted today at the hospital. He was given a course of antibiotics so hopefully there will be no complications. SCT will be another 4 to 6 weeks when thus gum has healed.

Hi Vicki

We will find out tomorrow what dental work will be done and hopefully it won’t be long until SCT. I get very anxious about the SCT but it is Ian’s best chance as there aren’t many treatments left. I pray that it works and he will get a good remission.

I hope that the treatment will work for Colin and you both feel better. Did you not…[Read more]

Carol

Ian is going to the hospital dentist for treatment. His appointment is on Monday but don’t know yet if he is having an extraction.

Maureen x

Thanks to you all for your good wishes. I will keep you updated on Ian’s progress.

Stanley,

Ian harvests tomorrow, hopefully he will have enough stem cells on day one.

Maureen x

Hi Mavis

You have been lucky that CTD has given you remission for 5 years although it did work for Ian but he only had 3 and a half cycles as he had to stop to let his bed sore heal. He had no treatment for a year then 3 cycles of velcade and dex which didn’t work, then 6 cycles of revlimid and dex which brought down FLC for 4 cycles then…[Read more]

So sad that your husband has lost his fight with myeloma. Stay strong for your kids and remember all the good times. Sit down and talk to them, perhaps you need counselling, as he was taken without warning. Did you have time to say goodbye?

I try to stay positive but know that one day my husband will be taken too.

Sending you hugs and…[Read more]