Hi Clarabell,
Thank you for the information on Bisphosphates.My Dad has just started treatment on Zometa and he had his first course about a month ago.My Dad was told by his Hematologist that he could attend the Dentist but not have any treatment.Before my Dad was diagnosed with active MM he had to go for treatment as his back teeth had gone bad and he had 3 extractions and a course of Antibiotics.This now we know probably was the MM that caused all this and the jaw problems he had.I will keep an eye out on his teeth now that you have brought this to everyones attention.At the moment though my Dad has been stopped his course of Chemo and Steroids for the second time as he has had a chest infection of which he has had Antibiotics and even though they seemed to have worked they have put him on a stronger dose of his Antibiotics for his leg just as a precaution to ward off the raspiness of his chest.
The only reason he has been taken off his course of treatment his Hematologist Nurse phoned him on a routine check up of how he was doing and as the conversation went towards his chest infection and increased amount of his leg meds.The Nurse told him he could not continue on his treatment while on a increased dosage.I don't understand why the Dr's did not inform the Hematologists straight the way,surely your local G.p's electronically send all problems relating to illness to your specialists.so in the mean time he awaits the go ahead to resume treatment.
Dad is also having problems with his stomach and it is an on off thing even though he is not on any steroids or Chemo.I've asked him to phone his Hematologist Nurse to mention this but he does not see it as a problem to bother them with.I'm beginning to worry as this has gone on for a month now.And i believe any little niggle no matter how small should be mentioned.
Sorry to hijack your post a little.I'm getting things off my chest as i have had two sad but shocking Deaths this week of a relative and close family friend and they were so unexpected.I'm trying to stay positive but i do worry for my Dad at the news as this could make him get very down as these deaths were due to Cancer,of which these people had no knowledge that they had it.This is the 3rd time in six months that i have been told of people been treated for one thing by there G.P's and it has turned out to be Cancer.What is our system coming to.Sorry to ramble on,no doubt i'll bounce back shortly.Best wishes for your Dad.
Kind Regards,
Illona.
Hi Welcome to you and your MUm,Sorry that your Mum is going through this and i'm sure as you have already recieved you will get lots of helpul information and support from these wonderful people.It is my Dad that has MM and he is having treatment and has been newly diagnosed and he is 64 yrs old.He has opted for the Myeloma x1 trial and is on his first course of treatment and has been randomised for RCda which is a low dose treatment also he has had Radiotherapy and recently he has been put on 5 to 6 weekly Zometa infusions.I'm glad that my Dad is having treatment as so far he has had no major side effects.I know that not everyone is the same as to responding to treatment and are not on the same course,but i hope your Mum will reconsider her decision as i feel my Dad has benefitted greatly and it has given him a good quality of life compared to how he had been the last 7 months leading up to the diagnoses.She needs to know that the treatments available are really good now and with these it can give her a good quality of life and the MM can be manageable.I wish you well on helping your Mum on her road with MM.
Kind Regards,
Illona.
Hi Mavis,:-)
Good to hear from you,Thank you for the input about Zometa i do appreciate any feedback about it as i know not everyone is the same as to side effects,it helps me in case he does start getting any niggles.
Though LRI where he attends at Leicester have had new lifts put in with rather fast agressive doors and fortunatley a member of staff witnessed my Dad getting closed in by the doors so much so they threw him into the lift right onto the other side and bearing in mind he has his arm in a sling due to a broken right Clavicle>:-( .He had more than his ego bruised bless him he could of ended up with another break or rebroke the same arm.:-0 .He was shook up and it did give him a wack.This incident has been reported by the member of staff.Makes you wonder who designed these in mind for Hospitals with fast shutting doors.So any one attending at Leicester Royal Infirmary please be aware of these stupidly installed fast doors.:-P
Take care,
Illona.:-D
Thank you very much Tom!
Glad to hear your in remission long may you continue to do so.
Thanks for the wishes for my Dads recovery into a good quality of life.
onwards and upwards it is then with a few chinks in the armour along the way.
but we will deal with that if and when it comes.:-)
KEEP SMILEING!:-)
Regards,
Illona.xx 😉
Greetings Rosie from another newbie,sorry i cannot offer up info as i'm only the beginner for my Dad in all this.
i'm sure there will be other people along soon to help and give there input.It sou nds like you
u must have a lot of strength in you to cope with all those children to attend to as well as your husband being under the Myeloma bubble.My hat goes off to you as it could not have been easy for you all.Stay strong hunny and i wish you and your family all the best.
KEEP SMILEING!:-)
Regards,
Illona.xx
Thank you Steph!
I'm sorry your Dad is having a hard time and i hope things can get back to a good quality of life for your Dad.
I had noticed you on here when i found this site.Just kept coming on here and trying to see what i could find out first before i took the step to make myself known.It's tough seeing your parents go through this and balance a family life & a job.But with all the great people on here i'm sure they will lift my spirits when i'm withering.:-D
In the words of a great lady My Mother-in-Law who i'm sorry to say is no longer with us.
KEEP SMILEING!:-D
Best wishes to you & yours Steph,
Illona.;-)
Hi Scott,:-)
Thank you very much for your insight to the evil forces of Myeloma:-P .It is great you took the time to write and it has offered me some positive outlooks.Made me chuckle at times:-D .I will stay positive and fight Dad's corner as i know many years ago when he retired from the Army he kept that knowledge he learnt and tried to instill that in me but at times he had a fight on his hands as i'm strong minded too.>:-)yes my upbringing by him was very regimental and at times i know he ment well but he also regrets a lot of things as i have since found out.Anyway that is another story one i won't go into.It is in the past and all i know is he needs me now and i'm going to be there for the both of them.
And Scott i have an impulsion to call you a Jedi for some reason maybe it is the evil forces of Myeloma and me being a fan of the old Star wars movies.Think i'm letting my imagination run away with me.So i will say in jest may the force be with you!:-P
And i will pass on your wishes to my Dad thank you!
Wish you all the best and thanks once again.
Illona.;-)
Hi Mavis,Thank you for the welcome and i will let everyone know how he is doing.He is good for now,But has only just started the treatment so early days.Hope you are good.Best Wishes,Illona.xx:-)
Hi Tony,Thanks for the heads up on the support group.Will definatley mention that to Mum.If My Mum was not keen could i go at all?Good to know you are well looked after at the Infirmary.Yes it would be good to see you sometime at the clinic you never know.I'm sure if i have any questions i will be in touch Tony,thanks again for that offer.Anything helps.And you are all helping in more ways than you can imagine.:-)
Best wishes Illona.xx
HI Dick and Carol,
Thank you for the reply's.Dad is being very brave and just getting on with things,he has settled more now treatment has started and side effects are few.The shock of the diagnoses brought on the disbelief at first.He could not take everything in the Healthcare specialists were saying to him everytime we had to find out the next steps.Me and Mum were there everytime so we could go through it with him.I think my Dad just wanted the Dr's to treat him whoever that may have been and not have to know details so much.He is coming round to talking more about treatment and side effects and he has said that he will tell us everything no matter how little.To be honest the only thing he is having are the hiccups and i think that could be the Dex and he is not having them very often.Carol my Dad is 67yrs next month.Hope your doing good both.
Regards,
Illona.
