Hi Vicki

So good to see everything going well for Colin at the moment.

Is he on any maintenance program yet?

We went to EJU last Weds Geoff is now down to a PP 2.5 and undetected in the light chains and he is just starting cycle 7 of RDC. I hope not too many more cycles all the emotions that goes with it 🙁

regards

Jacquie

Hi Vicki Geoff is mid cycle 5 of the RCD Myeloma X1 trial its hard work what with all the emotions ups and downs why me? The clinic now had a special clinic for everyone on trials on Wednesday afternoons so quieter. Sean messed up his last prescription and we had to go back next day to get sorted! We go again 12 December for next results last…[Read more]

Hi Vicky
So glad to see you have Colin home at last. Take each day as it comes I am sure you will both get through the ups and downs.
He has certainly been through the worst now.

take care

Jacquie & Geoff x

Thanks for your reply Ali my partner is on cycle 5 now but he finds it really hard fighting this. Just hope we can progress soon. Hope your mum is doing well,

regards

Jacquie

Hi we went to the Birmingham one the other week found it really helpful and interesting and on the plus side met other fellow suffers. My partner has the Myeloma I would recommend to anyone who gets a chance to go.

Hi Lizzy

Its my partner Geoff that has the MM he too had the same allergic reaction to the Allopurinal he was in a right state rash all over he was taken to hospital and kept in 4 days he is on the Revlimid too and has stayed on this he started with a level of 109 now after 3 months of Rev he was down to 13 so it does the job! Just going back…[Read more]

Hi Vicki
Good to hear things are going to plan for a change. Check in every day to see if you have updated as Geoff is keen to see how things are going. Stay strong and healthy take some rest whilst you can.
love Jacquie x

Just to wish you good luck and hope Colin's SCT goes to plan will be checking in on his progress x

Fantastic news so pleased it all worked out in the end. Next step SCT time to relax a bit now. will be keeping check on your posts. best wishes Jacquie

Hi Vicki and Colin
Thats great news, Hope tomorrow brings many many more! at this rate it will be all done by Christmas. Keep strong thinking of you both.

Hi Mike

my partner was diagnosed with MM in July he is on the Myeloma X1 trial and he got the RCD his paraprotein levels are responding well. I notice you are from the West Midlands do you know that Myeloma UK are holding an info day on the 20 October 2012 at the Hilton hotel near NEC? you should meet others with same condiition and hear…[Read more]

Hi Vicki

Just wanted to say hope all goes well tomorrow will be thinking of you both. 🙂

thats great news hope all goes well. We were in clinic this week and Dr Chown told us they are changing the clinic to a Trials Clinic on Wednesday afternoons from next month. Sounds a great idea as other MM sufferers on the trials will all be at same clinic. Geoff's Para Protein level is on way down nicely so hope to get to SCT soon.

sorry to hear things havent been going very well with Colins STC hope everything works out x

Hi Michelle

Thanks for your response, Geoff had the rash from head to toe! it was so horrible, I am glad it will get easier I think once Geoff accepts the diagnosis it will get easier still.

I also know Dorset a lovely part of the country have an Aunty in Swanage.

Hope all is well with you x

Thank you for your reply hope everything goes well with Colin's SCT. Will keep in touch (if you dont mind as its nce to know someone local going through the same). Geoff attends the EJU as well and is only just started his second cycle. I still cannot believe all this it turns your life around.

Thank you Jo he is on Dex

Hi Mke

Sorry to hear you have recently been diagnosed with Myeloma. My partner Geoff is 54 and has recently been diagnosed, we also live in Gloucester and attend the EJU outpatients. Was wondering if you would like to meet Geoff and perhaps you can help each other through the treatment.

Jacquie