Myeloma Forum | colemanjacquie | Activity https://forum.myeloma.org.uk/members/Jacquie/activity/ Activity feed for colemanjacquie. Sun, 26 Apr 2026 02:46:32 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 6eb3fbcf15d174e480dde478e2ba8769 colemanjacquie replied to the topic Has anyone else's life been lost through having a SCT? in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/has-anyone-elses-life-been-lost-through-having-a-sct/#post-124904 Tue, 10 Nov 2015 23:06:08 +0000 Hi Laura my partner Geoff went in for his 2nd SCT on 14 September this year first two weeks fine in third week his platelets were not rising as they should he was given platelets and blood but still no rising our consultant noticed a condition called TTP he had to then be rushed to Bristol for plasma exchange Geoff unfortunately lost his fight too…[Read more]

]]> e37a74b65245e15bd0e94d580fa4b24a colemanjacquie replied to the topic ANOTHER SCT JOURNEY ABOUT TO START in the forum General http://www.myeloma.org.uk/forums/topic/another-sct-journey-about-to-start#post-95145 Mon, 29 Apr 2013 21:57:39 +0100 Hi Scott

Just want to wish you good luck with the harvest.

regards

Jacquie & Geoff 🙂

]]> 47488dbf865fd01fdba82d10a066d931 colemanjacquie replied to the topic Date for SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/date-for-sct#post-102430 Mon, 29 Apr 2013 21:31:49 +0100 Thank you all for your best wishes :(:)

]]> effbfce741a9fbe9b0257880153601ec colemanjacquie started the topic Date for SCT. in the forum Treatment http://www.myeloma.org.uk/forums/topic/date-for-sct Sat, 27 Apr 2013 18:20:06 +0100 well we have finally sorted date for Geoff to have his transplant.

May 20th now the anxiety begins.

]]> bf2afedc625337128c6eed0c9cca5005 colemanjacquie replied to the topic From Harvest to Transplant in the forum Treatment http://www.myeloma.org.uk/forums/topic/from-harvest-to-transplant#post-102374 Tue, 23 Apr 2013 17:02:19 +0100 Hi Vicky & Colin
Hope all went well today. Do you go to EJU?
We are waiting confirmation of date from Sian.
Geoff has also been seeing Nicky. he finds it really hard to accept and is very emotional all the time:( I just hope he will improve once the transplant is done.

regards

Jacquie

]]> e21604b25d00efb0f413c1c2450ddd87 colemanjacquie replied to the topic From Harvest to Transplant in the forum Treatment http://www.myeloma.org.uk/forums/topic/from-harvest-to-transplant#post-102372 Sat, 20 Apr 2013 21:45:17 +0100 Hi Vicki & Colin
Sian finally got back to us Friday afternoon possible transplant dated for 6th or 13th May ! She is going to confirm next week. However I go to America to visit my daughter and granddaughter on 20 May with my mum for her 80th birthday.

Geoff is happy to go ahead sooner and his brother has agreed to see him through it if I…[Read more]

]]> 873905c54ec089457ddf1ac45a92410a colemanjacquie replied to the topic From Harvest to Transplant in the forum Treatment http://www.myeloma.org.uk/forums/topic/from-harvest-to-transplant#post-102368 Sat, 13 Apr 2013 21:51:23 +0100 Hi Vicki

it was just Dr Frewin told Geoff on Friday she thought we were leaving it to long to have his transplant in June! she really put the cat among the pigeons he was so emotional 🙁 I am going to call Sian Middleton Monday to see when it will be as we have enough cells. Did colin go back on any treatment after his harvest and before…[Read more]

]]> bd7900b9b45f3f380d91c8bf6433dac9 colemanjacquie replied to the topic From Harvest to Transplant in the forum Treatment http://www.myeloma.org.uk/forums/topic/from-harvest-to-transplant#post-102363 Fri, 12 Apr 2013 19:46:31 +0100 Thanks Jean

Did Frank have to go back on chemo in between?

regards

Jacquie

]]> 2981e99051524fa63003b62eee49fae2 colemanjacquie started the topic From Harvest to Transplant. in the forum Treatment http://www.myeloma.org.uk/forums/topic/from-harvest-to-transplant Fri, 12 Apr 2013 19:19:02 +0100 Hello

Please can I ask those of you that have gone through SCT to tell me how long you waited from Harvest to Transplant. I am asking this as Geoff went for collection 2 weeks ago and due to have transplant June 16. He went to GRH today to have his line flushed and his consultant thinks this is too long to wait as he has not had any treatment…[Read more]

]]> c1f2b544f8e9726bf447efd23dc50778 colemanjacquie replied to the topic Harvest done in the forum Treatment http://www.myeloma.org.uk/forums/topic/harvest-done#post-102230 Sat, 06 Apr 2013 15:39:31 +0100 Hi Dai

it was 3.5m in days after 4 days of GCSF injections they did not want to go for more as they were happy with the 3.5. Geoff was disappointed as he hoped they may have tried for 4-5 but hey enough for one transplant.

regards

Jacquie

]]> 73a8ada5a2564f5df688c9c39e0f9137 colemanjacquie replied to the topic Harvest done in the forum Treatment http://www.myeloma.org.uk/forums/topic/harvest-done#post-102227 Fri, 05 Apr 2013 20:12:33 +0100 Hi Megan & Tom

thanks for your posts I will keep you all updates. I am Just hoping Geoff nerves will be ok when I am away as he is very nervous off everything at the moment. Its a shame we dont have a local support group he could go.

regards

Jacquie

]]> 73b2c73109750a655081a103b1d2a9eb colemanjacquie replied to the topic Harvest done in the forum Treatment http://www.myeloma.org.uk/forums/topic/harvest-done#post-102224 Thu, 04 Apr 2013 19:19:45 +0100 Hi Eve it was over 2 collections. regards

Jacquie

]]> 688d81a7cc3652a9e6d6578a0c426597 colemanjacquie started the topic Harvest done. in the forum Treatment http://www.myeloma.org.uk/forums/topic/harvest-done Thu, 04 Apr 2013 16:46:53 +0100 Hi everyone

Harvest over but only managed to get 3.5 million but hey enough for one transplant. We were hoping for more 🙁

Now for the long wait until 17 June to get them back. It would have been sooner but I am off to visit my daughter and granddaughter in US in May and Geoff agreed to have it done when I am back to look after him.

]]> c1a75aaf5f746f8d273ad5e38fc3f3c8 colemanjacquie replied to the topic We have dates in the forum Treatment http://www.myeloma.org.uk/forums/topic/we-have-dates#post-102195 Sun, 31 Mar 2013 18:35:31 +0100 Hi Vicki

Nurses have been great and on time! Just hope the count is right Tuesday morning at Southmead. Will pass on your best wishes to the nurses. Hope Colin is doing well too.

regards

Jacquie

]]> 1007c3ec8336e20a92a649d58925fa3c colemanjacquie replied to the topic We have dates in the forum Treatment http://www.myeloma.org.uk/forums/topic/we-have-dates#post-102190 Sat, 23 Mar 2013 13:21:10 +0000 Hi Dai

Thanks for your reply the nerves have kicked in already,Such a scary path ahead and as you say this site is full of good people sharing their journeys. just wish we did not have to take this path. will keep you all updated,

regards

Jacquie

]]> 571227d870f2994c684c6bec6d3d4e36 colemanjacquie started the topic We have dates. in the forum Treatment http://www.myeloma.org.uk/forums/topic/we-have-dates Thu, 21 Mar 2013 20:47:58 +0000 Well went to SCT coordinator on Monday and Geoff is having central line fitted next Monday. GCSF Injections Good Friday to Easter Monday then SCT harvest 2-3 April. As long as we get enough cells SCT planned for 17 June.

]]> d1863f9bd00bc0d66f1453cf1d46dcd4 colemanjacquie replied to the topic So it begins in the forum Treatment http://www.myeloma.org.uk/forums/topic/so-it-begins#post-102135 Thu, 14 Mar 2013 19:40:07 +0000 Hi Vicki yes we are seeing Sian Middleton on Monday and will be harvested in Bristol once we have date. We also had a letter to book Geoff in at Cheltenham on 25th March for a Chest line in ready for the harvest and transplant.

]]> 656b841408e42acc0202a4f1ece92ffe colemanjacquie started the topic So it begins. in the forum Treatment http://www.myeloma.org.uk/forums/topic/so-it-begins Thu, 14 Mar 2013 19:26:40 +0000 Geoff went to monthly appointment last week and after 8 cycles of RCD he has a full response to treatment. Back in 3 weeks for BMB result. We have an appointment with SCT coordinator on Monday in Cheltenham so will have more news then

]]> d23c3f6ecb067bbe20b093c21ab3eb31 colemanjacquie replied to the topic Three little words...... in the forum General http://www.myeloma.org.uk/forums/topic/three-little-words#post-94452 Wed, 20 Feb 2013 20:33:32 +0000 That's fantastic news long may it last 🙂 🙂

]]> 1bd67dc332594944dc9b11a90c9cb6ec colemanjacquie replied to the topic Question.....maintenance treatment in the forum General http://www.myeloma.org.uk/forums/topic/questionmaintenance-treatment/page/2/#post-94413 Tue, 19 Feb 2013 18:55:58 +0000 Good luck with the results tomorrow, hope all goes well. will be checking in again in a few days to see how you get on.

regards

Jacquie x

]]> 35af450fe89834abb44273cf9a1a7e1e colemanjacquie replied to the topic Harvesting for SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/harvesting-for-sct/page/2/#post-101091 Sun, 13 Jan 2013 17:50:22 +0000 Hi Vicki

So good to see everything going well for Colin at the moment.

Is he on any maintenance program yet?

We went to EJU last Weds Geoff is now down to a PP 2.5 and undetected in the light chains and he is just starting cycle 7 of RDC. I hope not too many more cycles all the emotions that goes with it 🙁

regards

Jacquie

]]> ac79c9e983134529d9f8c772b35bbda8 colemanjacquie replied to the topic Colin SCT starting, here goes!!! :-) in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-sct-starting-here-goes-/page/7/#post-100889 Wed, 28 Nov 2012 17:54:21 +0000 Hi Vicki Geoff is mid cycle 5 of the RCD Myeloma X1 trial its hard work what with all the emotions ups and downs why me? The clinic now had a special clinic for everyone on trials on Wednesday afternoons so quieter. Sean messed up his last prescription and we had to go back next day to get sorted! We go again 12 December for next results last…[Read more]

]]> 0c53d4f6aa8d52d46be1f119d828e3a7 colemanjacquie replied to the topic Colin SCT starting, here goes!!! :-) in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-sct-starting-here-goes-/page/7/#post-100884 Mon, 26 Nov 2012 20:05:58 +0000 Hi Vicky
So glad to see you have Colin home at last. Take each day as it comes I am sure you will both get through the ups and downs.
He has certainly been through the worst now.

take care

Jacquie & Geoff x

]]> ff66da22d38bd0bd5b0c29ff4569eebe colemanjacquie replied to the topic Myeloma X1 trial in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-x1-trial1353432610#post-100978 Tue, 20 Nov 2012 18:19:47 +0000 Thanks for your reply Ali my partner is on cycle 5 now but he finds it really hard fighting this. Just hope we can progress soon. Hope your mum is doing well,

regards

Jacquie

]]> 2b4edba57a56859f7c94cccf4b6b1289 colemanjacquie started the topic Myeloma X1 trial. in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-x1-trial1353432610 Tue, 20 Nov 2012 17:30:10 +0000 Hello everyone

Just wanted some information if possible from anyone on the MM X1 trial that are or were on the RCD arm.

My partner has MM iga and has been on trial for a while now.

At first his PP were going down well but now seems to have slowed down.

Do you know roughly how many cycles of RCD needed to get to a possible…[Read more]

]]> 4155e62c88e9e69dcccbb0f51f379b5e colemanjacquie replied to the topic Cardiff Information Day in the forum General http://www.myeloma.org.uk/forums/topic/cardiff-information-day#post-93788 Fri, 16 Nov 2012 17:57:17 +0000 Hi we went to the Birmingham one the other week found it really helpful and interesting and on the plus side met other fellow suffers. My partner has the Myeloma I would recommend to anyone who gets a chance to go.

]]> 60ff6e5c20e896bb1e992d2560d47ded colemanjacquie replied to the topic New with a tale to tell already! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-with-a-tale-to-tell-already#post-86909 Sun, 11 Nov 2012 11:25:59 +0000 Hi Lizzy

Its my partner Geoff that has the MM he too had the same allergic reaction to the Allopurinal he was in a right state rash all over he was taken to hospital and kept in 4 days he is on the Revlimid too and has stayed on this he started with a level of 109 now after 3 months of Rev he was down to 13 so it does the job! Just going back…[Read more]

]]> d93d4c63b8bbb7385a6ef180396a63c6 colemanjacquie replied to the topic Colin SCT starting, here goes!!! :-) in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-sct-starting-here-goes-/page/2/#post-100803 Fri, 02 Nov 2012 21:39:02 +0000 Hi Vicki
Good to hear things are going to plan for a change. Check in every day to see if you have updated as Geoff is keen to see how things are going. Stay strong and healthy take some rest whilst you can.
love Jacquie x

]]> f501edb195a0d8e7d4a370d6d0c89d41 colemanjacquie replied to the topic Colin SCT plan b! in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-sct-plan-b/page/11/#post-100330 Sun, 28 Oct 2012 17:40:39 +0000 Just to wish you good luck and hope Colin's SCT goes to plan will be checking in on his progress x

]]> e2ad932e5b35f4639f991d747369b9c4 colemanjacquie replied to the topic Colin SCT plan b! in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-sct-plan-b/page/8/#post-100281 Thu, 11 Oct 2012 19:15:41 +0100 Fantastic news so pleased it all worked out in the end. Next step SCT time to relax a bit now. will be keeping check on your posts. best wishes Jacquie

]]> 7f4bc27c01bb1c3777260d5b9b180204 colemanjacquie replied to the topic Colin SCT plan b! in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-sct-plan-b/page/8/#post-100275 Wed, 10 Oct 2012 19:49:59 +0100 Hi Vicki and Colin
Thats great news, Hope tomorrow brings many many more! at this rate it will be all done by Christmas. Keep strong thinking of you both.

]]> 597f02b3df491b55bc531bb9abf3f4f1 colemanjacquie replied to the topic Recently diagnosed in the forum Newcomers http://www.myeloma.org.uk/forums/topic/recently-diagnosed1349773412#post-86724 Tue, 09 Oct 2012 18:48:49 +0100 Hi Mike

my partner was diagnosed with MM in July he is on the Myeloma X1 trial and he got the RCD his paraprotein levels are responding well. I notice you are from the West Midlands do you know that Myeloma UK are holding an info day on the 20 October 2012 at the Hilton hotel near NEC? you should meet others with same condiition and hear…[Read more]

]]> ac25c2ab6b5ac7cbfaa7abc4f721c19e colemanjacquie replied to the topic Colin SCT plan b! in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-sct-plan-b/page/7/#post-100259 Tue, 09 Oct 2012 18:33:53 +0100 Hi Vicki

Just wanted to say hope all goes well tomorrow will be thinking of you both. 🙂

]]> 67d8264974074fdc5e9a3c19e79c0524 colemanjacquie replied to the topic Colin SCT plan b! in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-sct-plan-b/page/6/#post-100243 Thu, 20 Sep 2012 16:23:13 +0100 thats great news hope all goes well. We were in clinic this week and Dr Chown told us they are changing the clinic to a Trials Clinic on Wednesday afternoons from next month. Sounds a great idea as other MM sufferers on the trials will all be at same clinic. Geoff's Para Protein level is on way down nicely so hope to get to SCT soon.

]]> e1632369dee57c4c9dfec84094b612de colemanjacquie replied to the topic Colin SCT plan b! in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-sct-plan-b/page/4/#post-100214 Tue, 04 Sep 2012 15:55:02 +0100 sorry to hear things havent been going very well with Colins STC hope everything works out x

]]> 6041d7198fdfdca93ea9c870c2b6eb4c colemanjacquie replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this#post-86556 Mon, 27 Aug 2012 09:03:15 +0100 Hi Michelle

Thanks for your response, Geoff had the rash from head to toe! it was so horrible, I am glad it will get easier I think once Geoff accepts the diagnosis it will get easier still.

I also know Dorset a lovely part of the country have an Aunty in Swanage.

Hope all is well with you x

]]> 80996efff34d4d473f0398ebf3e73620 colemanjacquie replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this#post-86554 Sun, 26 Aug 2012 20:05:22 +0100 Thank you for your reply hope everything goes well with Colin's SCT. Will keep in touch (if you dont mind as its nce to know someone local going through the same). Geoff attends the EJU as well and is only just started his second cycle. I still cannot believe all this it turns your life around.

]]> d0435fb6431597184e6c6e6ba7f28318 colemanjacquie replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this#post-86552 Sun, 26 Aug 2012 19:42:41 +0100 Thank you Jo he is on Dex

]]> 62cdcd1977a0590aaa3508802cc15c9a colemanjacquie started the topic New to this. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this Sun, 26 Aug 2012 18:41:49 +0100 HI everyone my name is Jacquie my partner Geoff was diagnosed with Multiple Myeloma IgA on 16 July 2012 at the age of 54. He chose to go on the Myeloma XI tial and is on the Revlimid. He is still in shock from the diagnosis and I wondered if there are any fellow patients in the Gloucester area he could talk to?

First round of treatment did…[Read more]

]]> cdb39d489432938fd333e8bf5aa2a4dc colemanjacquie replied to the topic Recently diagnosed in the forum Newcomers http://www.myeloma.org.uk/forums/topic/recently-diagnosed/page/2/#post-86296 Mon, 06 Aug 2012 22:17:39 +0100 Hi Mke

Sorry to hear you have recently been diagnosed with Myeloma. My partner Geoff is 54 and has recently been diagnosed, we also live in Gloucester and attend the EJU outpatients. Was wondering if you would like to meet Geoff and perhaps you can help each other through the treatment.

Jacquie

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