Hi terry,

I am 46 and my partner Colin 56. When Colin was diagnosed we thought our world had come to an end…..scared, worried, like a rabbit in the headlights. Is life a bit different, yes, we can't book a holiday at the drop of a hat like we used to, packing a bag and going away for the weekend at a moments thought. Nope, but I can say to…[Read more]

Andy

Thanks for your kind words, and I think I sing off the same hymn sheet as steph, anything out of the ordinary and it's 20 questions!!! You are doing a great job….maybe as Helen has said you just need beer and sunshine to sort this mm! Have a great time in Greece, relax and who knows pps down again…..maybe mm is giving up the battle…[Read more]

Good luck David, we sincerely hope this works for you, quickly and that you bin this mm into touch again….then you can enjoy the nice weather, your garden and enjoy the things you like to do.

Keep your chin up,

Vicki and Colin x

Hello Charlie and Mary

I would echo what everyone else has said, plenty of Dettox to continue to wipe over surfaces, handles, watchful of food dates and none of the likely problem foods, no prawns etc, eggs hard boiled. We were lucky in as much as Colin could eat reasonably well after wards but I made sure food was well cooked, probably too…[Read more]

Hi jacqui,

No he didn't, we weren't told what his pps were before transplant, we assumed they were still zero. We saw dr Frewin before transplant too and she didn't seem worried about time delays then. I would ring Sian because she can reasure or get this moving. Dr Frewin freighted the whits out of us the way she described the transplant,…[Read more]

Hi all

And firstly sorry to hog this post as this is where Andy's great news is absolute paramount….so to finish off I can't thank you all enough for putting some words down to reassure, it made a hell of a difference 🙂 Tom you are always supportive, eve you are frank and wise, Helen as a nurse and fellow sufferer I trust your views, and…[Read more]

Hi Ali, Helen and all,

I was so pleased to read about Andy…it's great 🙂

Ali and Helen, I've been really worried this last week and can't say anything to Colin. Since he had that bad tummy just before Easter he hasn't been right. He went to work for 3 days on the trot after Easter and then last weekend he felt unwell and since then he has…[Read more]

Hi jacqui,

No one seemed bothered at GRH about time delays….Colin had treatment til mid July I think and then didn't have transplant til November and no one mentioned time delay…..still if they think its too long couldn't you go to Bristol if they do it there?

Vicki

Hi Jo

Sorry you have been poorly, hope you are on the mend a bit now 🙂

Vicki and Colin x

Oh Tom,

Poor you…wondered where you were as you are the mainstay….bet you got this chest infection due to lack of vodka 🙂 too expensive eh? You look after yourself and let young bride pamper you a bit. Take care

Vicki and Colin x

Hi rob,

It's a long hard road, for your mum and the family, but don't give up…..search for every option as long as your mum is willing to go for it! Where there is life there is always hope. 🙂

Vicki and Colin x

Blinking eck Dai, you must be really cheesed off and that's an understatement and don't blame you!!!!

Gcsf was given to Colin a couple of times during his induction treatment when his neutrophils were a bit low. He never missed a treatment but might have been delayed a week. There is so much inconsistency between hospitals and given what's a…[Read more]

Good luck Ann, Peter, jean and frank…..fingers crossed for all of you.

Peter has done well to be going back to work but be so so careful,as colinn has overdone it and he is shattered now, having worked 3 days at work and 2 at home each week from 2.5 months. This tiredness seems to be going on and on and like you guys I am very wary and do…[Read more]

That's a nice thought Ali, the present is a gift ! How's your mum doing? Colin is really knackered, he's been to work each week since 2.5 months for three days each week and its now telling….he's been exhausted for 3 days on the trot. I feel very nervy about it as he doesn't look that well either 🙁

Hope your mums doing good, have to be…[Read more]

Andy and steph

That's great great news 🙂 🙂 :-). It all started off with that holiday in Greece last year! ……one more holiday to Greece and that extra sunshine will see those pps knocked into touch! It's been a log slog for you, enjoy those drinks 🙂 🙂

Vicki and Colin x

Thanks jean,

You have made me feel better! Glad to hear that frank is eating a little more and the weight gain! One thing has never wavered throughout this and that's the interest in man united and long may that continue 🙂

You take care both x

Vicki and Colin x

Hi Dai,

He had his sct 3 rd November,came out 25th November, had a virus at Christmas. He returned to work part time about 22nd February 2013 and has either been working from home some days and going into work others. He has days when he is full of beans and the he goes into one of these dips where he is absolutely washed out. No maintenance…[Read more]

Hi jean

Hope frank is doing ok and maybe eating a little more food…..Colin is struggling with some food but overall doing very well! He is feeling pretty rubbish at the moment,he feels sick and has no energy at all, as I said in another post I always think its myeloma there….still I must try not to panic!

I've been promoted at work and…[Read more]

Hi all,

Yes it's good to feel you can help someone with a bit of morale support, good story or not so good. This is a scary journey and we all need the support from someone, so good health to Keith, Scott's, Dai, and everyone who is going through this journey.

I'm on a negative one as I am worried cos Colin is so so tired, but maybe that's…[Read more]

Hi Andy

Great to hear how you are doing….dex or no dex! Hope that the tinkering with the back will give you some relief!. This pain no gain thing wears a bit thin after a while doesn't it! We hope that you and steph have a great time I. Greece and those pps go in the downward direction after that sunshine 🙂

Like your mantra every day is…[Read more]