Vicki replied to the topic Garry's SCT journey in the forum Treatment 11 years, 7 months ago
Well done Garry, you made it….what a result and beat toms days! 🙂 who is a show off then!
Remember to take your time, build up slowly and improvements will come. It has been a hard road but the real recovery begins at home 🙂
Vicki and Colin x
Vicki replied to the topic my mum has myeloma. first time post in the forum Newcomers 11 years, 7 months ago
Hi there,
Good luck to your mum and her treatment. Colin had back ache and the diagnosis of mm two months later! Like everyone else it was a dreadful shock and a real roller coaster ride due tot the induction treatment and infections that followed. However Colin had a good response had he had a transplant in November 2012. Now well on the road…[Read more]
Vicki replied to the topic New on here in the forum Newcomers 11 years, 7 months ago
Hi there,
Welcome to the site, not a place of choice, but a comfort none the less. Congratulations on your complete remission, take each day as it comes. As Andy says they are all a blessing. Take it easy and build yourself up gradually
Vicki and Colin c
Vicki replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi jean and frank,
We feel for you, that time period of tummy trouble, sickness, pain etc is awful. I felt so helpless and Colin so wretched.it feels like it is never going to pass, but when the worst does pass it seemed to quite quickly in Colin's case. I also remember days when I had to help Colin dress, wash etc as he was just not up to…[Read more]
Vicki replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Hi Ann and Peter
Well, is he home then. ? Hope you are both ok. This is where the true recovery begins, and Ann you finding out how tired you are too! I found that Colin began to eat slowly and surely, some ups and downs with the tummy troubles….even now! However the strength will start to retun if Pete is patient it's so exciting and…[Read more]
Vicki replied to the topic So it begins in the forum Treatment 11 years, 8 months ago
Hey. Jacqui,
Well done, Geoff for his results and you for the support :-). Great, are you seeing Sian Middleton? Se is absolutely lovely and a great support. She probably thinks I M mad, so many questions! They are very supportive at the LINC and down at Bristol if you are having cells harvested there!
Keep up posted, Vicki and Colin x
Vicki replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Louisa
Hope your dad is continuing on the mend. It does take a long time for things to settle down and it seems like an age when they are in hospital! Colin hardly ate anything the whole time he was in hospital, was in a lot of pain, had said syringe driver and felt sick and tummy trouble! However once his bloods started on the up he did seem…[Read more]
Vicki replied to the topic Whether to do a 2nd stem cell or not? in the forum Treatment 11 years, 8 months ago
Hi George,
This has got to be a decision for your family, especially your dad alone……Colin took revlimid when he was having induction treatment and he was very successful on it. I would just say listen to what the consultants say and your dad has got to go on a gut feeling
Best of luck
Vicki and Colin x
Vicki replied to the topic RCD cycle 13 in the forum Treatment 11 years, 8 months ago
Andy and steph,
Good to hear from you Andy, wondered what you had been up to. Glad it's not infection hospital visits! Those pps are pesky aren't they! Still so glad they have gone down again though! Hope you have a great time in the lakes, well as for Greece am certain that sunshine will make those pps come down still further! Colin is doing…[Read more]
Vicki replied to the topic My Dad in the forum General 11 years, 8 months ago
Hi Laura,
As jean said, read Colin's sct….I am Vicki of Vicki and Colin 🙂
We had never heard of mm before diagnosis, but boy do we now! There's no getting away from it, it's hard sometimes and scary and it really makes you feel angry, cheated etc….however, the induction treatment prepares you for sct. Colin had quite a few infections…[Read more]
Vicki replied to the topic Tenterhooks in the forum General 11 years, 8 months ago
Dai,
Like the others have said….all bases crossed and keeping our fingers crossed for you. It's a difficult one as the others have said…..a fine balance between normal life and taking the sensible option. Hope you manage to avoid it and we see no posts from the WARD!
Ali, sorry to hear little lad been poorly, always best to keep bugs…[Read more]
Vicki replied to the topic Our Journey in the forum Newcomers 11 years, 8 months ago
Phoebe,
What can I say, you guys are inspirational and you are both a great team
Vicki and Colin x
Vicki replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Jean,
I know what you mean about not wanting someone ill but shouldn't something be happening. I remember it all being very quiet at first, Colin felt sick and that was about it. I wondered why his bloods hadn't dropped like a stone and it seemed like an age for them to start going down. It was normal. I don't know what we expected, some kind…[Read more]
Vicki replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Hi Ann and Pete
Glad to hear that things are on the mend a bit, the eating will come soon enough! It just feels like there will never be any improvement but then it just happens! It's always slow but sure. You take it easy too Ann, it's easy to forget yourself…..I know! 🙂
Vicki and Colin x
Vicki replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Ann
I soooo understand how you are feeling. I had a few good cry sessions when Colin was in, and one with the nurses. Embarrassed but couldn't help it. It's a very emotional draining period for both of you. We can't think back even now!. It's so hard because you can't do anything and you want to make it right…
Has Pete tried the ice pops…[Read more]
Vicki replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi jean
Try not to worry too much though i worried if Colin didn't phone me. Colin slept virtually all the time I was there. I watched tv and I think I know the relocation relocation programmes off by heart! Colin felt sick most of the time, but as far as I know was only sick once or twice in total.
It's best when there is sleeping because…[Read more]
Vicki replied to the topic kidney failure and sct in the forum Treatment 11 years, 8 months ago
Hi Rebecca
Sorry I can't help you with your questions, but just wanted to wish you luck
Vicki and Colin x
Vicki replied to the topic Information/Experience on relapse and velcade in the forum General 11 years, 8 months ago
Dan
Your dad must be very proud of you! You are an absolute star, so young and dealing with all this. I am much much older than you, and I have found it tough. Please try to get some help, as you will burn yourself out with exams and everything! And you'd be no use to your dad then ! Get a break too because you can have a bit of a relax and…[Read more]
Vicki replied to the topic Last Chance Saloon in the forum Treatment 11 years, 8 months ago
Keith
Just caught up with these posts 🙂 you must feel rubbish! Really hoping that you will be able to grab this by the scruff of the neck! It's so hard to battle when you are tired…..however if you can, let's get goin 🙂 don't worry about your heat, just keep the battle going. Where there is life there is always hope 🙂 🙂
Vicki and…
Vicki replied to the topic Bend and stretch for Cycle 3. in the forum Treatment 11 years, 8 months ago
Come on Dai, no weary…you are our inspiration! Anyway numbers going in the right direction so it's working 🙂
Nicer weather coming soon, make us all feel a bit better, slow but sure 🙂
Vicki and Colin x