Andy

That's not the news you wanted and struggling hrough that bxxx weather!. It's amazing how 7m people and there isn't a match. But it just goes to show that it is a risky business and they need all the factors to be right…..no consolation I know. I'm a great believer in medical advancement and reckon in the next few months more donors will…[Read more]

Hey Tom! Lol, can't believe youve got that pain too 🙁

Well we are home :-), have been since 330pm, had supper, col asleep and me not relaxed waiting for the next issue!. Steroids seem to have worked a fair bit.. Colin has been very emotional since being home and weve both had a few tears!. He said it felt strange to be hear? Did you guys feel…[Read more]

Andy

Just spotted this post! What great results. See I put it down to that holiday in Greece, the minor blip was cos you came back to blighty and it had to get used to the cols weather again! Sorry about the potassium, Colin hated those tablets too. He couldn't keep them down, but unlike Dai he has a weak stomach! Oh and a bit of good news, we…[Read more]

Stewart and vanessa,

Hello, sorry to hear your diagnosis. My partner Colin was diagnosed October 2011 and had his SCT beginning 29/10/12. He was discharged Tuesday but he had a little infection blip so we had to go back in Tuesday night. He's probably coming home to tomorrow.

He was on the myeloma 11 trial, having cycles of cyclophosmahide,…[Read more]

Andy

Thanks, have they found a donor match for you then? I remember reading an entry on the myeloma beacon site from a man who had donor transplant. Yes I think it's rough but he seemed so much better and making bit improvements. Also like the own cell transplant I observed how experienced and knowledgable all the staff are…..not much…[Read more]

Dai you are so funny! That made me laugh.

Tina give yourself a pat on the back. I thought Colin would never eat anything again. When he ate a small pot of fruit in syrup I nearly did a victory sprint round the hospital. I get the impression from the others that it's a long slow progress and they've really stressed that to us at the hospital so…[Read more]

Chris

Just wanted to day the very best of luck to you, and hope that your recovery carries on in leaps and bounds. Those neutrophils up to 0.95 that's amazing. It must be that beer you've been drinking!

Do start and new thread so that Colin and I can keep up with your progress!. Colins neutrophils have come back up to 0.7 which was after a…[Read more]

Hi ann,

Re the line and chemo. The line was fitted in a theatre at hospital so I wasn't allowed there but I was allowed to wait with Colin beforehand a bit and obviously the usual after. Colin was a bit sore and a bit worried about getting used to these dangly bits protruding from his upper chest/arm. But actually he did get used to it and it…[Read more]

Hi all,

Chris, you are sounding quote chipper so hope things are on the up for you. I was amazed that you did a bit of driving! Well done, be careful not to over do 🙂

Well with regard to colin, next saga. They are now saying they think the pain he is getting in muscles is a condition called polymyalgia. Apparently his inflammation marker…[Read more]

Hi all,

Andy, good luck with your visit to the professor. Really hope you get some good news as you are due some! Tom, thanks for the cyber hugs! That's helped :-). Colin does still have the line in and they did mention that possibility. You are right about the hard work, it's an hour each way to the hospital and with the really heavy rain…[Read more]

Hi chris

Just wondering how you're doing now you're at home? Colin still not back home yet? Have you had anymore pain in your arms? Colins is still there?

Vicki

Hi all,

Andy, thanks for your support…..how are you doing? Hope they are giving your pps a battering.

Tom, you're right I reckon it is the nurses as they are pandering to his every whim!.

Temperature seems to be more normal, not sure of the cause yet, still waiting for some other bloods. He is pretty fed up, and the pain in his upper…[Read more]

Well all, what a day it's been. Highs and lows!

Got a phone call this morning from Colin……guess what when can you pick me up Vicki, I can come home hooray hooray holiday :-). after all the checkouts from hospital we left for home and got home bout 345pm, with a romantic Colin being a little sick on the way….no problem can deal with that…[Read more]

Hi all,

Sorry not posted for couple of days, but needed to get my head together to make sure that this pain thing is ok and it really is gcsf related. Well seems like I believe it now. Neutrophils, the real,score is 0.41(he's not had the gcsf for a week so they dropped down. No problem there, and apparently platelets and the like are doing…[Read more]

Chris,

Wonderful news, so glad you've got home, even enjoying a roast and a beer. That's great going :-). It must be great to enjoy just being at home. After all this the simple things seems so important don't they. I can't wait for Colin to be home…..hopefully sometime this week.

The neutrophil score is now the real score, not boosted by…[Read more]

Ali,

That's absolutely wonderful news, good on you all, especially mum for doing all the hard work! So pleased to hear things are slowly and surely improving. Including the hair…..is a new style in order? Very best wishes to you all. This will be a good Christmas for you all…..best present ever, mum on the mend 🙂

Vicki

Ps Colin…[Read more]

Hi chris,

Just tuning in, I really hope you are on your way home, if not already there! It will be so great for you, and hope that you can really enjoy the time catching up with home and being I familiar surroundings!

Colins bloods are good and he is seemingly a little better with the pain, although drugged up.

Good luck and keep up…[Read more]

Hi Helen and Tom,

Thanks for the reassurance. I think I had a minor wobble yesterday, and had a blubb outside as i was convinced mm had reared it's head. I think being shattered and trying to keep everything going took a chunk out of me!. The good update for me is that I feel a lot more reassured from you guys and apparently the consultant is…[Read more]

Babs,

Welcome, and congratulations of your SCT success. My partner Colin has just had his SCT, in fact i am sat in hospital with him now! It is great for me and colon. Tom read success stories so keep them coming. It's great to hear success stories. I had a real wobble here at the hospital this afternoon and blubbed to two nurses as I am so…[Read more]

Hi ann and Peter,

Good luck with the appointment on Tuesday, SCT looming fingers crossed!. Sorry about the cough and cold there is a lot of it about!.

Well all I am worried! :-(. Bloods (neutrophils 1.4 ish), he needs some platelets I'm told but that was Colin telling me and he's a bit drugged up!. Generally he is eating better and drinking…[Read more]