Thanks Helen,

All going well so far. Line in and 3 lots of gcsfs done, with sone pain in lower back. Other than that,seems ok. Colinnsaw one of the consultants today and she's said for the second time, don't be disappointed if they don't get enough. We don't know whether she means first time, or at all, which is slightly disconcerting. 🙁 we…[Read more]

Hi Tom and ann

Apologies for the late reply. Just got back from hospital. Colin went in today to get his line put in, and all seems to be going well so far. 3rd lot of gcsfs done and pain seems ok, apart from in his back. In good spirits. We'll see how the harvest goes as long as the line is in the right place! Colin should be coming home…[Read more]

Hi Paul

That's great.Colin has a date for SCT, 14 august. He went in to hospital today for the line to be put in, gcsfs started on the weekend. Harvest this week too.

I wondered how you were getting on, hope all goes well for you and glad you got a break in

Vicki

Hooray Mari, well done Stephen! (I reckon he was making you sweat a bit for the holiday….LOL 😀 thanks for the encouragement and we hope you have a great holiday. We are going to enjoy our summer, over the next two days probably! LOL

Keep us posted how it all goes Mari, and I will do the same.

Take care all and enjoy your…[Read more]

Hi Andy

Glad to hear the radiotherapy went well, Colin had a blast of it at the start of his treatment and despite feeling a bit tired and short of breath was ok, and he has not had too many problems since. Colin also had cyclphosmhide as part of his treatment and was effective, so I hope it's the same for you. Its about time you were given a…[Read more]

Gosh, hi to all and what a series of events.

Mari, I hope Stephen gets the right number of cells, and you both get the holiday. You will both need it! Colin is due to go for harvest Wednesday and gcsfs start tomorrow (apprehensive). We were told today that SCT has been brought forward a week so he is now duemin on 14th august.

Ali, your mum…[Read more]

Hi stephen,

Well done and so pleased for you…..it's great to be home I bet!, glad things went well for you and looking for ward to a long long remission!. Colin is due to start his gcsfs tomorrow and then have a line put in on Monday. Wednesday/Thursday we are at Bristol, for harvest, then if all goes well we are in for SCT 14th august (it…[Read more]

Hi Amelie,

Good for John and we hope all goes well for you both

Vicki and Colin

Hi mike,

My partner Colin was diagnosed last October 2011, like you at a routine appointment! We were shocked, scared and unaware of this condition! He has one wedge on his vertebrae, has been able to work most of the time, either from home or at work, during treatment. He is waiting a SCT in august. To be honest once we got into a routine we…[Read more]

Hi Mari,

I just wanted to drop you a line, hoping that all went well with Stephen and his second harvest. I too am just a bit relieved at the thought of being allowed a second go if needs be. Colin's consultant said she was worried they wouldn't get enough for one SCT let alone two! I am worried because the preflixor (sorry I mean that…[Read more]

Hi Alison

That's great for your mum.well done to her! Showing off LOL! I hope Colin gets as many. He is due to start the injections on Saturday evening with harvest planned for 25/26th July. Really pleased and hope your mum is feeling pleased with herself. 😀 🙂 . Keep us posted.

Vicki and Colin x

Hi Karen,

Like the others I am not medical, but can only share my experience, my partner Colin was diagnosed with myeloma last October 2011, having had few symptoms, following a random blood test. His bloods revealed a paraprotein presence and indeed bence jones free light chains. I believe the light chains are a kind of waste product filtered…[Read more]

Hi keith,

Glad to hear you are making sone progress…..easy for me to say, no pain no gain ha ha !

Good luck with your consultation Dai

Vicki and Colin x

Hi Suea,

Just wanted to add our thoughts to the others. As far as I am concerned I would leave no stone un turned, unless of course my partner adamantly did not want it.the medical teams are fantastic but it has to be joint decisions, trying everything! Go for it and I hope all goes well x

Vicki and Colin x

Hi Tom,

Thanks for the advice, much appreciated. Since Colin has been off treatment waiting for the big one, in the first 4 weeks he said he felt so tired and was a bit disappointed that he did not feel better. Well touching wood, how that's changed this week! He said he felt something 'change in his body', he's been back to near normal, tired…[Read more]

Hi Stephen,

Have been thinking about you! Glad to hear you are doing well and things aren't too bad. Your time in isolation has gone fast! Well, for us anyway, maybe not you 😀 Not long before you are home maybe? Keep going, onwards and upwards as Tom would say

Vicki and Colin x

Hi Etta

Good luck to you and good luck with SCT.I hope you are well recovered to visit your family in Oz. How fantastic. We are dreaming of a nice long hot holiday, but would make do with anywhere, as long as Colin is fit and healthy. Sounds like a few of us will be going through it one way or another in the next few weeks x

Vicki and Colin…[Read more]

Hello penny,

My partner was diagnosed in october 2011,our first experience of myeloma, as we had never heard of it. Up to now Colin has been able to work either from home or at work. He works an hour and 10 minutes away so the drive is arduous in itself. However colins employers have been excellent, as have mine when I have needed to take time,…[Read more]

Hi all,

Once again thanks for the advice re the lollies, and recounting your experiences. The info about the hickman line really helped Colin so thanks!

Mari, I hope you and Stephen enjoy your holiday! Colin and I were too apprehensive to travel anywhere as early on he had some cracking infections and a really bed rigour where I had to call…[Read more]

Hey well done Helen,

You have well and truly beaten this mm into submission and the new hairstyle to boot. Keep on going!

Vicki and Colin x