Hi Mavis

Hey that great about the pps, what a great feeling that is!!!! Don't worry about missing DDT as long as you're off it that's all that matters, ha ha!. On a serious note I don't know about C D T, cook was on revlimid, he has been off treatment for 4 wks now roughly, and seems ok x

Good luck and keep well

Vicki and…[Read more]

Hi Stuart

Thank you very much. We will have a look at both. How is your wife doing now? Did she have many side effects afterwards?

Vicki and Colin x

Hey dee that's great. I wondered how you and your dad were doing!

That's great, these medical teams can work their magic

Take care and I hope your dad carries on making the progress he has . Take care

Vicki

Hey Ann and Pete,

Glad you got the insurance. Have a really great relaxing time, hope the sun, sand and sangria (I assume they have that on Menorca), will have the desired effect.:-)

We are in the waiting game now. Bone marrow biopsy yesterday……as usual sooooo painful. Still to coin a phrase, onwards and upwards.

Vicki and Colin x

Hey Tom and Elaine,

Glad to see you are both having a great time. You must be posh people…..drinks and nuts! LoL.:-)

Have a great weekend

Vicki and Colin x

Hi Andy

Sorry to hear your pps went up a bit,praps it's just a glitch. Any way at least you had a good break. We Brits know that sunshine hols are a bonus not the norm. An old boss of mine had a phrase, KBO. It took me a while to work out-keep battling on!!. Keep doing that. I reckon Toms recipe of vodka and red wine might be the answer, try…[Read more]

Hi David

All good news on here, Elaine, Tom and you, well done, enjoy your holiday and by the way enjoyed your musings from ward 9.very helpful for us both x

Vicki & colin x

Hey Tom and Elaine,

Great news for both of you!:-) 🙂 🙂 🙂 🙂

Not sure where you are going on holiday but have a great time, wherever it is. You are excelling with 4 months off til the next appointment. That red wine and vodka combination seems to work well. So please for you and Elaine. A few treats in store for both of…[Read more]

Hi Jen,

Re your dad looking poorly. When my partner started his treatment, and right up to cycle 7 he had a pasty, sallow look about him, that ranged from really pale then flushed. I assumed it was the medication. Now that he is off treatment waiting for the next stage he does look more like himself. Although he does get very very tired and…[Read more]

Hey eve ,

Please to hear that things are on the up for you and Slim. Glad to hear that the bloods are on the up. I love Dai's phrase, rebooting the system! Sounds less scary that SCT. Hope everything continues in the same vein. Colin had the second bone marrow aspirate today because the other one last week wasn't a good enough sample. He said…[Read more]

Hello Mari,

Just wanted to put our twopenneth in and wish you and Steve best of luck with this second SCT. Will be interested to hear progress, since Colin is waiting for his first. Very best of luck and any food tips welcome as I know that will phase me if Colin does not eat. All the very best

Vicki and Colin x

Hi liz,

Glad to hear that SCT was not as bad as you thought. My partner colin is just behind Stephen and we are apprehensive. He will be going to bristol for the first bit then Chen re ham. Any tips you can give would be greatly appreciated.

How are you doing post SCT and did you have many side effects.

Thanks

Vicki and Colin x

Hi David

Just wanted to wish you well with your consultants visit tomorrow 🙂

Vicki and Colin x

Hi all,

David perky mite, read your musings. That is so helpful and in a lot of ways reassuring

Keith, thanks for your post. As I have said before it's good to hear it from people who have been there. I will also try to remember the tips like ice lollies, I also recall from somewhere that pineapple is also good. Sorry that you did not get a…[Read more]

Hi ann and Peter,

Very glad to hear that the heart problem has turned out to be a non problem, like you say one less thing to worry about!. Colin had a lot of breathlessness and lethargy. I'm sure as the treatment moves on he will get better in that regard. That says Colin manages to go to work at least 3 times in a week at the moment, either…[Read more]

Hello only me,

I have read your post and I am so sad for you, your mum and your family. I love my mum dearly and can only imagine what you are going through. There are no words of comfort that can ease this, but hopefully your mum can slip away quietly into a place of no pain or discomfort. Our thoughts and prayers are with you and your family…[Read more]

Hi there,

Just caught up with the post. You have had a real nightmare and thank goodness you have been diagnosed and now onto the treatment. My pattern Colin was diagnosed last October, unlike you, with few symptoms and discovered by a random blood test. Whilst I would not say we were relaxed with the treatment ( we found it all very…[Read more]

Dai,

This latest post just about sums everything up. It made me feel such a mix of emotions, but I can tell that the post came from the heart. Thank you so much. I am sure we will ask lots of questions to both the medical team and you 'fellow mm'ers.

For today we will try to have a 'normal' day and ponder some more later x

David (perky…[Read more]

Hello Dai,

Thanks so much for this very informative and detailed post. Considering we knew SCT was the next stage it has certainly shaken us up over the last couple of days and colin seems to be having some peaks and troughs of nerves. I'm not sure what I feel like. It is so helpful to have contact with someone like you because not only have…[Read more]

Stephen,

Thank you so much. Colin has read your blog and found it so so helpful. We hope it goes well for you, we will be thinking of you. I am sure there are lots of questions so any info will be greatly received.

Keep in touch 🙂

Vicki and Colin xx