Dear Janet and family,

I’ve had trouble logging in and have only just read this very sad news. To you all I send our condolences. Dai’s ability to paint a picture of his circumstances, even when they were some what messy….cdiff stories, could always inject a sense of humour. He was so encouraging and enormously knowledgeable. These words don’t…[Read more]

Ohno dammit I can’t believe this! I’ve not been able to log on and have only just got the hang of this. Oh bugger, i feel really upset….what happened. Dai was an absolute inspiration, and poor Janet. I feel sad for Dai. He was a huge encourager. I am sorry sorry. A great guy, poetic and so descriptive. Who could forget the cdiff stories.

I am…[Read more]

Hey graham,

Good luck with your treatment. It has taken me a long time to get the hang of the new forum and even longer to work out how to login! Wishing you all the best

Vicki and Colin x

Hi there

I too was convinced that my Colin had been exposed to radiation. He had shingles then was just getting over it and went somewhere where I think he was exposed. He won’t have it but I’m not sure. However with caution I am the sort that I need a reason for something and I won’t ever make sense of this mm!

Vicki

Blimey Helen,

I was just going to do an email to see how you were doing and If you had started treatment…..yep I can see that you have and that dex is doing its magic :-). I so hope we don't have to spend any time at hospital any time soon other than the 2 monthly check up! 🙂

Glad things are going reasonably well, and sorry for the other…[Read more]

Mary and Charlie

Paraproteins undetectable is good! Means the treatment is working 🙂

Vicki and Colin x

Gosh what a shocker Wendy, doesn't bear thinking about too much, lets hope there's some stability and right results soon xx

Vicki and Colin x

Hi Pauline and Marc,

Sorry to hear of your troubles….my partner Colin was diagnosed in October 2011, going on the m11 trial with rcd, after 7cycles went to zero pp and few light chains. He had an sct in October/nov 12. We have had our ups and downs…..Just when we think its ok he goes into a spiral of being absolutely exhausted etc. however…[Read more]

Ps I think Dai and Tom are superstars 🙂 too

Hi Andy and steph,

Glad to hear you are sunning yourselves in Greece….my money is on your pps being right down when you come back. It's the sun and the beer :-). But for now you guys have a great time 🙂

Hi Christine and chris….wishing you so much luck with chris.s treatment, there's alway a plan and always hope. You guys have really…[Read more]

Hi jean and frank,

Hope all is well with you guys and franks progressing onwards and upwards 🙂

Colin more on the onwards and upwards and downwards and upwards. We thought he had turned the corner…..does stuff too much and then 3 days sleeping! He has got really bad acid heartburn at the moment and feels really tired, oh and a sore…[Read more]

Hey Mandy

Did not join this thread early enough! Just wanted to wish you well with your sct 🙂 you've done great, especially since you were so anxious! We so hope you have a smooth ride and can be up and about soon to enjoy being a nanny….and the social life 🙂

Vicki and Colin x

Hi Dai and Tom,

Wouldn't that be great if that were the case :-). If I have a magic wand I'd wave this mm goodbye for all of us….sufferers and supporters :-).

What strikes me is that when I read about mm before Colin's diagnosis it was supposed to be an 'older' persons condition. People seem to be younger and younger :-(. Still on a…[Read more]

Hi sky blue

So sorry to hear of your news and your grans recent news. I truly believe this mm is genetic. I read and article about 18 months ago that talked about mm being potentially genetic. It's a truly horrible condition….I heard an interview on radio two today. Lord saatchi I think it was. He was quite downbeat about the progress for…[Read more]

Dan

That's wonderful news? Is that derriford in Plymouth? If so we are told that's one of the largest oncology centres in the southwest with a good reputation. You and your dad seem to be doing great. We hope you are feeling ok dan…..I was shattered when colin was going through his treatment and transplant so you must be tired too with exams…[Read more]

Hi jacqui and jeff

Just wanted to wish you all both all the best for your sct….it will soon be over 🙂

Vicki and Colin xx

Hi Helen

Can't give you advice on the treatment…..but glad you had a great holiday, and that you are gripping yourself and getting ready for this next course! Re work it can only be your decision, but if you feel you want to go to work, you are well enough to go to work and you can fit around your treatment then why not. Do you do part time?…[Read more]

Hi Sarah and Henry

Yep same as babs, we got counselling for Colin through the hospital and the stem cell nurse. Both of them were great….it really helped Colin and still. Does. Best route as they get what's going on x

Vicki and Colin x

Hi Dai

That's so of great isn't it :-). ? hope things go well for you with the treatment and even equally good you can see the grandchildren, do visits etc. great 🙂 why they didn't give you those gcsfs before I don't know eh?

Helen, how did you get that black eye? Glad you had a great time in Cornwall. Good luck with the treatment …..not…[Read more]

Hi Ali,

Hope your mum is ok….has she been on the cruise yet? Lost track!. Colin and I read early on the issues of revlimid and the secondary cancers…..it was a concern but during maintenance treatment we were just glad it seemed to be doing the trick!. However when it got to maintenance treatment Colin had other ideas about taking it as…[Read more]