[JacquieParticipant]

Hi Laura my partner Geoff went in for his 2nd SCT on 14 September this year first two weeks fine in third week his platelets were not rising as they should he was given platelets and blood but still no rising our consultant noticed a condition called TTP he had to then be rushed to Bristol for plasma exchange Geoff unfortunately lost his fight too we thought he would be coming home x I know exactly how you are feeling at this precise time but at least I know he is no longer suffering x x

[JacquieParticipant]

I have not been on site for a while am so sorry to see that Dai is no longer with us. My sincere condolences to his family he was a strength to a lot of us on here. RIP Dai 🙁

[JacquieParticipant]

Hello Dennis

My partner Geoff has Myeloma had his SCT in May/June this year. He is currently in full remission. We live in Gloucester not too far from you! Did you know that there is a Info Day this Saturday in Bromsgrove? this is the nearest annual info day to us, we went last year and it was good to meet others with Myeloma. We are going again this year.

regards

Jacquie 🙂

[JacquieParticipant]

Thank you Dai you have such a way with words. We are not celebrating on way home Geoff said but how long before its back 🙁 we all know its temporary 🙁 live each day by day small steps as Tom would say onwards and upwards

[JacquieParticipant]

Good luck Scott take it one day at a time. You will get through. Will check time to time to see how you are going on.

Regards

Jacquie 🙂

[JacquieParticipant]

HI Vicki

the info day information is on the home page of this website we went last year and found it useful.

[JacquieParticipant]

Hi Vicki

Geoff is physcialy well but still struggling mentally, He went back to work last week doing 16 hrs a week for a while and ease back gently.

We go to hospital Wed 28 August next. The clinical trial saw us and want to discuss if he wants to stay on the trials unsure what he will chose yet. When are you next in clinic?

We are planning going to the Myeloma info day in Worcester in October as well as went ot he one in Birmingham last year and found it good to meet other people with this wretched disease.

[JacquieParticipant]

Glad to hear you are home take it easy now x

[JacquieParticipant]

Great news Tom now take it easy when you get home one day at a time.

Jacquie & Geoff

[JacquieParticipant]

Hi Tom whilst you were on holiday Geoff went in for his SCT he had Melphalan 31 May and out 12th June really quick response he was waiting for the worse but he was lucky it never really came. He thought the doctors were not looking after him when he asked they told him it was because he was doing so well! Just the long wait now until he has his 100 day tests. :0)

[JacquieParticipant]

Hi Tom hope all is going well for you and you are soon on your way home. 🙂

[JacquieParticipant]

Ditto hope all goes quick and well for you.
Now its set for you to get out as quick as Geoff.
Keep eating the ice lollies and salt water was the best thing Geoff found to ease his sore mouth.

keep us posted if you can.

thinking of you

Jacquie & Geoff:-)

[JacquieParticipant]

Hi vicki

it took over an hour to remove the line went home then back to hospital in evening to have stitches redone! Next in clinic 4 JUly for bloods and consultation. Hope Colin is well.

Regards

Jacquie:-)

[JacquieParticipant]

What a result Dai

long may the good news continue 🙂

[JacquieParticipant]

Hi Vicki

Sorry missed your reply. They. Do not want to see Geoff every week but every 2 weeks Sian is there at GRH EJU they have set up a transplant patients clinic on Mondays. Hope Colin scan went well Geoff is going to see Siam tomorrow afternoon to take his chest line out will let you know when we are going to EJU clinic as waiting appointment in post.

Regards

Jacquie

[Author]

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