[JacquieParticipant]

Hi Eve it was over 2 collections. regards

Jacquie

[JacquieParticipant]

Hi Vicki

Nurses have been great and on time! Just hope the count is right Tuesday morning at Southmead. Will pass on your best wishes to the nurses. Hope Colin is doing well too.

regards

Jacquie

[JacquieParticipant]

Hi Dai

Thanks for your reply the nerves have kicked in already,Such a scary path ahead and as you say this site is full of good people sharing their journeys. just wish we did not have to take this path. will keep you all updated,

regards

Jacquie

[JacquieParticipant]

Hi Vicki yes we are seeing Sian Middleton on Monday and will be harvested in Bristol once we have date. We also had a letter to book Geoff in at Cheltenham on 25th March for a Chest line in ready for the harvest and transplant.

[JacquieParticipant]

That's fantastic news long may it last 🙂 🙂

[JacquieParticipant]

Good luck with the results tomorrow, hope all goes well. will be checking in again in a few days to see how you get on.

regards

Jacquie x

[JacquieParticipant]

Hi Vicki

So good to see everything going well for Colin at the moment.

Is he on any maintenance program yet?

We went to EJU last Weds Geoff is now down to a PP 2.5 and undetected in the light chains and he is just starting cycle 7 of RDC. I hope not too many more cycles all the emotions that goes with it 🙁

regards

Jacquie

[JacquieParticipant]

Hi Vicki Geoff is mid cycle 5 of the RCD Myeloma X1 trial its hard work what with all the emotions ups and downs why me? The clinic now had a special clinic for everyone on trials on Wednesday afternoons so quieter. Sean messed up his last prescription and we had to go back next day to get sorted! We go again 12 December for next results last month his PP was around 10.2. I cant wait to hear those magic works you are not going home with any drugs this time/ All being well we hope Geoff will go to stem cell transplant February or March 2013.

regards

Jacquie

[JacquieParticipant]

Hi Vicky
So glad to see you have Colin home at last. Take each day as it comes I am sure you will both get through the ups and downs.
He has certainly been through the worst now.

take care

Jacquie & Geoff x

[JacquieParticipant]

Thanks for your reply Ali my partner is on cycle 5 now but he finds it really hard fighting this. Just hope we can progress soon. Hope your mum is doing well,

regards

Jacquie

[JacquieParticipant]

Hi we went to the Birmingham one the other week found it really helpful and interesting and on the plus side met other fellow suffers. My partner has the Myeloma I would recommend to anyone who gets a chance to go.

[JacquieParticipant]

Hi Lizzy

Its my partner Geoff that has the MM he too had the same allergic reaction to the Allopurinal he was in a right state rash all over he was taken to hospital and kept in 4 days he is on the Revlimid too and has stayed on this he started with a level of 109 now after 3 months of Rev he was down to 13 so it does the job! Just going back this week for results to month 4. I find this site a great hub of advice.

Jacquie

[JacquieParticipant]

Hi Vicki
Good to hear things are going to plan for a change. Check in every day to see if you have updated as Geoff is keen to see how things are going. Stay strong and healthy take some rest whilst you can.
love Jacquie x

[JacquieParticipant]

Just to wish you good luck and hope Colin's SCT goes to plan will be checking in on his progress x

[JacquieParticipant]

Fantastic news so pleased it all worked out in the end. Next step SCT time to relax a bit now. will be keeping check on your posts. best wishes Jacquie

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