tom replied to the topic Musings from Ward 9 in the forum Treatment 14 years, 7 months ago
Hi David
sorry its first time i have seen this post:-S
cant remember if av bin on here since you went in??
Any way hope your doing good 😀
and to let you know my SCT was a year ago today:-D and everything is running great.
Take Care and you will soon be up and at em 🙂
Tom
tom replied to the topic Weight loss in the forum General 14 years, 7 months ago
Hi Kathleen
I also lost a lot of weight before I found out I had MM:-(
But "One Year" to the day post SCT my weight has gone back up now to a iccle bit more than before lol (waist bigger and i have more chins now lol)
Good Luck finding something you can eat 😀
Tom
tom replied to the topic Itching in the forum General 14 years, 7 months ago
Hi Michelle
Not being on Revlimid I cant add just wanted to wish your Mum well 😀
Tom xx
tom replied to the topic Michael's nurse phoned last night in the forum General 14 years, 7 months ago
Hi Roz
Just thought i would pop in and see how you are both doing?
and gonna send you one of "Tom's Cyber Hugs" for you Both "WWwwwwooooooSSSsssHhh" now thats a good one sent xx
Love to you Both and keep strong xxx
tom replied to the topic Recurring aroma!!! in the forum General 14 years, 7 months ago
Hi Nettie
Recuring smells erm well my young bride says she gets them when am at home lol
But as for post stem smell i have nothing no throw backs some times i cant remember he he
One smell free tom (or is he??)
tom replied to the topic Bisphosphonate in the forum General 14 years, 7 months ago
Hi Norman
I like a lot of others her am on "Zometa" Infusions (every four weeks) and as for side effects?? well to start with I got Flu like symptoms and was feeling a wee bit weary after a few days, but all that has worn off and now dont have a problem??or might just have got used to it:-S
Good Luck with yours
Tom
tom replied to the topic When do they start treatment in the forum General 14 years, 7 months ago
Hi Jean
two and a half years treatment free:-D
I had no pain when I was diagnosed with MM (jan 2009) but told my Consultant that I want to hit it with everything that is available to get rid of the Cancer before it grows and spreads (my thoughts not his bless him ) so he set the ball rolling for me to have CTD then a Stem Cell Transplant,…[Read more]
tom replied to the topic Is this of interest to anyone in the forum General 14 years, 7 months ago
To one Tom from Another 😎
Well its gonna be a cold day inthe warm place (cant say that word) before any one will admite it might have given us some of the MM!!
Me I am with Keith on this one:-) it will be hard and costly to try and pin it on anyone and I would want to spend my energy and funds finding a cure for this darned illness:-S…[Read more]
tom replied to the topic Mums diagnosis in the forum Newcomers 14 years, 7 months ago
Hi Sandie
Sorry to read about your Mum:-(
Best wishes to you all
Tom xxx
tom replied to the topic Another one in the forum Newcomers 14 years, 7 months ago
Hi Susan
And a warm welcome to this site(I moved in a few weeks ago and just put new curtains up ha ha)
Sorry to hear about your Dad, and reading your post it sounds as if he has guts and determantion:-D
I cant offer any help in this matter as i am doing great since stem cell transplant, and never been wobbly!
Good Luck to your dad…[Read more]
tom replied to the topic Postal scam in the forum Off topic 14 years, 7 months ago
Hi Roz and you all 😀
To check out Scams? to see if they are true I use Snopes, its free and up to date, here is the link :::::::::
http://www.snopes.com/info/whatsnew.asp just add what you need to know in the "Search" Bar and it will bring it up, tell you where and when it was started and if its a real threat.
And for those Telephone…[Read more]
tom replied to the topic What language barrier? in the forum Off topic 14 years, 7 months ago
Lolol
An same for iccle ole me lol 😀
tom replied to the topic Don't you just love a good poem? in the forum Off topic 14 years, 7 months ago
Oh Gaye
You little devil:-D
and here I am with bloomin Chapped Lips:-S and you my Young lady have made them bleed ha ha, Good one and yes the last few lines caught me out also Ha ha
Broken skin Tom 😎
tom replied to the topic Snow from my office in the forum Off topic 14 years, 7 months ago
Aww Min what a view 😀
I would get nowt done I would just sit and look out the window Ha ha
Here is one of Charlie and I, after a walk tonight, No probs re his paws as I put him in warm water to get the snow off he he.
Tom an Charlie xxx
tom replied to the topic Another Newbie!! in the forum Newcomers 14 years, 7 months ago
And a "Well Done" That Kath 🙂 what great news to see on our site another one that proves the Dr wrong 🙂 and long may it continue
Tom xx
tom replied to the topic Another Newbie!! in the forum Newcomers 14 years, 7 months ago
Hi Donna
So sorry for the delay in posting but have just found your posts.
So Sorry that they said nothing else can be done for your Dad, its a bugger of a illness is this MM, and I hope your dad proves them wrong.
Love and Best Wishes
Tom xxx
tom replied to the topic SCT next week in the forum Under 50s 14 years, 7 months ago
Hi Fran
Hope your doing OK now you must be getting closer to your counts being spot on,take it easy for the time being and you will soon be on top form again 😀
Tom "Onwards and Upwards" xx
tom replied to the topic Hope to speak to someone about Michael in the forum General 14 years, 7 months ago
Hi Roz and Michael
Am pleased Michael is talking to some one now 😀
I also did have a good chat to a lady at Castle hill, it wasn't easy as bless her she made me cry :-S and i dont/didnt normaly do that:-/ but hey Roz do you know it worked for me? yes Elaine (my young bride) and i talk about our problem when the need pops its ugly head:'-(…[Read more]
tom replied to the topic Migrated in the forum General 14 years, 8 months ago
Hi Kathleen
A warm Welcome to the New Gathering (gosh i sound like an American Evangelist lol)
And as for "Normal" I aint a clue what that is it certainly aint iccle ole me Ha ha, I know folk at work tell me they are "Normal"????!!! well looking at them am pleased I aint he he.
And yep this site is also Slow for me??
Love to all us…[Read more]
tom replied to the topic Hope to speak to someone about Michael in the forum General 14 years, 8 months ago
Hi Roz
Pleased you like the "Hugs" 🙂
As long as you get a bit of rest and spend some time for yourself you will be fine, I hope your Day goes Ok 😎
Cyber Hug" here
Love Tom xxx