tom replied to the topic We have dates in the forum Treatment 11 years, 8 months ago
Hi Jacquie
Well done in getting it sorted, I wont tell you not to worry as you still will, I will just tell you, Take one day at a time and let it run its course its a doable.
Now go and put some weight on first.
Tom Onwards and upwards
tom replied to the topic New to this in the forum Newcomers 11 years, 8 months ago
Hi Jane
Well am pleased your Bloods was Ok 😀
And I hope its soon when you start your CTD, Hope your Daughter and Son in Law have a safe move and weather keeps dry.
Yes Elaine and i have the grandkids often we have six :-0 not often we get all six together its a scatter here and their but we do have days when we know we will have them…[Read more]
tom replied to the topic Ian's birthday and MRSA in the forum General 11 years, 8 months ago
Hi Maureen and Ian
Am not shocked nor surprised by the way you both feel, as its been said many a many a time its hard bloomin work and i think its harder to be the "Carer" than the patient.
I hope you all have a great Birthday,we all know its not going to be a great big lets get this party started day, so a little bit less is more (as the…[Read more]
tom replied to the topic Chicken Pox !!!!!!!!! in the forum General 11 years, 8 months ago
Hi Sarah and Henry
I can tell you I had them as a child, and got spots again when I was in my late 30s and told Dr my wife thinks its chicken pox ??? He said You should listen to your wife more as she is correct. But be grateful it's not shingles ? So the answer is yes.
Hope he stays well from it.
Love Tom onwards and upwards xxx
tom replied to the topic leg muscle weakness in the forum Treatment 11 years, 8 months ago
Hi Ian
Thats Good and i hope that you dont have problems with your legs as am sure you have enough to contend with.
They say the Subcut is best way? am pleased you are confirming that.
I have fingers crossed for you Ian, keep well and hope your legs stay solid.
Tom Onwards and Upwards
tom replied to the topic New to this in the forum Newcomers 11 years, 8 months ago
Hi Jane
Your welcome.
Dont forget during SCT you wont be alloewd out till your fit (ish) so I would suggest patches before you go in to wean yourself off them 😀 that said you will be near a coma anyways as Elaine told me i slept most of the time Lol.
Easter? well no plans but am sure we will be babysitting some time over that week end 😀 ,…[Read more]
tom replied to the topic Disability Living Allowance in the forum General 11 years, 8 months ago
Hi Billy
Sorry you had to join us but welcome anyway.
Its hard to keep your savings when you get ill let alone when you get proper ill 😐
I and my Young Bride (elaine) has seen our savings not only dwinndle but go the lot :-S as Elaine got breast cancer in 2008 and i with MM 2009 🙁
BUT I am pleased to say I dont have Bone damage and…[Read more]
tom replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Jean and Frank
Well am sorry to say I cant help re the Leak from Franks Kidneys :-S but am sure the Dr's are on it with the Anti B's .
Its a long haul andf am sure it was longer for my Young bride (Elaine) than I ??. you know you will have to stick with it Jean but it has been said before "Make sure you Rest also" as the work realy…[Read more]
tom replied to the topic new arrival in the forum Off topic 11 years, 8 months ago
I got it first time jean Lol xxx
😀
tom replied to the topic new arrival in the forum Off topic 11 years, 8 months ago
😉
tom replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Jean and Frank
Well I had a fair bit of Platlets and blood given whilst in Hospital and to be fair when I dropped I didn't feel well untill the day before i came home (was in 16 days) I had the rash but the think I worried more about was the sickness and still running to the loo, but it all came togeter slowly, I know its Hard to sit and…[Read more]
tom replied to the topic New to this in the forum Newcomers 11 years, 8 months ago
Hi Jane
You will be fine (ish) and yes i uised to smoke,, stopped just three weeks prior to my SCT in 2009, I was just using Patches to help me while i was in Castle Hill having SCT and thought when i am out I would start again 😀 , but it all fell apart as after SCT I couldn't be bothered or want to Roll me Fag so i didn't nor did i have the…[Read more]
tom replied to the topic Full Remission in the forum Treatment 11 years, 8 months ago
Well as if we dint know it would work on you 😀 but that said a very well done Peter and long may it continue 😎
Great to hear Good news
Tom Onwards and upwards
tom replied to the topic Struggling to cope in the forum General 11 years, 8 months ago
Aww Tanya Gi Ower or yel mek me blush 😉
Well we are through the upbringing stage and have moved on broke the chain am pleased to say.
I do hope your dad sorts himself out for him as well as the family.
Your dad is in for a rough ride with the mix that he is in so you must brace yourself as you know you will be the whipping girl to shout at…[Read more]
tom replied to the topic new arrival in the forum Off topic 11 years, 8 months ago
Hi Pat
Aww am pleased Beatrix is home I bet you are all over the moon.
Face time is great but getting some of the grandkids to sit back a little is bloomin hard work ha ha, lets get thos other 5 out of the way and get yesen off to canada.
And Jean am sure you could never look like you have been dragged through a hedge 😀
Love to you and…[Read more]
tom replied to the topic my mum has myeloma. first time post in the forum Newcomers 11 years, 8 months ago
Hi nerys and Mum
A warm welcome to the site, as you know its got great people on here.
You have had your Q answered by those great folk, your Mum's Journey like most here has been a difficult one, most Dr's dont know what and how to tell its MM.
I went in December 2008 with a problem on ribcage and was told it was a "Pulled Muscle or a…[Read more]
tom replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Hi David
What a great post 😀 yes my family and friends (not all though) cope with my MM in a good bantered way and throw the jokes in 😀
am sure am due an update of photo's David? and the pillow looks great your young lady wife did a top job on it.
Am pleased you say you are not rushing into useing the coffin for many a year to come but…[Read more]
tom replied to the topic Good-bye Michael in the forum End of Life and Grief 11 years, 8 months ago
Dear Nola
I am sorry to hear about your Loss in Jan.
Stay strong and think of the good times you had before MM came into the scene.
Love and Hugs Tom xxx
tom replied to the topic New on here in the forum Newcomers 11 years, 8 months ago
Hi Rob
Yes sometimes when i am sat down for anylenth of time i find myself "Stiff" and difficult to get of the chair some days, but hey that could just be my old age hitting me sooner than most Ha ha.
I still work (light duties) company gave me a portakabin with everything in it and stuck it near the gate and said just book lorrie's in and…[Read more]
tom replied to the topic Struggling to cope in the forum General 11 years, 8 months ago
Hi Tanya
I can honestly feel for you as I also was brought up in a household that revolved around drink as a child, Both my parents have now passed away Dad first then Mum, I never used to take my Sons (all grown up now) to "Scot Nanna's" due to her drinking habit.
That said to show you you aint on your own 🙂 xx
That said I wish you…[Read more]