tom replied to the topic Zometa in the forum Treatment 11 years, 8 months ago
Hi Sarah and Henry
Its always strange when Meds change with no discussion :-S and am sure you do always ask?.
But I was on Zometa and had that for two years post SCT, just had flu like symptoms for a few of the treatments.
Sarah, Frank keep eye out for Jaw problems as it can have problems on the Jaw bone.:-/
Keep well.
Love Tom…[Read more]
tom replied to the topic Any experiences of 2nd Stem cell transplant in the forum Treatment 11 years, 8 months ago
Hi veronica and Georgina
No problems please ask away about anything.
I was diagnosed in Jan 2009 first line of treament was CTD I had 5 courses of it, that led up to my SCT in December 2009 in Castle Hill Hull.
Now in remission and Drug free now 😀 and I now only go see Consultant every four Months.
Dont forget ask away things i cant…[Read more]
tom replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 8 months ago
Hi Sandie
Now do I say well done in having Osteoporosis :-S Yes i think I should 😀 .
Its not good but its Better than having MM :-S .
I think you should ask if R/T will help ease the pain in your back??, let us know what exercise they say you can do as am sure it will be same as us MM folk should be able to do 😉 .
Am Pleased your Mum…[Read more]
tom replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Hi Ann and pete
Yes thrown out on day 16 I was 😀 but am sure someone on here has my days beat ??
Hope your Home today Peter and let Ann have that week off you just might need it (I did) and when Elaine went back to work she left me a flask and Pack up for me to eat (if i could) till she got home (Bless her )
Tom Onwards and Upwards xxx
tom replied to the topic RCD cycle 13 in the forum Treatment 11 years, 8 months ago
Hey Andy and Steph
Looks like it will be another nite out for you two 🙂 to celebrate
Shame you didn't see keith, I also wish him Good Luck and fingers crossed that the treatment works for him
Tom Onwards and upwards x
tom replied to the topic Any experiences of 2nd Stem cell transplant in the forum Treatment 11 years, 8 months ago
Hi Georgina
Well I haven't had a 2nd i have only had one.
Would I have another?? am not sure Georgina as I understand treating MM with Drugs with No SCT is a good way to go I think at the moment.
Sorry to hear your Dad's SCT has failed.
Good Luck in the Choice your Dad makes.
Tom Onwards and Upwards x
tom replied to the topic 3rd Cycle of CTD in the forum Treatment 11 years, 8 months ago
Hi Maureen and Ian
Good Luck to you Both and I hope this Cycle passes with none or little problems am pleased the bloods were Ok
Tom Onwards and Upwards xx
tom replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Hi Gill
I understand what you say about your Cat am same wi Dog "the Yorkie" 😉
as for Chest Infections well I think thats me also with this Bloomin MM.
Aint heard of a "Lung Nodule" ? what are they doing with it then Gill and what do they about it??
Stay well
Love Tom Onwards and Upwards xx
tom replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Hi Louise
Its not a problem, your dad will slowly feel better but dont expect it to be soon it will take a bit of Time even when he is out of Hospital.
Am with you all on this one.
Love Tom Onwards and upwards xx
tom replied to the topic RCD Cycle 6 cancelled, SCT prep starts on monday in the forum Treatment 11 years, 8 months ago
Hi Sarah Jane
Stem Cell Harvest am sure you wont find that too much of a problem if like me you should find it pain free.
The GSF injections well I had to go into the Day Unit and get a nurse to do mine ha ha Now way was I sticking Myself so i wish you good luck with it. (BTW it dint hurt its just me) during the Injections i had about two…[Read more]
tom replied to the topic sct looming but pp plateau at 14 in the forum Treatment 11 years, 8 months ago
Hi Peter
I think I know that now 😀 but you nip under radar as often as you wish 😉 but dropping by the normal way is better as its "Good To Chat"
Looked for you On Face Book, do you have a photo on profile? or is that you that just joined ??
And i will try to be good 😛
Tom Onwards and Upwards
tom replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Hi Louise
I know your dads doing great 😀 it looks lie he might beat me and get out in less than the 16 days I done, and every one thought that was Good.
Dont worry to much about your dad getting more blood I had one two days before i was let out 😀 and the Dr said that I could have been let out the day before.
Love to you all and tell…[Read more]
tom replied to the topic Treatments and Procedures – Patient Experiences in the forum Treatment 11 years, 8 months ago
Yep am up for that Dai, its one thing I regret (and i dont do regrets easily 😛 ) that I dint do a blog or have a diary or even jot things down on rough bits of paper 🙁 and we all know how the brain goes after Chemo Ha ha.
Tom Onwards and Upwards
tom replied to the topic sct looming but pp plateau at 14 in the forum Treatment 11 years, 8 months ago
Hi Peter
Looked at my Face Book?? dint know you had one and you dint ask to be my friend 🙁 Look Thin gosh am gonna have to tell My Young Bride (Elaine) that one lolol:-D am about 15st 😛
Your Doing well with it all Peter, But Wine and Chocalate :-0 am a savory man with my drink.
As for hair (and you peeped at my FB) mine has grown back…[Read more]
tom replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Jean and Frank
Well first no way would you wake me for bloomin Football Lol
Second I can tell you Frank is doing Bloomin well 😎 I at that stage was asleep most of the time and only woke up to say Good Bye to Elaine and whoever turned up that day/nite, and as the Dr said "he is ahead of the pack" is soo true so thats Good but it still…[Read more]
tom replied to the topic Last Chance Saloon in the forum Treatment 11 years, 8 months ago
Hi Keith
Am Pleased to read you have got rid of your infection and back home with Normal Temp. 😎
You have had it rough My Friend and I pray this is the Corner you turn and chase me to that "Remission"8-)
Still all crossed at ours for you Keith.
Tom Onwards and Upwards x
tom replied to the topic My Dad in the forum General 11 years, 8 months ago
Hi Laura and Dad
Sorry you had to join but its best place to be if MM is involved Good People and Good advice to be had here 😀
Just a fast one I am now 57 and i had my SCT in December 2009 and am doing great and drug free 😀
Its an uphill fight some days when you go through the treatment but it is a Doable, a few blogs have been done…[Read more]
tom replied to the topic Our Journey in the forum Newcomers 11 years, 8 months ago
Wow Wow And Bloomin WOW
What a venture you and yours have and are going through and I raise my hat to you all (I do wear one he he)
Your Story is inspirational 😎 and your strenth will carry you through the MM Journy Good Luck and Love the Post
Love Tom Onwards and Upwards xx
tom replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Hi Ann and pete
Well I wouldn't worry too much about the weight loss honest it comes back with a vengance lol, I went down to less than 70k and my normal wieght is 95 k so it was a big loss and trust me nip over and see my photo's on Face Book its well Back Lol.
Love Tom Onwards and Upwards xxx
tom replied to the topic Good-bye Michael in the forum End of Life and Grief 11 years, 8 months ago
Hi Jackie
I am so sorry to hear that Norman has passed away,and am sorry Norman left the site early as am sure we all could have helped you all through this difficult time you have and are going through.
Please take it or day at a time and we are all here for you.
Love and hugs Tom xxx