JandK

  • tom replied to the topic Excersise in the forum General 11 years, 10 months ago

    Hi Charlie

    Am sure it will be a none impact one, I do walking and A bit of leisure cycling, but not too much am afraid so am not the best to advise, am sure Some one might have been told what's best I would love to know myself .

    Tom Onwards and Upwards .

  • tom replied to the topic A Sunny Happy New Year in the forum Off topic 11 years, 11 months ago

    Hi Eve
    Yes thats correct you cant smell it lol. ye reflection is hard even for us in remission? but hey ho.

    The site is great for old and new members as out treatment changes as some one will have been through it before.

    Pleased you like the Onesie my youngest Son bought it for me as a christmas Pressie 😀 and yes he likes a laugh 8-)…[Read more]

  • tom replied to the topic Good News for our holiday in the forum General 11 years, 11 months ago

    Hi Peter and Trish

    Great to read you all had a great time I bet it was worth that long flight 😎 and trust me May will be here before you know it enjoy the twins.

    Love Tom "Onwards and Upwards" xxx

  • tom replied to the topic Here for dad in the forum Newcomers 11 years, 11 months ago

    Hi Sal

    Am sorry your Dad has been Diagnosed with MM. your Dad has done well getting it found out as soon as he did.

    What Hospital is your Dad getting his treatment from (some on here might be in same hospital)
    What treatment is your Dad on or going on?

    Good Luck to your Dad in his treatment and stay strong for your Mum also.

    Love…[Read more]

  • tom replied to the topic So Alone in the forum End of Life and Grief 11 years, 11 months ago

    Sue

    You are correct this site is a godsend for us all, Patient and Carer.

    The One I would advice anyone to phone would be 999 they would be my first call.

    Honest Sue please ask anything you feel you need to know more about I know it wont be easy for you but am sure if you feel its important then it is.

    Stay Strong

    Love and Hugs Tom xxxx

  • tom replied to the topic Phil's SCT Journey in the forum Treatment 11 years, 11 months ago

    Hi Megan and Phil
    Still doing good as far as i can see 😀 , RE the hair thing well I got the Nurse to shave it in Hospital and when I came home I used my Leccie Razor and took it to the bone :-S and kept it like that till it started to grow back, and it was bloomin cold but a good hat sorted that out.

    Megan you do right in resting as you…[Read more]

  • tom replied to the topic A Sunny Happy New Year in the forum Off topic 11 years, 11 months ago

    Hi Eve
    And a Happy New Year to you and Slim 😀

    I know what you mean when you say you look back each new year, I also do that but I also look forward with baited breath and anticipation 😎 but yet again I still worry during every new pain cough/cold and or ache its normal (or so am told) I also try and shove the MM to the back of my brain…[Read more]

  • tom replied to the topic Itchy Rash Post SCT in the forum Side-effects 11 years, 11 months ago

    Hi Suzy

    I had an itchy rash after my SCT but it soon settled, I have had exma for many a year in the winter months and as I had SCT in December I was on top of it straight away.
    Hope hubby is soon sorted.

    Love Tom Onwards and Upwards xxx

  • tom replied to the topic So Alone in the forum End of Life and Grief 11 years, 11 months ago

    Hi sue
    Am pleased Xmas was ok for you, this time of year is difficult for us all and I send you hugs during those dark moments (( hugs )) am not sure why you were both told how long?? As it doesn't sound like it has helped.
    Stay strong.

    Love Tom xx

  • tom replied to the topic A Sunny Happy New Year in the forum Off topic 11 years, 11 months ago

    Hi Tina

    I am pleased you had a good time at your Brothers wedding, it's brave picking this time of year for the wedding.
    It's a beautiful place to live/visit. But Ice cream. Brrrrr.
    Keep having god thoughts Tina.

    And my best wishes for you this year.

    Love Tom xxxxx

  • tom replied to the topic Bendamustine C1. in the forum Treatment 11 years, 11 months ago

    Hi Dai
    I hope you have a good run on this Dai, and Rosie seems to be doing ok on it 😀 .
    Like all treatment it's a listen to your body and you Dai are a good listener 😎
    Good luck with it Dai

    Happy new year to you and Janet.

    Tom Onwards and Upwards. X

  • tom replied to the topic Phil's SCT Journey in the forum Treatment 11 years, 11 months ago

    Hi Megan and Phil

    Am plased they are sorting out the infection once that has gone its a move closer to home.

    Dont worry about the daily postings mit brings back things I forgot in 2009/10 ha ha, this post will help others comming up to or just starting the road to remission, if you can please keep it going.

    Love and Hugs to you both, and…[Read more]

  • tom replied to the topic So Alone in the forum End of Life and Grief 11 years, 11 months ago

    Hi Mary

    Am sure it was/is tough for you at anytijme let alone this time of the year, Hugs sent to you ((HUGS))

    My Link with MM is I was told in 2009 that I had it went through CTD them stemcell transplant in Dec 2009 and now am drug free, Thanks for asking.

    I hope this year you find time to remember the God times and am sure you both had…[Read more]

  • tom replied to the topic hi from another newbie!!! in the forum General 11 years, 11 months ago

    Hi Steve
    Just nipped in to see how you are ? Hope you are copping well and not too many side effects.
    Let us know how you are doing 🙂

    Tom "Onwards and Upwards"

  • tom replied to the topic Phil's SCT Journey in the forum Treatment 11 years, 11 months ago

    Hi Megan and Phil

    My you have done well Phil I never let my stand leave my room Lol, I was still on anti sick tabs (was for a couple of months when got home to be fair)

    I was out on my 16th day and even threw up on that day (but dint tell the nurse ((Nawty Tom)) as she might have kept me in )

    Keep it going and it will work dont forget…[Read more]

  • Hi Helen not to put a damper on your Rechargeable Battery's but my energy levels vary ?? some days I could dig holes for England others I would struggle to hold the shovel let alone use it :-S BUT I have learnt to do a little and often still rest when both my body or my young bride tells me 😀 as she knows me better than I think I know…[Read more]

  • tom replied to the topic Bendamustine 2nd Cycle in the forum Treatment 11 years, 11 months ago

    Hi Keith I try M8 I try and Thanks. But am sure I will put up a good fight with the demon Drink dont you lol. Have a good un

    Dai All the best for your start on Monday, fingers crossed it work well for you 🙂

    Have a good you all

    Tom "Onwards and Upwards" x

  • tom replied to the topic In Hospital… Again! in the forum Treatment 11 years, 11 months ago

    Hi Vickie and Colin

    Sorry to hear about the unplanned visit, but us MM ers are or will get used to the unexpected :-S
    Get well Colin and stay well.

    Tom Onwards and Upwards xx

  • tom replied to the topic Bendamustine 2nd Cycle in the forum Treatment 11 years, 11 months ago

    Hi Keith

    Well I hope next year is good for you and all of us next year 😀 am sure its no too much to ask is it??:-S
    Good luck and hope the bloods help you sooner rather than later.

    Tom "Onwards and Upwards" x

  • tom replied to the topic Phil's SCT Journey in the forum Treatment 11 years, 11 months ago

    Hi Megan

    Yes am sure Phil will be Jel when he knows about my white board with results posted every afternoon 😀
    It looks like you might not have a Transplant Ward ? if Phil is kept in same place before he leaves you will have to have a walk to see if the ward exsists Ha ha.

    But the haematology ward at our Local (Scunthorpe General) was…[Read more]

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